The UK Government is holding an 'open consultation' on their plan to scrap direct payments to disabled people to help with our higher costs of living. There is an opportunity to respond here online to express your views: gov.uk/government/con…

I still stand by this & other presentations, I just finally made it stick . #EBSA or other ?
My article in @NASEN_org

'Until these disorders are widely recognised, children and young people will continue to be misunderstood and not attain or achieve in education'.

thetransmitter.org/spectrum/amygd… NDM don't like it when draw attention to this as contradicts their claim that anxiety is separate to autism, but many #teamneurofucked ppl have always intuitively known otherwise - here's the evidence

We enjoyed the stars but had to make our own lights …

Important to be aware that all types of symptomatic hypermobility cause issues not just EDS. Children more likely to be diagnosed GJH.

“Despite appearances, I finally realise I am not able-bodied’: author Daisy Lafarge on her ‘invisible’ disorder theguardian.com/society/articl…

Having to advocate to get a diagnosis, complete paperwork, explain absences and appointments to school is taking us away from looking after our children…

”Therefore, interventions focusing on improving students’ long-term health conditions can prevent their exclusion from education and the labour market“. This is key to improving attendance and well-being - belief then diagnosis then support. tes.com/magazine/analy…

The petition is here petition.parliament.uk/petitions/6559…

How long (years) did it take you to get a diagnosis of a type of EDS or HSD ?
Maybe you can't ?
#SymptomaticHypermobility
#EhlersDanlossyndromes #HypermobilitySpectrumDisorders

Connections between #LongCovid & #Hypermobility members only webinar and Patron BendyBrain: Dr Jessica Eccles
🗓️19th May
⏰from 3.30pm BST
💻online via Zoom
First join as a member here: tinyurl.com/yabekyzu
👉Book here: tinyurl.com/5n7dbtfv
#EDS #HSD #hypermobilityAwareness #dizzy

“The language that we use… even in the question ‘Do we have a sick note culture?’ It’s cruel”

Chair of the NHS Confederation Victor Adebowale says the use of “performative” language needs to stop, and the government should show more 'compassion'

#bbcqt bbc.in/4b8DVY2

Are you believed?
We are the leading vol. charity for neurodivergence and symptomatic hypermobility (EDS HSD pgJH)
We would love you to follow us or join us 🙂

Neurodivergence : Did you know dyscalculia is quite common, approximately 1 in 20 people might have #dyscalculia
Sometimes children & adults feel stigmatised particularly in education/ work/business
Webinar tips FREE to join 18th April 7pm BST (sharp) sedsconnective.org/event-details/…

Would help too with vit D levels and general fitness, sleep and well-being.

This week, 2 hospital visits, 1 GP visit, 2 visits to pharmacy for meds. This could have been made easier for me. Instead, basic common sense has been completely missed from decision making making mine & my children's lives harder. Please sign the petition petition.parliament.uk/petitions/6559…

This is the education hypermobility #neurodivergence topical review. Just noticed 4 citations & over 16000 downloads. This matters in SEND, attendance, fatigue issues. tandfonline.com/doi/full/10.10…