Nina E. Steinkopf (@nina_steinkopf) 's Twitter Profile
Nina E. Steinkopf

@nina_steinkopf

Former HSEQ Chief Executive. Have survived Myalgic Encephalomyelitis (ME) since 2010. Patient advocate and writer. 🇳🇴🏳️‍🌈🇵🇸😷

ID: 2820198245

linkhttp://www.melivet.com calendar_today09-10-2014 18:35:04

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Nina E. Steinkopf (@nina_steinkopf) 's Twitter Profile Photo

Kanskje kan Helsedirektoratets guide bidra til at ME-pasienter tør gi tilbakemelding om behandling som gjorde dem sykere. Kanskje kan guiden også bidra til at slike tilbakemeldinger blir tatt imot som den verdifulle informasjonen det er. . melivet.com/2024/08/13/hel…

Nina E. Steinkopf (@nina_steinkopf) 's Twitter Profile Photo

Sylskarpt fra Richard A White, PhD som, i likhet med mange, lurer på hvorfor Preben Aavitsland jobber så hardt for å undergrave folkehelsestrategier som er vanlige utenfor Norge: fvn.no/mening/debatti…

Nina E. Steinkopf (@nina_steinkopf) 's Twitter Profile Photo

J.K. Rowling and Elon Musk Named in Cyberbullying Lawsuit Filed by Algerian Boxer Imane Khelif After Olympic Win. . variety.com/2024/tv/news/j…

Tom Kindlon (@tomkindlon) 's Twitter Profile Photo

Norway: Prof Silje Reme, a member of the Oslo Chronic Fatigue Consortium (who promote CBT, GET, etc), organised an ME seminar in 2022. She claimed in the newspaper Morgenbladet the police had to be on standby out of fear ME patients would try to get them. #MEcfs #PwME #CFS 1/

Chris Ponting (@cgatist) 's Twitter Profile Photo

📢#ME is clear to see in the blood of 1,455 #pwME <New Preprint, not peer reviewed> 116 blood molecules or cells are significantly different between #pwME and population controls & in both females & males & these differences are NOT due to inactivity medrxiv.org/content/10.110… 1/4

📢#ME is clear to see in the blood of 1,455 #pwME
&lt;New Preprint, not peer reviewed&gt;
116 blood molecules or cells are significantly different between #pwME and population controls
&amp; in both females &amp; males
&amp; these differences are NOT due to inactivity
medrxiv.org/content/10.110…
1/4
Nina E. Steinkopf (@nina_steinkopf) 's Twitter Profile Photo

Khrono svarer ikke på spørsmål om hvor mange innsynsbegjæringer de fant den gangen. Ei heller har de kommentert Universitetet i Oslo sin skandaløse behandling av innsynskrav. melivet.com/2024/08/29/khr…

Ziyad Al-Aly, MD (@zalaly) 's Twitter Profile Photo

400 million reasons to care about #LongCovid ICYMI: our review on #LongCovid in Nature Medicine Long Covid has affected at least 400 million people worldwide at a cost of $1 trillion per year. #LongCovid is a defining health crisis of our time! nature.com/articles/s4159…

400 million reasons to care about #LongCovid 

ICYMI: our review on #LongCovid in <a href="/NatureMedicine/">Nature Medicine</a> 

Long Covid has affected at least 400 million people worldwide at a cost of $1 trillion per year. 

#LongCovid is a defining health crisis of our time!

nature.com/articles/s4159…
Mohamad Safa (@mhdksafa) 's Twitter Profile Photo

This is not a detainment camp in World War II, nor a prison in the Holocaust, this is Gaza in 2024. A chilling reminder that history repeats. A holocaust is happening right before our eyes and the world is silent.

Putrino Lab (@putrinolab) 's Twitter Profile Photo

Dangerous garbage being presented “science writing”. Two *actual* facts surrounding #COVID infection: 1. Your risk of #LongCOVID, a currently incurable chronic illness, after surviving an acute COVID infection currently sits conservatively at ~6-7% 2. Your risk of LC increases 1/

Forsberg™ (@forsberg) 's Twitter Profile Photo

Helt absurd å se at vi har en stor nasjonal debatt om at for mange er syke, og absolutt ingen snakker om hvordan vi får flere til å bli friske.

sarah (@sahouraxo) 's Twitter Profile Photo

“I am starting to think with horror that if it’s not stopped, Israel’s assault could end up exterminating almost the entire population in Gaza over the next couple of years.” —UN Special Rapporteur, Francesca Albanese

“I am starting to think with horror that if it’s not stopped, Israel’s assault could end up exterminating almost the entire population in Gaza over the next couple of years.”

—UN Special Rapporteur, Francesca Albanese
Nina E. Steinkopf (@nina_steinkopf) 's Twitter Profile Photo

There is little access to truly specialist ME care or treatment within the NHS and paradoxically, the sicker a patient is, the less care they receive. thetimes.com/uk/healthcare/…

Nina E. Steinkopf (@nina_steinkopf) 's Twitter Profile Photo

Dr Williams said: “I feel we’ve all been left to rot - which I know sounds dramatic - neglected and not being listened to." bbc.com/news/articles/…