
North Midlands MND Care & Research Network
@northmidmnd
North Midlands MND Care & Research Centre @UHNM_NHS. Individual MDT care to people living with MND/ALS & their families. Enabling access to MND Research
ID: 1788974890659295232
https://www.uhnm.nhs.uk/our-services/north-midlands-mnd-care-research-network/ 10-05-2024 16:51:33
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Effective multidisciplinary team working is essential for people living with #MND An insightful free online course exploring the benefits & challenges UHNM NHS Trust 🏥

I was asked by the MND Association if I would share my story for their upcoming Anual Staff Conference with a pre recorded video at home to show how I live with MND. They were lovely, patient and attentive with me 🙏🏻thank you for asking me and helping me raise awareness 💙🧡💙🧡 #mnda


Our co-director,Ammar Al-Chalabi, will appear on MND Association #BBCLifeline appeal this Sunday at 1405 on BBC1 and then on iPlayer for 21 days. Tune in to learn about the impact of #ALS #MND and what you can do to help find a cure. bbc.co.uk/programmes/m00…



NICE has made the decision to treat tofersen, a specialised genetic therapy for a small subset of people with #ALS #MND developed in the UK, as a general therapy, condemning it to fail their assessment. We must change that decision. Sign the petition: ecampaigns.mndassociation.org/page/151379/pe…


Thanks to work supported by the MND Association, My Name'5 Doddie Foundation and LifeArc, discoveries made by a team at UCL have been backed by investment to push forward. The hope is that this could lead to research trials for the development of a life changing treatment for those with #MND.

Men's Health episode 3! Pleasure as always to catch up with Rob, a very inspirational story & journey around the subject of alcohol; please see link below & give it a listen 😀 #MensHealth #Movember #UHNM #Episode3 vimeo.com/1030006743/2e0… Rob Irving Priscilla Handley (Cilla)

We’re backing MND Association Patron Kevin Sinfield CBE #RunningHomeForChristmas His latest #7in7 challenge sees him run 230 in 7 days across Great Britain and Northern Ireland, in tribute to his late friend Rob Burrow and to raise funds for the MND community. donate.giveasyoulive.com/fundraising/ke…


With MND we never give up! Day 7 “Sir” Kevin Sinfield leaving Manchester #Running to Saddleworth Cheered on by North Midlands MND Care Centre MND Association @martinbooth6 donate.giveasyoulive.com/fundraising/ke…

Our #MND research co-director Dr Tom Lambert banging the drum 🥁 for the final stretch. An emotional & very special moment in memory of Rob Burrows. He’s heading home 🏠 #RunningHomeForChristmas @martinbooth6 UHNM NHS Trust 🏥 MND Association donate.giveasyoulive.com/fundraising/ke…



Another well-balanced & insightful message on ellorarxine from MND Research MND Association Early research is "interesting" but further work needed mndassociation.org/research/lates… MotorNeuroneDisease King's MND Centre UK MND Research Institute Patients United2EndMND Oxford MND Research MND Scotland Good to see our charities following this
