Moyamoya Foundation
@moyamoyafdn
A 501(c)(3) organization for people with moyamoya, a rare, progressive cerebrovascular disease. We support research & assist patients with uninsured costs.
ID: 1069724209264410624
https://moyamoya-foundation.org 03-12-2018 22:45:00
205 Tweet
336 Followers
328 Following
Mayo Clinic
@mayoclinic
An integrated clinical practice, education and research institution specializing in treating patients. Account maintained by @MayoClinic.
Katie O'Meara Orrico
@katieorrico
CEO (former SVP, Health Policy & Advocacy) American Association of Neurological Surgeons My tweets. My opinion. #HealthPolicy #Advocacy #Neurosurgery
Rare Diseases
@checkorphan
CheckOrphan is the leading #news and information platform dedicated to #rarediseases and #orphandrugs
Randaline Barnett, MD 🧠🧸🦄
@rbarnettmd
Pediatric Neurosurgeon | Mom | Wife | Kentucky Colonel | Director of Pediatric Neurosurgery and Assistant Professor of Neurosurgery @uk_neurosurgery @KCHKids
Stacy Hurt (she/her)🌻
@stacy_hurt
Chief Patient Officer @Parexel 🫶 Cancer survivor, Rare disease mom/caregiver, Advocate for the unseen/unheard in healthcare 📣 Opinions are my own
Eytan Raz
@eytanraz
Neurointerventionalist and Neuroradiologist @NYULangone @BellevueHosp. Tweets are my own.
Dr. Gwynedd Pickett @gpsforthebrain.bsky.social
@gpsforthebrain
cerebrovascular neurosurgeon. mom. prof. VP @SocCdnNsx. survival skills: archery, knitting, backwoods camping. @andrewctenor gets all my jokes. she/her 🇨🇦🇬🇧
Journal of Neurosurgery
@thejns
Journal of Neurosurgery (JNS), the world's leading journal in #neurosurgery & the official journal of the @AANSNeuro
Liz Kennerley #LongCOVID #RareDisease
@lifeaccrdingliz
#chronicillness #patient & Federal Health Policy #Advocate @SimmonsAlumni, @remember_girls Board member @RareDiseaseDiv1 Patient RISE award recipient. My views.
Fiza Laheji MD
@fizalaheji
Pediatric Vascular Neurology .
•angie wilka•
@thechaosmethod
• collector of knowledge, texts, & maps • chahta • free thinker • explorer of the below •
CV Section
@cvsection
Official account of the Joint Cerebrovascular Section of the AANS/CNS
Michael T. Lawton, MD
@mtlawton
Neurosurgeon. Innovator. Author. Teacher. President & CEO @BarrowNeuro. Spetzler Chair of Neurosurgery. Co-Founder @MissionBrainOrg.
Stroke AHA/ASA
@strokeaha_asa
Stroke publishes peer-reviewed research on cerebral circulation and its diseases. Tweets/RT are not medical advice. RT/follows do not imply endorsement.
BarrowNeurological
@barrowneuro
Minding What Matters Most™ | Preserving thoughts, memories, dreams, personalities, and movement. Contact us: [email protected]
Beacon for Rare Diseases
@rarebeacon
Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.
Ped Neurology Briefs
@pedneurbriefs
Pediatric Neurology Briefs (PNB) is the leading journal review focusing on child neurology since 1987. #OpenAccess on #PubMed & #PubMedCentral.
Lindsey Vogt
@lindseymvogt
PGY5 paediatric neurology 🧠 resident @SickKidsNews | MD+MSc @UCalgary | BScH @Queensu | Ice cream🍦 & outdoor🏞️ lover, runner🏃🏻♀️
gelareh-zadeh
@gelarehzadeh
Chair & Prof, Dept of Neurological Surgery, Mayo Clinic Rochester William J and Charles H Mayo Professor @MayoClinic Editor-in-Chief @EditorNeuro zadehlab.com
Emily McIntosh
@mcintose
PhD in Biomechanics. Patient advocate. Diehard Leafs fan. Brain cancer survivor. Trying to help improve social inequities in health care.
