#RaiseaTostie for #RareDiseases this Sunday! 🍞🥪🍞🥪🍞. Looking forward to our #RaiseaToastie event with colleagues, working in Rare Disease on Monday Rare Diseases Ireland EURORDIS-Rare Diseases Europe SMA Ireland

Thanks to National Rare Diseases Office HSE Ireland for joining us in Stormont for our #RareDiseaseDay celebration with @NI_RDP . We are all looking forward to getting a new National Rare Disease Plan in place. Dr Colm Henry, CCO HSE Ireland @DonnellyStephen Chief Medical Officer

Very well attended talk by Patricia OReilly Hugh Lane Gallery on #OrpenatWar published by Liffey Press Patricia O'Reilly #Orpen #historicalfiction

Lots of questions and audience participation at Patricia OReilly talk on #OrpenatWar published by Liffey Press⁦Hughlane Gallery⁩ ⁦Patricia O'Reilly⁩ #historialfiction

People living with #RareDiseases and their families transformed an Irish beach to mark #RareDiseaseaDay Don't you just lover their creativity? We do! ❤️ Rare Disease Day EURORDIS-Rare Diseases Europe @rarediseasesint

We appear to have just won the Senior cup.

𝐂𝐡𝐨𝐥𝐞𝐬𝐭𝐞𝐫𝐨𝐥: 𝐖𝐡𝐚𝐭 𝐢𝐬 𝐢𝐭, 𝐖𝐡𝐚𝐭 𝐝𝐨𝐞𝐬 𝐢𝐭 𝐡𝐚𝐯𝐞 𝐭𝐨 𝐝𝐨 𝐰𝐢𝐭𝐡 𝐦𝐞? Join our FREE ‘#InvisibleNation’ webinar on Thursday June 1st at 6pm- putting a Spotlight on #Cholesterol. Register now at👉croi.ie/ascvd #ASCVD

Newborn screening for rare diseases can help affected persons avoid costly and difficult diagnosis journeys. The #EU should promote cross-border collaboration in the field of newborn screening for rare diseases as a way to reduce healthcare system expenditure.

In the lead up to World MS Day🌏we want to share some MS facts to help spread awareness. What facts about MS do you wish more people knew❓ #MSConnections #IaMSomeone #WorldMSDay #msawareness #MS

At 12 noon today Lyndsey raising_rareness (Lyndsey Walsh) will share story of journey to get a diagnosis for her daughter. Please join us to learn about challenges facing people living with a rare disease to get a diagnosis and importance of genetic services. Register at eventbrite.ie/e/get-rare-awa…

Congratulations to Croí Chief Executive, Neil Johnson on receiving this prestigious award for his outstanding performance and advocacy work #patientengagement #CVD #MakingADifference 👏🎉

Do you know why we celebrate #INSD on 28 June? To mark the birthday of Dr Robert Guthrie, who launched the field of neonatal screening & dedicated his life to underlining that #NeonatalScreeningMatters Follow us for more INSD content. 👉bit.ly/43xO3q2

In 2021, only 27% of babies born around the world were screened at birth Despite its potential to diagnose many treatable diseases, there are still too many disparities when it comes to accessing neonatal screening More info 👉bit.ly/3TzyYzK #NeonatalScreeningMatters

"Neonatal screening is a crucial public health provision for the future of the European Union”🇪🇺 Thank you Kateřina Konečná, Screen4Rare & the S4R MEP Alliance are delighted to count on your consistent support! Questions about #INSD? Check out our website 👉 bit.ly/3TzyYzK

For treatable rare disorders, the early detection offered by #neonatalscreening can be life-changing and can prevent long-term disability and death. Join us on #INSD to find out why #NeonatalScreeningMatters More info 👉 bit.ly/3TzyYzK

The National Healthcare Outcomes Conference takes place on 16 April in RCSI. This year’s theme is ‘Improving health outcomes through AI’. Topics include AI potentials and pitfalls, AI and patient care and more! Register at rcsi.com/nhoc Supported by @NovartisIreland

Prof Jan Sorensen, RCSI and Caitriona Walsh, @NovartisIreland delivering the opening remarks at the National Healthcare Outcomes Conference exploring Improving Health Outcomes through AI. #NHOC24 #AI #healthcareoutcomes

#OneShoedoesnotFitAll #NovartisIreland delighted to support Marie Keating Foundation meeting on metastatic breast cancer

The Headway Cork Choir have entered the Novartis Ireland Patient Choir Contest, and NEED YOUR VOTE! Please vote at this link: novartis.com/.../vote-your-…... You can listen to their entry and use the "VOTE NOW" button. Share with your friends!

Of course, we know you really want to vote for the Headway Cork choir!