Yes, he has read the letter and seems ok with it ! He’s put it by his bed and told his Sister it’s a letter for him about his condition. Also said to her that all he wants is to be able to go back to school and see his friends. Heart is bursting with hope ❤️❤️

My Sons life has been on hold for 4+years as it took so long to diagnose his PANS PANDAS. He’s still cant speak to people or leave his Moms house. I haven’t seen him for yrs. This is why I’m so focussed on spreading awareness, early diagnosis works. More student Nurse feedback 👇

I can’t believe we’re still arguing in the 21st century about whether we should listen compassionately to people in profound distress talk about what’s happened in their lives, or blindly match symptom clusters to a drug with no known mechanism of action and ignore their stories.

Imagine not seeing your own child’s face or hearing his voice for years 💔 the reality of PANS PANDAS is so cruel it’s hard to convey. I know he doesn’t look like this any more and yet I don’t know what he does look like. I love you mate and sending ❤️to the families who know.

If you’re a Teacher please consider this training session on how to help children with PANS PANDAS. You could make a real positive difference to a young person who is suffering badly.

#Edutwitter #SEND was so refreshing today to promote this wonderful training from PANS PANDAS UK and find a huge amount of SEND specialist staff had recently attended and highly recommended. Anyone interested in #neurodiversity #mentalhealth #anxiety this is a must for Sept.

eeeeee this is fabulous for PANS PANDAS UK community on so many levels! Notes to my boy ✉️ PANDA Mama Hopeful Joanne Holloway

Making memories with my Daughter in beautiful sunny North Wales. We’re just missing a very special Son and Brother. We miss you mate and wish you were here with us. I’m sure you will be one day and we hope it’s not too soon 💔❤️

Sending ❤️ to all the kids and families who have no back to school photo today, for whatever reason. My Boys last one was 2019. No school now for 4.5 years due to #PANS #PANDAS 💔 Love you mate ❤️

Hard to fathom unless you’ve seen it Heartbreaking

Notes to my boy ✉️ Same here, no school since January 2020. #PansPandas steals lives. Are you listening #BridgetPhillipson?

Great to see amazing Lucinda Miller raising awareness of PANS and PANDAS on fearne cotton Happy Place Podcast. Huge thanks to you both. For more information about these conditions, please visit our website at panspandasuk.org youtu.be/NcWWT-lGWNM/ #PANSPANDASUK

Sometimes what keeps me awake at night is the knowledge that a PP aware Dr could have stopped my Sons illness before he lost half his childhood. This is why I will always spread awareness of this awful condition. Some more Childrens nursing degree student feedback. Small steps❤️

Echoes of our own story and the life-changing impact on our daughter. With swift diagnosis and treatment, she could and should have made a complete recovery. The NHS has failed so many children through a lack awareness, training and resource.

#PansPandasHour PP parents are amazing, awareness is everything. If you are a #nurse #teacher #sports #coach #volunteer #aunt #uncle #cousin #grandparent please read and remember 👇👇👇👇

#PansPandasHour #changeiscoming2024 No More Lost Children ⭐️✨💙CAMHS Network💙✨⭐️ RCGP EveryDoctor Royal College of Psychiatrists ⭐️✨💙CAMHS Network💙✨⭐️ CAMHS News EWMHS WeNurses 💙 Andrea Leadsom Bridget Phillipson Catherine McKinnell Stephen Morgan MP Michelle Scrogham Matt Maddren Aaron Cummins

#Teacher #EduTwitter #múinteoir #scoil #school #education #Reception #P1 #JuniorInfants #EarlyYears #ChildAndFamily #ECCE #BackToSchool #PansPandasHour #Awareness

Hello all, I’ve not seen this face for 4.5 years and I just want to say that I miss it so much it hurts. That’s it, hope you are all doing ok ❤️, I love you Son ❤️❤️

Join Us for our Annual General Meeting (AGM) 2024 🗓️ Date: Saturday, September 14 🕒 Time: 14:00 - 15:30 📍 Location: tiny.cc/68rjzz Have any questions? Feel free to get in touch at [email protected]. #AnnualGeneralMeeting2024 #MeetTheTeam #Event #PANSPANDASUK