Our #DATAGovproject protocol is out! More on public #involvement in #datagovernance here: bmjopen.bmj.com/content/11/3/e… Claudia de Freitas @Amorim_Mariana Helena Machado Elisa Leão Teles Mª João Baptista @renedo_alicia Veerle Provoost @susilva_ispup Health&Society_ISPUP ISPUP

March 19 | 2 pm | #ISPUP Seminar: Community engagement in the #publichealth response to #HIV/AIDS: using community-based research for social change. The speaker is Daniela Rojas Castro, Coalition PLUS. Follow it on YouTube ➡️youtube.com/channel/UCubvn…

Today is #WorldHealthDay! The equity in access to health care and healthy food is essential to promote population health. Health is a right and not a privilege! Let's build a fairer and healthier world for everyone! #HealthForAll #WorldHealthDay2021

It's #WorldMalariaDay Over the last 2 decades 11 countries have been certified #Malaria free: 🇩🇿 Algeria 🇦🇷 Argentina 🇦🇲 Armenia 🇸🇻 El Salvador 🇰🇬 Kyrgyzstan 🇲🇦 Morocco 🇵🇾 Paraguay 🇱🇰 Sri Lanka 🇹🇲 Turkmenistan 🇦🇪 United Arab Emirates 🇺🇿 Uzbekistan Together we can #EndMalaria!

Great news and hope for malaria eradication!👏👏

Saying no is not letting others down. It’s standing up for yourself. Setting boundaries isn't a display of disrespect. It’s an expression of self-respect. Other people can't set your limits. They have the right to make requests, but self-preservation is your responsibility.

This Thursday, at 4pm, #ISPUP is organizing a new session of "CineISPUP" with the screening of the documentary "Coded Bias". It reveals the bias and flaws present in facial recognition technology algorithms, uncovered by M.I.T. researcher Joy Buolamwini. We're counting on you!

We are screening Coded Bias today ISPUP. It focuses on AI and will be followed by a commentary by Dr. Mavis Machirori Mavis Machirori from Ada Lovelace Institute Join us! #DATAGovproject Health&Society_ISPUP Claudia de Freitas Ngozi Paschaline

• If you're wrong, admit it. • If you're confused, ask questions. • If you're stuck, seek for help. • If you make mistake, learn from it. • If you learn something, teach others.

Spent the last year Ada Lovelace Institute thinking & talking about #inequalities, and here 👇🏽, I reflect on how some embedded practices widen inequalities. Let's open the discussion on how we can finally address these, starting with #people and #data categories. Thanks team!

📢What do the UK public think about data regulation? To find out, we reviewed nearly 40 studies, synthesised 5 key findings and identified some research gaps. Read the full review: adalovelaceinstitute.org/evidence-revie… To see the 5 key findings, see this thread🧵

Our latest paper: people who hold trust in science in high regard ascribe greater value to #PublicInvolvement in decisions about health data governance. #DATAGovproject #PPI #PPIE Ngozi Paschaline @susilva_ispup Claudia de Freitas ISPUP frontiersin.org/article/10.338…

So glad to share my first journal publication! There is growing support for #publicinvolvment but how does trust in science and other institutions influence public views? 👇#DATAGovproject #rarediseases #PPI #PPIE @susilva_ispup Claudia de Freitas ISPUP frontiersin.org/article/10.338…

So pleased to announce our #DATAGovproject conference on public involvement in health #datagovernance” ISPUP with wonderful Ngozi Paschaline A/Prof Danya Vears @KiraAllmann Begonya Nafría World CDG Organization RD-Portugal Hope to see you there! Claudia de Freitas

Our latest paper: Benefits and risks of genomic data sharing for research: the views of #RareDisease patients, carers and professionals @Amorim__Mariana @susilva_ispup Helena Machado Tiago Maia Ngozi Paschaline Claudia de Freitas #DATAGovproject ISPUP mdpi.com/1732804

🚨UKSBM 20th Annual Scientific Meeting 25-26 March, Bristol. Theme: Behavioural Medicine for an Equitable Future. Submissions now open for presentations & symposia - deadline 18 Nov⏰! Find out more at delegate-reg.co.uk/uksbm2025/ #uksbm2025

We have three exciting keynotes confirmed for the UKSBM Annual Scientific Meeting in March 2025 - Prof Francis Mair, Prof Miranda Pallan and Ade Williams MBE. Registration is now open!!! uksbm.org.uk/events/annual-…

Happy to share my new publication on Bias risks in AI and targeted medicine manufacturing Ethox Centre: rdcu.be/dYgRl #FTHMhub #AIethics #Bias #TargetedMedicineManufacturing

Happy to share my new publication on Bias risks in AI and targeted medicine manufacturing Ethox Centre bmcmedethics.biomedcentral.com/articles/10.11… #FTHMhub #AIethics #Bias #TargetedMedicineManufacturing

📅New event!📅How can we help meet the government's 2030 #HIV elimination goal? Jeremy Horwood, & more are hosting this free webinar to learn about novel interventions developed from #Bristol research. 4 Dec 24, via Zoom. Book➡️bit.ly/4e6Zbyn #SexualHealth