NF2 BioSolutions
@nf2biosolutions
NF2 patient led nonprofit dedicated to funding research, and supporting those affected by NF2-related schwannomatosis
ID: 1031940205492756480
https://nf2biosolutions.org 21-08-2018 16:24:52
575 Tweet
363 Followers
401 Following
Alexandra Sedor
@allie74
wife, mom, sports fanatic, librarian, NF disease fighter! GO CAPS!
Astellas Pharma US
@astellasus
A pharma company dedicated to changing tomorrow by improving the health of people around the world. Tweets for U.S. audience. Guidelines: bit.ly/3jcHtiE
Charlie
@charlie_all
Community Development Manager covering the East of England at @braintumourrsch Lover of all things visual. All views my own.
Children's Tumor Fdn
@childrenstumor
The Children's Tumor Foundation is the drug discovery engine pioneering more solutions, better options, faster for all NF patients.
Vanessa L. Merker, PhD
@vlmerker
Health services researcher at @MGHNeurology passionate about #PatientEngagement in research, #RareDisease and the working woman. Trained @BUSPH & @VA_CHOIR.
Global Genes
@globalgenes
Empowering the Next Generation Rare Disease Advocate. Merged with RARE-X Dec. 2022. #CareAboutRare
Anne R Trussell MD
@seibellalr
Dr. Trussell owns Sei Bella Med Spa & offers HTCA bioidentical hormone pellets, IPL, lasers, injectables, Emsella, EmSculpt, Ultherapy. A4M Diplomate & Fellow.
Neurofibromatosis Network
@nfnetwork
Neurofibromatosis (NF) Network is the national non-profit serving individuals affected by neurofibromatosis. Leading NF Advocacy, Building NF Community.
Sarita Edwards
@saritaedwards
Rare Mom (#Trisomy 18) | Doctoral candidate | MHA | CEO @everyoneiswe | Podcaster | Global Keynote | Award Winning Advocate | #RareDisease #Equity #MentalHealth
Dwight Fettig
@dwightfettig
Beacon for Rare Diseases
@rarebeacon
Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.
Stephanie Fischer
@rarepov
#Raredisease patient advocate & #stroke survivor.🦓 Member of @PARareDisease. Opinions are my own.
Facial Palsy UK
@facialpalsyuk
Charity dedicated to supporting people affected by facial paralysis. We also provide resources for health professionals. #UniqueSmiles #FaceMyDay
Yöly C 🇺🇸✝️
@yolsterc
Flo-Grown☀️305➡️407 . wife, mom of 3, teacher ❤️ Mötley ,beer, tacos, tattoos , Roman Reigns, horror. Sarcastic, easily amused . IFBAP and ignore DMs #HorrorFam
Nf2UK
@nf2uk
Dog-eared advocates still hoping for a cure ..... general NF2 info: nhs.uk/Conditions/neu…
NFIreland
@nfireland
At NF Ireland we aim to be a voice for NF patients, carers and their families. Reg Charity: CHY 6657
Jewell Lab
@jewell_lab
Cell Signaling • Cell Growth. Views are my own.
Andrea wadeson
@mamawadey
Clinical Nurse Specialist #CNS for skull base tumours and conditions @MCRskullbase @MCCN_UK. Mum to 3 boys.
CLOT
@clot2014
Ashish Bhandari
@ashbhandari11
Yuguang Chen
@cyguang
P S
@nextsummer246
SamebutDifferent
@sbdrareproject
Same but Different create thought-provoking exhibitions that stimulate conversation, change attitudes and empower individuals.
のりすけ
@nrsk__
B^D
michabird67
@michabird67
MAGA./MAHA, Trump/Vance/RFK JR Supporter. Mother, Wife, Fitness Enthusiast! UNITED WE STAND, DIVIDED WE FALL
Effie Parks
@onceuponagene
Rare Disease Advocate | Award Winning Podcaster | Speaker | Captain Connection | RareMama to my sweet, Ford, who lives with #CTNNB1 🦓
Rebecca Gibson, MD, PhD
@rgibson2164
(she/her) pediatrician & physician scientist @UNCpedsres 👶🧬 I MD/PhD @DukeMSTP 👩🏻⚕️ I Undergraduate @ColumbiaUniversity 🦁🎓
🏳️⚧️Mark/Marky💚
@hotheadedbab
(19) nf2 and epilepsy but i exist - IM PISSING ON THE MOON /ref
Brian Na, MD PhD
@bnamdphd
pediatric & adult neuro-oncologist at @ucsfhospitals @ucsfchildrens via @harvard @drexelmedicine @uh_rbcresidents @ucla | #NF #SWN #AYA | 🌈🇰🇷🇺🇸
andy
@andy85022174
cram🍮🕺💃
@crams_dumpster
“fear is the path to the dark side” #1 Luis Madrigal STAN
Omar Pathmanaban
@brain_op
Consultant Neurosurgeon | Professor | Skull Base | Pituitary | Brain @MCRSkullBase @GJBrainResearch @SNOMan_Lab
Amethyst UK Radiotherapy
@uk_amethyst
We are a specialised NHS England National Centre of Excellence for Radiosurgical Brain Tumour Treatment using Gamma Knife. Mon - Fri: 7:00 - 17:00
Grace Gregory
@gracegregory_
NF2 BioSolutions PhD student • Investigating the tumour microenvironment of vestibular schwannoma and meningioma.