George M Ibrahim
@gmi_canada
Pediatric Neurosurgeon @SickKids | Abe Bresver Chair in Functional Neurosurgery | Senior Scientist
Dr Amir R. Dehdashti
@amirdehdashti
Professor of Neurosurgery and Otolaryngology, Director of Cerebrovascular Res, Program Director Cerebrovascular Skull Base Fellowship at Northwell Neurosurgery
Dr. Samyami S Chowdhury
@drneuronaut
🇬🇧Paediatric Neurologist|AHA-Bugher Chief Hemorrhagic Stroke Fellow@SickKids🇨🇦+UCSF🇺🇸 |Arts&Culture Cognitive|Earl Grey 🫖|Napologist😴BritIndian|OwnViews
Michael B. Keough MD PhD FRCSC
@mbkeough
Neurosurgical oncology fellow @MayoClinicNeuro | NeuroSx @UAlberta_FoMD | @NREFORG fellow @michelle_monje lab | #cancerneuroscience
Brittany C. Parker Kerrigan, Ph.D.
@bparkerkerrigan
Chief Operating Officer, @Lindonlight Collective | Houston, TX
Jhair Alejandro Colán
@firstgenmedico
MS2 @PittTweet | Aspiring Neurosurgeon | 🇵🇪 | 1st gen | Interested in global neurosurgery and oncology
dazzle4rare
@dazzle4rare
Est. 2016 | Signal boost RARE with #dazzle4rare every Aug | #Signalise is our #podcast | Our 🔗 linktr.ee/dazzle4rare
Starke_neurosurgery
@starkeneurosurg
Neurosurgeon & Neurointerventionalist. My lab focuses on cerebral aneurysms & is funded by the NIH & foundation grants. Views my own.
Effie Parks
@onceuponagene
Rare Disease Advocate | Award Winning Podcaster | Speaker | Captain Connection | RareMama to my sweet, Ford, who lives with #CTNNB1 🦓
Dylan Griswold
@dylangriswold_
MD student @stanfordmed | PhD @cambridge_uni | @gates_cambridge scholar | Global neurosurgery, mental health, and investment strategies in blockchain
Neurosurgery at Memorial Sloan Kettering
@mskneurosurgery
Brain, Skull Base and Spine expertise with a focus on superb patient care, research and education . 212-639-8557 @MSKNeurosurgery
Women In Neurosurgery (WINS)
@womeninnsgy
Section of @AANSneuro and @CNS_update. On a mission to educate, inspire, and encourage women in neurosurgery. Content review: @drsheridewan Outreach Chair
DISORDER: The Rare Disease Film Festival
@disorderrare
Two rare disease dads took their films for Menkes Disease and USP7 & built them into a festival for all films on rare disease. rarediseasefilmfestival.com
TNia
@dr_tnia
Anatomist | Neuroscientist | Embryologist / IVF | Biologist | Anthropology | Evolution | Nature
Jacques Morcos MD FRCS FAANS
@jacquesmorcosmd
Professor & Chairman of #Neurosurgery, Director #Cerebrovascular #SkullBaseSurgery, UTHealth Sciences Houston @UTHealthHouston @UTHNeuro & President AANS
John
@johnpandrews_md
Resident Doc UCSF Neurosurgery. Also active on TikTok @Johnpandrews_MD
Ahmad Ozair, MD, MPH
@neuroahmad
Incoming resident @McGillNeurosurg Postdoc @umdnsgychair MSc ‘25 @OxEBHC @Clarendon_OU | MPH '24 @JohnsHopkinsSPH | MD '22 linkedin.com/in/ahmadozair
UCLA Neurosurgery 🧠
@uclansgy
UCLA Neurosurgery is driven to seek answers to the most challenging neurological disorders that patients face.
Can SARICA
@cansarica2
🇹🇷 🇨🇦 Neurosurgeon, current PhD(c) @KBI_UHN @UofT w A Lozano & R Chen. Researching and sharing insights on focused ultrasound! #NomadMania East Canada Envoy
David Hersh, MD
@davidhershmd
Pediatric Neurosurgeon at Connecticut Children’s (@ctchildrens); Associate Professor of Surgery & Pediatrics at UConn Health (@uconnhealth) *Opinions are my own
Dulanka Silva
@dulankasilva
Consultant Pediatric Neurosurgeon @GreatOrmondSt |#AVM #Moyamoya |#Craniosynostosis |#NeuroEndoscopy | #SDR |#Craniofacial | #Skullbase | #PediatricNeurosurgery
The Canadian Society of Neuroradiology
@thecsnr
We aim to enhance the care of patients with diseases of the nervous system through education, advocacy and improved methods of diagnosis and treatment
Jennifer Gettings
@drjennygettings
Neurologist @HarvardMed @BostonChildrens (prev @SickKids & @UofT) #Epilepsy 🧠 #CriticalCare 🩺 #MedEd🥼 and all things health and fitness 🏋🏼♀️🏄🏼♀️🤸🏼♂️
Oxford-Harrington Rare Disease Centre
@ohraredisease
Rare Disease Centre @UniofOxford in partnership with @HarringtonDI_UH @UHhospitals, accelerating cures for rare diseases
Rare Disease Advisor
@raredisease_adv
Trusted knowledge base of practical information and resources focused on treating and diagnosing #RareDisease.
