NPKUA
@npkua_info
The mission of the National PKU Alliance is to improve the lives of individuals with PKU and pursue a cure.
ID: 710016398
http://npkua.org 22-07-2012 03:31:24
2,2K Tweet
1,1K Followers
456 Following
rriostrujillo
@rriostrujillo
Comunicador, articulista independiente, trabajador de confianza, UNACH, sindicalista, docente, instructor TICS, poeta, papá de un campeón.
David Mickle
@mick02
Rare Disease Day
@rarediseaseday
29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
Nina
@ninadavis
Boon Wurrung Land
Helena Johnson Fitzgerald
@helenajohnson
Małgorzata Henek
@ma_henek
Boardmember of ESPKU. PKU Patient & Advocate. Wspieram chorych na Fenyloketonurię. Interesuję się zdrowiem i polityką społeczną. Loves: ski jumping + 📖 🎶📺🚗✈
Cas Leermakers
@cleermakers
Hélène Dandurand
@helenedandurand
Alistair
@al_rutherford
Caroline GAUTHIER
@cgauthier12
40-1, belge, anesth-réa, nu student
Ajinomoto Cambrooke Metabolic Nutrition
@aji_cambrooke
Ajinomoto Cambrooke is committed to changing the way people, who require clinical nutrition, experience their diet.
Affirm Patients
@affirmpatients
Kristine Stenersen
@krstener
Robert Holland
@greenwaverob
Jim Conway
@cn02way
From Hamilton South Lanarkshire;
Kate Learoyd
@pkufamily
Mum, charity trustee, ask awkward questions, trying to cope with this icky platform: support @NSPKU for better future for #RareDisease #pku, tweeting own views
Joel Barrish
@jcbarrish
Passionate about Drug Discovery and having an impact on patients in need. Cofounder & CSO at Jnana Tx
Beacon for Rare Diseases
@rarebeacon
Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.
NSPKU
@nspku
The NSPKU exists to help and support people with PKU, their families and carers. It was formed in 1973, see nspku.org
Jeffrey Engel
@juliannasdaddy
Father of Julianna and Jefferson.
Promin Metabolics
@prominmetabolic
Family run company supplying low protein foods and meal solutions for people with #PKU
Rhiannon Armstrong
@rhiannonmarmstr
Adult Inherited Metabolic Disorders CNS | former Critical Care Deputy Sister | wife and a mum to two busy boys #Cymraes #Welsh 🏴
D
@csaunt2d
live life to the fullest, have no regrets, laugh every day - Oh and smile
Brian Riggle
@riggle_me_this
Cleveland is the city!
Rory Aspell
@roryaspell
Life, business, music & sport
mariate
@mariate1973
jakub
@jakubrudnic
Synlogic
@synlogic_tx
Synlogic is a clinical-stage biotech company advancing novel, oral, non-systemically absorbed biotherapeutics to transform the care of serious diseases.
ESPKU
@official_espku
Official Account of the European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria
Low Protein Connect
@lowproconnect
Providing delicious recipes, education, great services and inspiration to support people with metabolic conditions. #FINDYOURPHENOMENAL
Laura Boze
@lboze17
Wife Mom Teacher
Kathryn Logue
@loguesk
mom, wife, daughter, sister, friend
PKU Association IE
@pku_ireland
PKU Association of Ireland #SUPPORTINGPKU #LowProtein PKU Awareness in Ireland Registered Charity Number (RCN) 20202487
Diane Davis
@dianereconsult
PKU News
@howmuchphe
National PKU News provides support & resources to the PKU community. Phenylketonuria (PKU) is a rare genetic metabolic disorder that requires a low-protein diet
丫丫
@y8qb911xcuasozt
Colleen
@colleen77920703
lamhaourik rim
@lamhaourikr
Tony Breen
@tonybreen8
Patients & Providers for Medical Nutrition Equity
@nutritionequity
Emma
@emmbuc
Regional Lead Nurse East Midlands Paediatric Metabolic Service @nottmchildrens @LeicChildHosp | Previous PCCOT Sister | Paed Neuro Deputy Sister
Alexa Sparks
@alexasparks7
Eric
@eric84464746
Nahed Elghareeb
@elghareebnahed
I am Mom
Galen Medical Nutrition
@galenmetabolics
Galen Medical Nutrition UK and Ireland. Providing an innovative medical food range for people with inherited metabolic disorders.
Coventry Uni Student Dietitians
@cudietitian
Account run by dietetic students at Coventry University
Sarah
@sarahbuetens
PNW Queer enby with multi-system diseases #EhlersDanlosSyndrome #POTS #MCAS working for #Functionalmedicine #genetic approach to find causes, diagnosis & cures!
Claire
@claire37944387
Miglena Petrova
@miglenapetrov18
sammi
@sammi15324736
sarah.e.donoghue
@sarahedonoghue1
Paediatrician, Clinical Geneticist, Metabolic Physician. PhD candidate Determined to improve diagnosis and treatment of genetic diseases. Views are my own.
Oliwier
@oliwoj200
Naza
@naza701630401
Rien
Global Association for PKU
@gap_pku
The Global Association for PKU has been formed to close gaps in care for people who have PKU across the world.
Tina
@tennis__tina
Nelleke Schoonbrood
@nellielies_
Laboratório de Erros Inatos do Metabolismo - UFRJ
@inbornerrors
Laboratory dedicated to the research on inborn errors of metabolism at Universidade Federal do Rio de Janeiro. 👨🔬Gustavo Ferreira 👩🔬 Patricia F. Schuck
Eliman Sey
@seyeliman
I come from a poor background if any one can kindly help me will really appreciate from you by god grace
Linda Fletcher
@lindlou1955
Rare & Ready: A Genetic Condition Coalition
@rare_ready
Supported by BioMarin & Ultragenyx, the Coalition educates state policymakers on the impact of conditions. Social media guidelines bit.ly/3AzXLue
PCU Blogue
@pcublogue
#PKU | Je partage mon expérience de la #phénylcétonurie. I share my experience with #phenylketonuria. EN/FR Donations: bit.ly/3ICJjrv
HCU Network America
@hcuamerica
The mission of HCU Network America is to help patients with #Homocystinuria and related disorders manage their disease and to find a cure. #HCUNetworkAmerica
Observatório de Doenças Raras
@rederaras
Observatory of Rare Diseases | University of Brasília #rarediseases #doençasraras #enfermedadesraras #divulgaçãocientífica
Vitaflo Dietitians
@vitaflords
VIA - Vitaflo in Association With Healthcare Professionals - A portal of educational resources for HCPs written by HCPs and Vitaflo Dietitians
Bernadette Sheehan Gilroy
@sheehangilroy
Lecturer Researcher Advocate #PKU #LowProtein #BrainHealth #RareDisease "Ní neart go cur le chéile" The views and opinions expressed here are solely my own
Jnana Therapeutics
@jnanatx
Caroline Graham
@carolinepku
Mum, Designer, Artist, NSPKU volunteer, 3 kids 2 with #PKU all views my own