AAA
@aaa05813373
好きな物：DIR LUNASEA
Jenna Koenig
@jennakkoenig
MD/PhD Student @IUMedSchool @iumstp @IUStark_Neuro 🩺🧬studying #Neurooncology #pediatricglioma 🧠 @notredame Alum 🍀 @WomenInNSGY MSC @CNS_Update MSC
GJBrainResearch
@gjbrainresearch
The Geoffrey Jefferson Brain Research Centre (GJBRC) combines discovery science and experimental medicine to rapidly translate research into healthcare benefit
NF2 BioSolutions UK & Europe
@nf2biosolution1
Volunteer, patient led charity. Dedicated to NF2 Research. Raising awareness through advocacy, support & hope. Fundraising for new treatments or a cure to NF2.
lisahsmithlhs
@lisahsmithlhs
Family Nature Hiking Skiing Cottage Life Fishing Boating Traveling Concerts My retweets are not endorsements ( ͡ᵔ ͜ʖ ͡ᵔ )
NF Bot
@nfbot2
Neurofibromatosis\Schwannomatosis Bot-Looking to spread new publications, news, & social media (reddit\twitter). Welcome comments\suggestions to @DrezBoston
منال
@manalzafer5
محلل بيانات 📊
Vibe Bio
@vibebio
Every cure for every community. Join us.
Tom Wright
@twright_genomex
🧬Clinical Genetics Resident (SpR-OOPR) | PhD Researcher @FBMH_UoM @mft_iMRare @ManchesterBRC #RareConditions #Genomics #MentalHealth |💗Husband/Dad/Son/Sib🎭🎨
Ronaldo Rios Ramos
@ram1rios
eduar narvaez monsalve
@eduarnarvaezmo1
Noah Burket
@noahbneuro
MD/MS Student @IUMedSchool. Interested in stem cell research, spinal cord tumors, and AI/tech in neurosurgery 🧠
Paula
@paula3265857670
Mary Margaret
@stmarycasserole
Medical Laboratory Genetics Hub
@labgenehub
🧬 Clinical vignettes to sharpen your medical genetic diagnostic skills - great for exam prep (such as ABMGG, ABGC) and continuing certification. 🩺
Eleanor
@needfor2ound
Audiology PhD student @ucl
Sidney Glasshoff
@sidneysnfstory
Ceymmes
@ceymmes9104
On__ion
@onion0175841088
ya_yuka
@0417yamayuka
都内勤務30代後半OL。 ＃神経線維腫症Ⅱ型 ＃指定難病 ＃腫瘍 ＃NF2 夫の治療の為情報収集用にアカウント作成しました😊根がネガティブ×バンギャなので、ここでは明るく楽しく向き合います!
john cui
@johncui31270
Decoding NF
@decodingnf
A podcast for those with NF-1, NF2-SWN, and Schwannomatosis--and the people who care for them.
Archive Road
@archiveroad
Sebastian Mogan
@sebastianm77237
keyboardist for Bad Island Easter. Singer for The Rhythm Bullies. Ambassador for NF2 Bio Solutions. Writer at Tales From the Anti-Culture.
ORmum
@o_rmum41533
Omar Ahmid
@omar_ahmid_
PhD student at @Welcome Trust Centre for Cell-Matrix Research. Badminton/Runner/Gym.
Mymysweetypie
@mymysweety91488
Pablo Stamm
@pablostamm17748
Kytair
@kytair170360
Sophia
@shuetairxx_u
Thank you for being able to meet among thousands of people and spend this journey together x.com
2ero
@2erocg
Lavinia
@lavinia1342551
When you can tell your Story and it doesn’t make you Cry, You know you have Healed. ~ I Am Kind To Everyone But Make No Mistake. I Give No Mercy To The Wicked.
Mustafa AlterK
@alterkmustafa
Santo Therapeutics
@santothera
Yang Hou
@yanghou3
Director @FSUDEaRLab, Assi Prof #FSUCOM , PhD #UTAustin. Postdoc #NIH developmental, clinical, quantitative psychology, mental health, rare disease
Sotiropoulou Lambrini
@sotiropouloula1