Rakesh K Mishra gave his remarks on the need to develop non invasive diagnostic methods for early detection of SMA. He also emphasised the need to conduct research in developing indigenous therapeutics for SMA.

A momentous occasion today in India’s R&D ecosystem !! The First meeting of the Governing Board of Anusandhan National Research Foundation (ANRF) was Chaired by the Hon’ble Prime Minister today creating a milestone in the country’s science, technology and innovation journey. It

Jagat Prakash Nadda Dr L Swasticharan Ministry of Health DSTIndia Abhay Karandikar Narendra Modi There's urgent need 2 save all d existing patients n prevention of disease as #spinalmuscularatrophy. The medicines mfd abroad r expensive n so there's urgent need 2 invest in indigenous research ICMR

These two SMA warriors are deteriorating everyday waiting for treatment availability Sourav Ganguly Vijay Narendra Modi @tvkvijayhq CJI DY Chandrachud Followers Roche Novartis India President of India Mahendra Singh Dhoni Manisha Koirala Bipasha Basu

Today, Scholar Rock announced that its SAPPHIRE Phase 3 Study achieved its primary endpoint demonstrating a statistically significant and clinically meaningful improvement for apitegromab. The company plans to submit a U.S. Biologics License Application (BLA) and a European Union

I strongly condemn the celebration of Hindi Month valedictory function along with the Golden Jubilee celebrations of Chennai Doordarshan. Hon’ble PMO India, The Constitution of India does not grant national language status to any language. In a multilingual nation, celebrating

People with #SpinalMuscularAtrophy (SMA) in Tamil Nadu deserve equal access to life-saving treatments like #Risdiplam.We humbly request the M.K.Stalin Udhay to uphold Tamil legacy of inclusivity by ensuring justice for SMA இடைமறியாத நீதி, தமிழ்நாட்டின் அடையாளம்!

HEALTHCARE FOR ALL! Let's celebrate our right to healthcare and request #UrgentTreatmentAccess4SMA in India! With collective action, we can create a brighter future Ministry of Health President of India #right2life #right2health #curesmaindia #battleagainstSMA #acchedinkabayenge

Samay Raina The Indian SMA (Spinal Muscular Atrophy) community demands a public apology from u 4 hurting d sentiments of a parent n child battling this life threatening neuromuscular rare disease Ministry of Health Ministry of Social Justice & Empowerment, GOI Supreme Court of India Teena Thacker Vikas Dandekar Abhijit Majumder

It is absolutely insensitive and unacceptable. He should apologize for this.

On this Rare Disease Day, we honor the strength, resilience, and courage of all those living with Spinal Muscular Atrophy (SMA). Your journey is one of extraordinary determination, and your perseverance inspires hope and progress in the fight against rare diseases.

You are not alone—there is a community standing with you, advocating for better treatments, greater awareness, and a future where SMA no longer limits dreams. Together, we believe in breakthroughs, in support, and in the power of never giving up.

🎉 Mark your calendars for March 21, 2025 ! We are thrilled to announce the SMA Research & Technology Summit (SMArT)! 💡 Join experts, patient orgs & researchers for a day of knowledge sharing to advance SMA diagnostics, treatment & care! 🌟 Register now: bit.ly/3EQKYd3

Join us tomorrow for a day of talks and panel discussions around advances in #SMA treatment and care in #India Use the below link to participate virtually! 🔗zoom.us/j/92936661055?… Streaming from 9 AM, tomorrow!

The SMART Summit 2025, a one-day event brought together clinicians, researchers, policymakers, industry leaders, and patient advocacy groups (PAGs) to advance Spinal Muscular Atrophy (#SMA) research and care in India. 1/2

Discussions covered research and clinical gaps, innovations in diagnostics and therapeutics, regulatory pathways, and the role of PAGs in advocacy. Read more here: tigs.res.in/smart-summit-2… with IIT Kanpur National Centre for Biological Sciences Cure SMA Foundation of India 🇮🇳 2/2

🚨 Commencing today! The 1st cohort training of IMPACT 2025 is underway at Bangalore Life Science Cluster (BLiSC) campus🧪 Focused on #AMR monitoring via hospital #wastewater, IMPACT 2025 is a 3-day advanced hands-on workshop for ICMR VRDL staff. With National Centre for Biological Sciences APSI-India BWSSB

We are honoured to welcome Manasa Varanasi,Femina Miss India 2020,as the Brand Ambassador of #CureSMAIndia! She joins us in raising awareness for #SpinalMuscularAtrophy (SMA) and supporting thousands of families across India in our #BattleAgainstSMA Welcome to the family, Manasa!

Cure SMA Foundation of India 🇮🇳 Ministry of Health PMO India गृहमंत्री कार्यालय, HMO India BJP MyGovIndia FICCI Ministry of Education Public Health Foundation of India (PHFI) National Health Authority (NHA) National Health Portal Great initiative. SMA kids need a lot of support. Families need financial support and medication for children which is very expensive. Over 5000 cases in the country. In Goa about 10 identified cases. Lack of awareness means there must be undetected cases. SMA needs to be

Cure SMA Foundation of India 🇮🇳 Ministry of Health PMO India गृहमंत्री कार्यालय, HMO India BJP MyGovIndia FICCI Ministry of Education Public Health Foundation of India (PHFI) National Health Authority (NHA) National Health Portal SMA is a rare genetic disorder that affects the motor neurons in the spinal cord, leading to progressive muscle weakness and atrophy.RNA-based therapies,such as Spinraza and Zolgensma, have significantly improved outcomes for many patients. Help patients Ionis Novartis