Redi Rahmani
@rahmaniredi
CV fellow @pennnsg s/p @barrowneuro s/p @urneurosurgery s/p @cornell @dartmouth #cerebrovascular #endovascular #skullbase @cvsection
suganth suppiah
@suganthsuppiah
Neurosurgeon and Neurofibromatosis Researcher, Francis Collins Scholar
Abby Turnwald (she/her)
@pedsgcabby
Pediatric genetic counselor, neurogenetics, advocate for the rare disease community, let’s talk about sibling health
Timothy Woodiwiss
@timwoodiwissmd
PGY-6 Iowa NSG, Kim Lab post-doc, Army Vet
Betsy Grunch, MD | Ladyspinedoc⚡️
@ladyspinedoc
Neurosurgeon 🩺🧠 | Spine specialist | Georgia Trend & Atlanta Magazine Top Doctor | Surgeon Mom 👨👩👧👦 | Content creator | Opinions are my own ✌🏼
Matt Bender
@mtbendermd
Cerebrovascular neurosurgeon @UofR / alumnus @hopkinsnsurg @mckinsey @yale / @ironmantri triathlete, marathoner, run commuter
Tabark Altai
@tabarkaltai
MD I PGY2 @UCSFFresno I Swimming, cooking, meditating, watching movies Future Cardiologist 🫀
Brown Neurosurgery
@brownnsgy
The official twitter account of the Department of Neurosurgery at Brown University/Rhode Island Hospital
Danielle Golub, MD, MSCI
@dgolubmd
New Yorker & PGY-5 Neurosurgery Resident @NorthwellNsurg, @nyugrossman ‘20, @Penn ‘15. Passionate about coffee, decadron, #neuroonc & #skullbase #neurosurgery.
Tom Batan
@tombatan
MS4 at Western University of Health Sciences c/o 2025 / University of Wisconsin-Madison 2020 / Aspiring Diagnostic Radiologist
UCLA Cerebrovascular & Endovascular Neurosurgery
@uclacerebrovasc
UCLA Cerebrovascular and Endovascular neurosurgeons are nationally recognized in their field and provide quality focused care at a leading medical center.
PLOT-ICH Study
@plotichstudy
Launching soon in 2024. An international, prospective, observational study on spontaneous intracranial haemorrhage.
Ben Forred
@zebrasites
I make and manage awesome websites for #raredisease advocacy organizations. Husband, father, rare disease patient/researcher, web designer 🤓
Moss Zhao, DPhil
@mosszhaodphil
Instructor at Stanford Neurosurgery | AHA 2nd Century Early Faculty Awardee | DPhil at St Cross College, University of Oxford | English Literature Hobbiest
Mount Sinai Neurosurgery
@mountsinaineuro
Official Twitter account for the Department of Neurosurgery at @MountSinaiNYC. Leaders in neurosurgical treatment, care, education, and research. #brain #spine
Great Ormond Street Hospital for Children
@greatormondst
Official account of Great Ormond Street Hospital for Children, sharing stories from our patients, families & staff. Monitored Mon-Fri Charity: @GOSHCharity
VASCERN
@vascern
Gathering the best expertise in Europe to provide accessible cross-border healthcare to patients with rare vascular diseases #ERNeu #RareDiseases
Marni Cartelli
@purrfectly_rare
Rare Disease Patient, mom, & advocate. Danny's Dose Alliance Board Member. Know who you are & live a way you can be proud of.
Pascal Jabbour MD, FAANS, FACS, FAHA
@pascaljabbourmd
The Angela and Richard T. Clark Distinguished Professor of Neurosurgery Division Chief #Cerebrovascular at @TJUHospital Philadelphia USA. Level IV Sommelier
Nicholas Sader, MD MSc FRCSC FAANS
@nicholassader
Pediatric Neurosurgeon @OU_Neurosurgery @Okla_Childrens | Fellowship @ChildrensLA @NeurosurgeryUSC | MSc Clinical Epidemiology | Proud Father and Husband
Penn Neurosurgery
@pennnsg
Penn Neurosurgery is a pioneer in high-quality patient care, cutting-edge research, and educating physicians and scientists of the future.
David Altschul
@davidaltschulmd
Dual Trained Open and Endovascular Neurosurgeon. Professor of Neurosurgery and Radiology. Husband, father, guitarist, singer, songwriter. Skeptic.