OrphanetJournal at BMC (@ojrarediseases) 's Twitter Profile
OrphanetJournal at BMC

@ojrarediseases

Orphanet Journal of Rare Diseases is fully open access & published by @BioMedCentral (part of @SpringerNature), on behalf of @INSERM.

ID: 4836230560

linkhttp://ojrd.biomedcentral.com/ calendar_today22-01-2016 19:54:59

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OrphanetJournal at BMC (@ojrarediseases) 's Twitter Profile Photo

Discover insights from Oreoluwatoni Oduwole, runner-up of the The Student Voice Prize Contest 2023, on the evolving role of doctors in rare disease patient care and the importance of reliable online resources and ongoing education for doctors and patients alike. communities.springernature.com/posts/navigati…

OrphanetJournal at BMC (@ojrarediseases) 's Twitter Profile Photo

Iman Muzafar, runner-up of the The Student Voice Prize Contest 2023, shares the poignant journey of a patient advocate with a rare condition, shedding light on the challenges of misdiagnosis and poor clinician communication.Medics4RareDiseases Beacon for Rare Diseases communities.springernature.com/posts/endless-…

OrphanetJournal at BMC (@ojrarediseases) 's Twitter Profile Photo

Leisha Devisetti, a winner of The Student Voice Prize Contest 2023, discusses challenges of rare diseases: limited research & uncertainty. Advocates for better detection, communication, & patient well-being. #RareDiseaseDay2024 Beacon for Rare Diseases Medics4RareDiseases

Leisha Devisetti, a winner of <a href="/RDStudentVoice/">The Student Voice Prize</a> Contest 2023, discusses challenges of rare diseases: limited research &amp; uncertainty. Advocates for better detection, communication, &amp; patient well-being. #RareDiseaseDay2024 <a href="/RareBeacon/">Beacon for Rare Diseases</a> <a href="/M4RareDiseases/">Medics4RareDiseases</a>
OrphanetJournal at BMC (@ojrarediseases) 's Twitter Profile Photo

Leisha Devisetti, a winner of the @RDstudentvoice Contest 2023, shares an article: 'Embracing the unknown: investigating medical communication around uncertainty and its implications on patient and family well-being' ojrd.biomedcentral.com/articles/10.11… #RareDiseaseDay2024

OrphanetJournal at BMC (@ojrarediseases) 's Twitter Profile Photo

Iman Muzafar, runner-up of the The Student Voice Prize Contest 2023, shares the poignant journey of a patient advocate with a rare condition, shedding light on the challenges of misdiagnosis and poor communication from clinicians. Medics4RareDiseases Beacon for Rare Diseases communities.springernature.com/posts/endless-…

OrphanetJournal at BMC (@ojrarediseases) 's Twitter Profile Photo

Check out the blog post by Chandan Sekhon, a finalist in The Student Voice Prize Contest 2023, discussing the crucial role of inclusive clinical research and the importance of overcoming language and format barriers, especially for rare diseases. communities.springernature.com/posts/rare-dis…

OrphanetJournal at BMC (@ojrarediseases) 's Twitter Profile Photo

Discover insights from Oreoluwatoni Oduwole, runner-up of the The Student Voice Prize Contest 2023, on the evolving role of doctors in rare disease patient care and the importance of reliable online resources and ongoing education for doctors and patients alike. communities.springernature.com/posts/navigati…