Better Outcomes in MND
@mndoutcomes
NIHR funded research led by @profcjmcdermott.
Contact us at: [email protected]
Tweets from the research team. #MND #ALS
ID: 1670783197393633280
19-06-2023 13:19:47
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The University of Sheffield
@sheffielduni
Where world-changing research meets life-enhancing education. University of the Year 2024 - Whatuni Student Choice Awards linktr.ee/sheffield
SCHARR
@scharrsheffield
We tackle some of the world's biggest health challenges. Sheffield Centre for Health and Related Research @sheffielduni
BBC Yorkshire
@bbclooknorth
Celebrating people, places and stories from the amazing place we call home. Tap the link for more stories 👇
Nicola Waters
@aberdarenic
Valleys girl living in North Essex. Mother of two boys, age 13 and 10. Fighting MND one day at a time.
MND Scotland
@mndscotland
Making time count for people with motor neuron disease (MND).
Sandra SmithMND
@sandrasmithmnd
Husband died MND/FTD. Public Adviser MND Dementia Palliative End of Life careHealth Equity ARCNWC was Sandra True Spontaneous coronary heart dissection survivor
MND Association
@mndassoc
Our vision is a 🌎 free from 𝐦𝐨𝐭𝐨𝐫 𝐧𝐞𝐮𝐫𝐨𝐧𝐞 𝐝𝐢𝐬𝐞𝐚𝐬𝐞 #MND
Alys Griffiths
@alysgriffiths_
Cymraes 🏴 • psychologist • dementia, MND & care home researcher • chronic hiraeth • based at @neuroshef
Esther Hobson
@drestherhobson
Consultant Neurologist/senior lecturer working at SITraN on ways to improve care for Motor Neurone Disease using telehealth and NIV (bikes and views are my own)
Jennie Starkey
@starkeyjennie
Mum of 4, educator, diagnosed with MND Sept 2021. retired through ill health, Raising MND awareness through humour (sometimes dark) with my blog.
Brian Dickie
@drbriandickie
Chief Scientist @ MND Association
Dr Liam Knox
@liamknox92
SITraN Research Fellow * Health Psychology PhD. * telehealth * self-management * long-term conditions * motivation
Tim Pickles
@picklestim
Research Fellow in Statistics @CTRCardiffUni; @researchwales Next Steps Awardee; Rasch measurement theory, psychometrics, PROMs and Rheumatoid Arthritis
MND Nottinghamshire
@mndnotts
The Nottinghamshire Branch of the Motor Neurone Disease Association has the sole aim of serving all those people in the area affected by Motor Neurone Disease
Euan MacDonald Centre
@euanscentre
We conduct vital research into motor neuron disease. Based at the University of Edinburgh, we unite over 250 scientists and doctors across Scotland.
Sarah 💚
@s4r4h999
Wife and Mum to an amazing LD/Autisic Son. Support #mnd and #heartdisease research in memory of my Parents. 💚 I work in #socialcare
Charlotte Massey
@char_massey
Specialist Neuromuscular Respiratory Physiotherapist @NHNN_therapies @UCL_QS_CNMD @UCLH @SheffieldHosp and NIHR clinical doctoral fellow @neuroshef
Prof Jill Carlton
@jillcarlton1
Professor of Health Outcomes Research, SCHARR Outcomes, University of Sheffield
Lizzy_Flavell
@otneur
Clinical Lead Occupational Therapist-Neurosciences @RoyalFreeNHS. Committee member Long Term Neurological Conditions- Research & Development @RCOT_NP
Jade Howard
@jadehoward0
Emily Mayberry (she/her)
@ejmayberry
Clinical Psychologist & Researcher | PhD, DClinPsy | 🇺🇸🇬🇧🌏 | focus: MND/ALS; improving psychological care and quality of life for all affected | views mine
Sarah Roscoe
@sarah_roscoe_
Post-doctoral research associate investigating nutritional assessment and metabolism at SITraN, The University of Sheffield.
Rachel
@rachel_mnd
East Midlands Community Support Coordinator for @mndassoc interested in Health Psychology, Forest Bathing, carers support & volunteering
Emma Davies
@emmacdavies97
NIHR Sheffield BRC Research Project Manager & UK Parkinson’s Clinical Studies Group Coordinator 🧠 BSc in Psychology, MSc in Clinical Neurology.
Phil Powell 🦋 @philapowell.bsky.social
@philapowell
"Dream weaver", "Visionary", "Maverick", plus #health + #QoL researcher // @ScHARRSheffield University of Sheffield, UK
MND-SMART
@mndsmart
Innovative UK MND clinical trial from Euan MacDonald Centre for MND research at @EdinburghUni. Designed alongside people with MND. Searching for new treatments.
Anth Hanratty 🏳️🌈
@anthhanratty
Im just a boy standing on the fringes of social media watching the drama 🏳️🌈🤣
David Taylor
@vpresearch_als
ALS Canada VP, Research. Passionate ALS research nerd since 2001. Science brain, advocate heart. Opinions are my own. he/him
Geoff
@gebinh1
MND WARRIOR. diagnosed with motor Neurone Disease Did love street food.😢 But loves to travel. Takeing one day with my amazing wife at time . SURPORTS NHS.
Tara Bradford
@tara_b29
MND CNS
Lucy Musson
@lucysmusson
PhD student exploring the use of technology to improve outcomes for people living with motor neuron disease. Public Involvement Lead on the CONTACT-GAD trial.
Charis Wong (chariswong.bsky.social)
@drchariswong
Clinical fellow in data-driven drug selection and neurology registrar. Interested in clinical trials, evidence synthesis and neurodegenerative diseases.
*#ScottAllen
@scottallen38
Lecturer at the Sheffield Institute for Translational Neuroscience. Director of the neuroscience lay summary initiative - readableresearch.com
Dr Ellen Buckley
@ee_buckley
PostDoctoral Research Associate at @insigneo & @sheffielduni
Judith Newton
@jnewton_mnd
MND Nurse Consultant for Scotland, working closely with @MNDScotland & @EuansCentre. Views 100% my own.
MND West Dorset
@mndwestdorset
The West Dorset Branch of the Motor Neurone Disease Association supporting local people living with MND, their carers & families. #WestDorset #MND @MNDassoc
Chris McDermott
@profcjmcdermott
Professor of Translational Neurology, SITraN, University of Sheffield. Co-Director, Sheffield MND Care and Research Centre. #MND #ALS Specialist
OutcomesFacilitator (PROMs)
@outcomes_proms
PROMs Manager @NorthumbriaOrth Foot & Ankle, Shoulder/Elbow, Hand/Wrist, Hip & Knee preservation, Spine, Bone & Joint Infection. Views my own.
NIHR Sheffield Biomedical Research Centre
@sheffieldbrc
An @NIHRresearch infrastructure aiming to reduce the translational gap between research ideas and the development of treatments diagnostics & medical technology
My Name'5 Doddie Foundation
@mndoddie5
Registered charity, established by Doddie Weir & friends to fund vital research into motor neuron disease (MND) & support those living with MND.
Ruben van Eijk
@rpavaneijk
MND researcher interested in clinical trial methodology | MD | PhD | MSc | Parttime cyclist