united2endmnd.org/2025/05/10/uni… Our initial take on Mirocals results, including our asks of neurologists, charities, NHS authorities & Department of Health and Social Care DHSC Media Centre Hoping for more news next week from UK MND Clinical Studies Group - Geoff Burrow Ed Slater Darby Rimmer MND Foundation Jon Coates Charlotte Hawkins

Please watch and then sign our petition calling for access to tofersen for the small number who could benefit, but are not currently able to receive the treatment. ~SH

The #MNDAssociation has launched a new project to help support people living with MND access specialist advice about available funding. The pilot project aims to help individuals navigate the process of applying for continuing health care (CHC) funding. Read more 👇 #MND

Tea, coffee & catch up ⭐ Join us for an online meetup to meet others living with MND in the SE region. 📅20th May ⏰11-12:30pm Please contact Liz for the meeting link!

Make a difference in MND Care 😊 Are you Living with MND or an informal carer for someone who is? The University of Sheffield are conducting research to improve support for those living with MND and their informal carers. To participate, please scan the QR code below 👇

Accessible Sailing Opportunity at Snettisham Beach Sailing Club ⛵ Sessions available on Friday from April onward 1- 5 pm for £12 per hour or £90 for a 6- 10 people group session MNDA's grants can help cover costs of hobbies/activities including sailing snetbeach.co.uk/discover/about…

Virtual cuppa for carers ☕ Join us for our monthly group session to meet and chat with other MND carers in the SE region! 📅Tuesday 3rd June 11 am in morning Please email Lisa or Kathryn for joining info 😊

Let's talk about...The MND Register ✍️ Here, Dr Sophie Nyberg talks you through the importance of the MND Register and how those living with MND can help 🧡 To find out more, head to mndregister.ac.uk 👏 #MND

Good luck to everyone taking part in our Run 100km in June challenge! 🏃 It's not too late to sign up - walk, run or jog your way through June for MND. Sign up now 👉 fundraising.mndassociation.org/event/run-100k…

The AGM of the branch was held at St. Andrew’s Church Hall on Sunday 27th April! The day was filled with presentations and talks by various members. 😊 Thank you to everyone who attended and all the valuable work being done by our valuable members and volunteers 💙

#CarersWeek 2025! 9-15th June 🙌 The theme for this year is Caring About Equality and we are proud to be supporting the call for greater equality for unpaid carers. Visit carersweek.org/ways-to-get-in… to find out more about how you can take part ⭐

⭐ Big News for the MND Community We’re thrilled to see £1 million in new funding for the Norfolk MND Care and Research Network being announced to support people affected by MND! Read more 👇 healthwatchnorfolk.co.uk/news/1-million…

Reminder for the upcoming Coffee & Walk ☕🌲 Do join us for the informal meetup to support bereaved families and friends. 📅14th June@10:30am See you there!

Fundraising Spotlight 💙 Cerys Maryan is running in this years Great North Run to raise money for MNDA after losing her dad to MND in 2022. If you'd like to support/ donate to Cerys or read more about her story please visit the link below 😊 justgiving.com/page/cerys-mar…

A big thank you to Persimmon Homes Ltd ⭐ A cheque presentation by Jorden Knell, Sales Director, took place at their Festival Park development at Easton. A generous donation of £2500 from their Community Development Fund was made to the branch! Our thanks to them 💙🧡

Tea, coffee & catch up ⭐ Join us for an online meetup to meet others living with MND in the SE region. 📅17th June ⏰11-12:30pm Please contact Liz for the meeting link!

As #CarersWeek comes to an end and we want to say a huge thank you to those who took part. You can still join us in saying "we care about equality for carers": carersweek.org/?utm_source=tw…

We want to say thank you to everyone who took part in #CarersWeek this year especially to the thousands of individuals and organisations who come together each year!

Take part in an MND research Survey ⭐ We need your help with plans to develop a new strategy for how we use research and innovation to improve the lives of people with MND. Please consider filling in the 15/20 minute survey 😊 smartsurvey.co.uk/s/BNVEY3/

Recently Diagnosed Group Meeting If you or a loved one has recently been diagnosed with MND, we welcome you. You are not alone so come along and get support, chat with others and ask questions 😊 📅 20th June @ 2pm via ZOOM Please email Lisa for more info/ joining details!