#MEAwarenessDay Webinar Event update 💙 Program for Understanding ME is now uploaded. Please check it out. 🙏 #MEAwarenessMonth #Research #MyalgicEncephalomyelitis #LongCovid #MEcfs #HealthLiteracy #MEGAdream megroupaustralia.org.au/awareness/me-a…

Lauren’s Story: From an Active Life to Isolation 💬 “Since becoming ill, my world has grown so much smaller. During crashes, I can spend weeks, even months, in the dark, too unwell to speak or move much at all." ~Lauren 📖 Read Lauren’s story: ow.ly/uWcr50VXNyh

Clip of Dr Mark Donohoe, talking about chronic illness on SBS Insight “When medicine feels powerless, … we’re more inclined to gaslight people and say ‘oh, maybe it’s in your head’… and that gaslighting is harmful.”

A look at UK Government funding levels for ME research from 2015-20 highlights the serious long-term underfunding 🇬🇧🔬 The government simply cannot say 'we funded DecodeME' and sit back thinking their job is done forever. We need to FUND THE PLAN! #MECFS #LongCovid

Milo’s Mysterious Nap-Time: A gentle introduction to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Some text info here amazon.com/Milos-Mysterio… 23-second trailer youtube.com/watch?v=kW9zn2… Comment: I haven't read this myself #MEcfs #CFS

25% of ppl with #MyalgicEncephalomyelitis are house or bedbound, prisoners in their own homes. It’s time for a govt #MECFS Delivery Plan #pwME Mark Butler MP Rebecca White Josh Burns Carina Garland Insight on SBS ME Advocacy Network Australia (MEANA) David Joffe MB BS (Hons), PhD, FRACP 🇦🇺 ME Group Australia (Rachel) #MEAction Network Putrino Lab

One day, ME/CFS will be a treatable disease — the only question is when. Every cent invested in biomedical research brings that day closer. That’s why it must be a top priority.

💡Millions suffer from ME/CFS, yet funding has been cut. Our NIH-backed Center for Solutions for ME/CFSmade breakthroughs in immunity, metabolism, and diagnostics . Help us continue this critical research. 🔗 joinus.cuimc.columbia.edu/index.cfm?fuse… 📢 Please share and help us spread the word!

#BREAKING 🚨 Labor’s Michelle Ananda-Rajah has won the final Senate spot in Victoria The total makeup of senators in Victoria: 🟥 Labor: 5 🟦 Liberal: 3 🟩 Nationals: 1 🟩 Greens: 1 🟨 United Australia: 1 ⬜️ Independent: 1

Australian doctors are not trained to diagnose or manage complex, chronic conditions like #MyalgicEncephalomyelitis #LongCovid #fibromyalgia Patients are gaslit & traumatised by our healthcare system. This needs to change Mark Butler MP Rebecca White Royal Australian College of GPs (RACGP) President Insight on SBS

Yay! We reached 1,000 views ❣️ There are more than 1,000 people know how to assist #pwME w/ complex needs. Thank you very much for your support and collaborations. 🙏💙 Julie Hughes #MyalgicEncephalomyelitis #OccupationalTherapy #MEAwarenessMonth #MEcfs #LongCovid #pwD

“Using national and international best practice to improve services locally with special mention of physiotherapy.” Watch Dr Michelle Bull 💙 from Physios For ME talk on our YouTube. youtu.be/Y-M-w6zX4OM

Explore Emerge Australia's Research Digest for ME/CFS & long COVID updates. Simple, practical, and accessible. Subscribe for monthly updates & exclusive content. Check out past or audio editions on our site: vist.ly/3n5hug8.

When I first saw the media calling the new Covid variant NB.1.8.1 “razor blade throat”… I cringed. It was such a blatant attempt at a click bait headline, and given almost all of the articles minimized the risk, it felt like lazy journalism. But then something happened… 🧵

Finally watched both trailer and full video on the history of (mis)treatment of M.E. Very informative, sad and clearly demonstrates why this is called the #GreatestMedicalScandal of the 21st century #ME - thanks Adam Adam

You can borrow great equipment in Melbourne Australia from from the Glen Eira library to help protect your friends & family this winter #CleanTheAir

The Norwegian public broadcaster NRK writes about severe ME patient Kamilla who is fighting to get sufficient care at home Google English translation: www-nrk-no.translate.goog/stor-oslo/kron… Screenshot from the Science for ME weekly update #SevereME #MEcfs

🍁 The Red Leaf project is a beautiful one. We need spaces for processing our grief, loss, endurance and hope. The complexity of it all. [The symbol encourages us to highlight what is helping us to hang on, even while we equally face the reality of tragedy & loss with LC and ME.]

Healthy Women: “I'm Tired of ME/CFS Being Misunderstood” “I’m using my voice to advocate for myself and the millions of people living with myalgic encephalomyelitis/chronic fatigue syndrome” healthywomen.org/im-tired-of-ch…

I interviewed Rob Wüst about his team's new study comparing effects of exercise on people with ME/CFS and Long Covid vs effects on healthy controls who were deconditioned after 60 days of bedrest: virology.ws/2025/06/04/tri…