This is perfect timing as Victoria will present these data at the PolyBio symposium today. (2/) polybio.org/spring-2025-sy…

In the meantime we must also call on our clinician colleagues to keep up to date with the consensus literature on #LongCOVID, #MECFS, chronic #Lyme and IACIs so that you can work with your patients to offer personalized care in the form of evidence-informed interventions, 15/

including, where appropriate, off-label prescriptions and compassionate use applications. We are all learning together, we are all in this together, and together we should have the same goal: a better future and treatments for people with complex chronic illnesses 🙏 /end

BREAKING: PolyBio and WE&ME-supported study identifies two distinct ME/CFS subtypes 🧪Collaborative research uncovers immune and biomarker patterns that could help subclassify ME/CFS and guide future treatments. polybio.org/polybio-and-we…

重症の後遺症の方の症状、寒熱、腹証、舌診結果から、達人の先生に教えていただいたあの漢方の組み合わせが効きそうだと考えて飲んでいただいたところ、10分で少し霧が晴れた感じがして、冷えていた体がポカポカしてきたとのことでした。 本当にありがたいです。さらに研鑽します。

Thank you to some amazing colleagues who took time and precious energy to craft this rapid response to the recent The BMJ piece. When people try to hijack #LongCOVID, #MECFS and other complex illness as psychosomatic it is important we strike back: bmj.com/content/389/bm… 1/

ICYMI: The Sick Times team live blogged the Spring 2025 PolyBio Symposium on #LongCOVID and related diseases. Read the full recap: bit.ly/43g8dWu

Grateful to Putrino Lab and the clinicians, researchers, & PLRC members who authored this response piece in the BMJ today. There are countless biological findings in severe ME, and people with severe ME need to be treated with effective therapies! #pwME bmj.com/content/389/bm…

Last week’s PolyBio Spring Symposium featured updates on innovative research that is driving forward discoveries in infection-associated chronic illnesses. If you weren’t able to attend live, or want to watch a replay, the recording is now available: polybio.org/spring-2025-sy…

"But researchers are pressing ahead with new clinical trials for more targeted treatments built on advances in our understanding of #LongCovid. There’s now a large body of research on the condition." 'It is absolutely not mysterious,'” — Hannah Davis washingtonpost.com/wellness/2025/…

Very grateful to be a recipient of the honorary degree from the Elmezzi Graduate School, Feinstein Institute for Medical Research Northwell Health Thank you, Prof. Kevin J. Tracey, MD - learning so much from you about #TheGreatNerve

I've been advocating as a #pwME for many years as my health has continued to deteriorate. At this point I'm deeply burnt out and I think actually legitimately traumatized by the experience of being left to suffer ad infinitum, loss upon loss, grief upon grief. (1/x)

Very cool event this Wednesday hosted by Theater of War reenacting Rebecca Nagle’s Atlantic piece on #LongCovid. This is a hybrid event happening in person in NYC (masks required) and virtually! towpwnyc5.eventbrite.com/@rebeccanagle Theater of War Productions WNYC 🎙

'Targeting the epipharynx to disrupt the residual triggers of COVID-19 in patients with long COVID' 'While the condition is still under study, researchers in Japan have made a significant discovery in the fight against long COVID.' medicalxpress.com/news/2025-05-e…

LIES. Examining more than 386,219 kids and teens, scientists have shown that #COVID vaccine reduces the chances of developing #LongCovid by at least 20%. Make America healthy Again.. by giving them a disease for the rest of their lives with no treatment available. #LongCovidKids

A significant discovery in the fight against #LongCovid! ➡️ Researchers have identified the epipharynx, a part of the pharynx, as a key site for chronic inflammation driven by residual SARS-CoV-2 RNA. 1/

Data from Dr. Akiko Iwasaki Prof. Akiko Iwasaki, Dr. Victoria C. Bastos, and Kerrie Greene found 2 distinct immunotypes of ME/CFS. This work suggests distinct drivers of disease, helping to differentiate the pathophysiology of #MECFS. Read it in AAI News: ow.ly/MWR950VXhzw

A new clinical trial for Long COVID at CoRE at Mount Sinai! If you are in the NYC area and interested in our Sirolimus clinical trial, please email [email protected] 🙏🏼

This one drug at 4mg every week has gave me back much of my life. Understanding exactly what it is and isn't doing will help millions.

“Dr. Kaufman, in particular, could not get over the fact that after trying seemingly everything and getting nowhere with some patients, that simply giving them ‘this little speck of dust injection’ once a week suddenly made them better.” #LongCovid healthrising.org/blog/2025/05/2…