Effie Parks (@onceuponagene) 's Twitter Profile
Effie Parks

@onceuponagene

Rare Disease Advocate | Award Winning Podcaster | Speaker | Captain Connection | RareMama to my sweet, Ford, who lives with #CTNNB1 🦓

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linkhttp://www.effieparks.com calendar_today05-11-2018 18:30:34

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Effie Parks (@onceuponagene) 's Twitter Profile Photo
Effie Parks
@onceuponagene

7 months ago

✨ It Was Rare & I Was There ✨ Join us on Rare Disease Day + February 28th for an evening of connection, celebration, and community! We’re gathering at Brigantine Portside Pier from 3:30–6:30 PM for food, drinks, music, and rare disease festivities. At the end of the event,

✨ It Was Rare & I Was There ✨ Join us on Rare Disease Day + February 28th for an evening of connection, celebration, and community! We’re gathering at Brigantine Portside Pier from 3:30–6:30 PM for food, drinks, music, and rare disease festivities. At the end of the event,