MyAmyloidosisTeam (@myamyloidosis) 's Twitter Profile
MyAmyloidosisTeam

@myamyloidosis

MyAmyloidosisTeam is the free & private social network for people living with amyloidosis.

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calendar_today06-01-2021 18:32:10

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Amyloidosis can affect your eyes, with symptoms like double vision, irritated eyes, lumps under the skin: myamyloidosisteam.com/resources/does…

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Learn 10 ways to reduce medical bills from Susan Null of Systemedic, a medical bill advocacy firm in New York: myamyloidosisteam.com/resources/10-t…

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While amyloidosis doesn’t specifically target the skin, people with the condition may experience skin-related symptoms. Learn more: myamyloidosisteam.com/resources/how-…

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While a diet can’t cause, prevent, or treat your amyloidosis, eating healthy may help you avoid certain serious complications. Read more: myamyloidosisteam.com/resources/eati…

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Because the physical impact of amyloidosis can be all-consuming, you may be dealing with psychological effects that you aren’t even aware of. Learn about the importance of caring for your mental health: myamyloidosisteam.com/resources/how-…

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Doctors use various blood tests as diagnostic tools to determine whether or not a person has amyloidosis. Learn more about how blood tests are used for diagnosis: myamyloidosisteam.com/resources/bloo…

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Cardiac amyloidosis is a rare disease characterized by the abnormal collection of a protein called amyloid in the heart. Learn more: myamyloidosisteam.com/resources/is-c…

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People with amyloidosis may be eligible for additional doses of the Pfizer and Moderna COVID-19 vaccines, depending on personal health factors. Learn more: myamyloidosisteam.com/resources/are-…

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Both amyloidosis and dementia involve deposits of amyloid protein, but the driving forces behind the buildup appear to be different between the conditions. Learn more: myamyloidosisteam.com/resources/does…

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Amyloidosis cannot be cured, but treatment can successfully slow disease progression and help control symptoms. Learn how this can affect your life expectancy: myamyloidosisteam.com/resources/life…

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Hereditary transthyretin amyloidosis (hATTR amyloidosis) symptoms may present in different ways at different times, or they may change or get worse as the disease progresses. Check out 7 symptoms that may be worth watching for:fal.cn/3zmrm

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Knowing the signs of AL amyloidosis progression may help you recognize how the condition is affecting your body. If new problems arise, your doctor may recommend you change your treatment plan. Learn more: myamyloidosisteam.com/resources/stag…

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Although amyloidosis is a rare disease, certain groups of people are more likely to be diagnosed with this condition. Each type of amyloidosis tends to affect different people and comes with its own set of risk factors. Learn more:brnw.ch/21wGmCY

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Amyloidosis and dementia share a trait in that they are both linked to abnormal amyloid protein deposits. However, not all scientists are confident there is a direct causal relationship between them. Learn more:myamyloidosisteam.com/resources/does…

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Eating a nutritious and balanced diet can help people with amyloidosis feel their best and avoid certain complications. Check out more on which foods may be worth avoiding in the effort to feel you best while living with amyloidosis:myamyloidosisteam.com/resources/food…

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Wild-type amyloidosis is a disease in which the body makes abnormal proteins that build up in the heart and other tissues. Dive deeper into wild-type amyloidosis including potential symptoms of the condition and treatment options for managing it:myamyloidosisteam.com/resources/wild…

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The short answer it "no". Amyloidosis is not an autoimmune disorder. However, it is related to several autoimmune conditions, and one type of amyloidosis can be caused by an underlying autoimmune condition. Learn more:myamyloidosisteam.com/resources/is-a…

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Doctors use several different systems to stage AL amyloidosis. Although stages are calculated in different ways, they all describe your outlook and help you understand how well your organs are working. Learn more about the stages of amyloidosis:myamyloidosisteam.com/resources/stag…

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There are several treatments that work in different ways to prevent or slow down amyloid buildup. The different treatment types also depend on the type of amyloidosis you have. Learn more:myamyloidosisteam.com/resources/can-…

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Life expectancy with hereditary transthyretin (hATTR) amyloidosis depends on the specific gene mutation you have and your age at diagnosis. Dive deeper into other factors that could impact a hATTR prognosis:brnw.ch/21wHQZa