social media ninja (@mrfredbriones) 's Twitter Profile
social media ninja

@mrfredbriones

Multidimensional creative,Marcom Ninja,healthy Filipino food advocate, teacher,filmmaker,Rare Disease Advocate...living with Kennedy's Disease. #kennedysdisease

ID: 110290990

linkhttp://www.facebook.com/kennedysdiseaseawareness calendar_today01-02-2010 01:41:32

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mySMAteam (@mysmateam) 's Twitter Profile Photo

Although Kennedy’s disease has no treatment or cure, research has produced important insights which are used in testing for new treatments. Learn more: mysmateam.com/resources/what…

Rugged Health (@rugged_health) 's Twitter Profile Photo

Introducing Robert, an extraordinary member at Evergreen Commons! Watch how he manages his Kennedy's Disease using CardioWall. He finds it a fun way to improve his muscle strength, range of motion, and gait disturbance.

Fortress Biotech (@fortressbio) 's Twitter Profile Photo

Avenue Therapeutics today announced that the first patient has been dosed in the Phase 1b/2a clinical trial of AJ201 for the treatment of spinal and bulbar muscular atrophy (SBMA), also known as Kennedy's Disease. Read more: bit.ly/3rO3yMv $ATXI $FBIO

Five Tool California (@fivetoolca) 's Twitter Profile Photo

Pilipinas Select NorCal 18U’s Talio Ubalde smashes this one deep to LCF for the RBI double. El Cerrito (CA) 2025 #uncommitted Profile: fivetool.org/players/2ca29d…

Joseph Dycus (@joseph_dycus) 's Twitter Profile Photo

NEW ARTICLE👇 Archbishop Riordan defense eclipses Mitty in crunch-time as Crusaders survive thriller in San Francisco STORY+PHOTOS+QUOTES: mercurynews.com/2023/10/14/arc… Karl Mondon Michael Mitchell Jr. Tommy Tofi Cal-Hi Sports

NEW ARTICLE👇

Archbishop Riordan defense eclipses Mitty in crunch-time as Crusaders survive thriller in San Francisco

STORY+PHOTOS+QUOTES: mercurynews.com/2023/10/14/arc… <a href="/karlmondon/">Karl Mondon</a> <a href="/MikeMitche11Jr/">Michael Mitchell Jr.</a> <a href="/TommyTofi/">Tommy Tofi</a> <a href="/CalHiSports/">Cal-Hi Sports</a>
social media ninja (@mrfredbriones) 's Twitter Profile Photo

Happy Rare Disease Day! The last day of February each year is Rare Disease Day. I am raising awareness for Kennedy’s Disease. If you can, please make a donation using our Tiltify link tiltify.com/@original_vide…. Thank you for your support. #RareDiseaseDay #kennedysdisease

TMJ4 News (@tmj4) 's Twitter Profile Photo

Top Chef' contestant Dan Jacobs joined TMJ4 in the studio to talk about living with Kennedy's Disease and moving on to the next round of the show. tmj4.com/news/local-new…

social media ninja (@mrfredbriones) 's Twitter Profile Photo

Sending our brother Dan Jacobs strength as he competes on Top Chef. #kennedysdisease #rarediseaseawareness jsonline.com/story/entertai…

nbadraftpoint (@nbadraftpoint) 's Twitter Profile Photo

Fun move here with Zion Sensley flipping his commitment from St Mary’s to UCSB Will aim to replace Ajay Mitchell’s productivity, but in a different role, as a jumbo guard/wing with athleticism and some good passing and shooting On my list of mid major frosh to watch next year

Fun move here with Zion Sensley flipping his commitment from St Mary’s to UCSB

Will aim to replace Ajay Mitchell’s productivity, but in a different role, as a jumbo guard/wing with athleticism and some good passing and shooting 

On my list of mid major frosh to watch next year
social media ninja (@mrfredbriones) 's Twitter Profile Photo

DJ Shortkut needs our help after suffering a life-altering stroke. Your support can make a huge difference in his recovery. Please donate and share to support his journey. 🙏 #shortkut #fundraiser #SupportDJShortkut gofund.me/4334cdc6

National Organization for Rare Disorders (NORD) (@rarediseases) 's Twitter Profile Photo

🎉 It’s official! 🎉 Governor Gavin Newsom has signed AB2613 into law, making #California the 29th state to create a Rare Disease Advisory Council! This is a monumental victory for our #CA #RareDisease community. Thank you Rick Chavez Zbur & the advocates who made this happen! 🌟

social media ninja (@mrfredbriones) 's Twitter Profile Photo

Proud to be a part of Barrio Fiesta Global: Volume 1. This virtual festival was curated in honor of Filipino American History Month. Catch the replay on Twitch. twitch.tv/videos/2286906… #virtualfestival #filipinoamericanhistorymonth #accessibility

Ethan Kassel (@kasselmedia) 's Twitter Profile Photo

Final: No. 2 Riordan 53, No. 3 St. Ignatius 51 Playing on his future home court, Andrew Young Hilman wins it at the buzzer. What night for San Francisco basketball. We’ll see you for the rematch at the Crusader Forum on February 17.

social media ninja (@mrfredbriones) 's Twitter Profile Photo

We are raising awareness for Kennedy’s Disease and fundraising for Kennedy's Disease Association on Tiltify | tiltify.com/@original_vide… #kennedysdisease #rarediseaseday #fundraiser Kennedy's Disease

social media ninja (@mrfredbriones) 's Twitter Profile Photo

Join us for a special virtual dj music fest to celebrate Rare Disease Day Bay Area’s 8th Anniversary today live on Twitch.tv #rarediseaseawareness #rarediseaseday #kennedysdisease

Join us for a special virtual dj music fest to celebrate Rare Disease Day Bay Area’s 8th Anniversary today live on Twitch.tv #rarediseaseawareness #rarediseaseday #kennedysdisease