2019 Brings Change at the SMS Research Foundation conta.cc/2Ex36Yn

Have you seen our latest news? conta.cc/2Ex36Yn

Get involved in Rare Disease Day on February 28th conta.cc/2NCf61q

Get involved in Rare Disease Day on February 28th conta.cc/2NCf61q

“If they are wrong they need your prayers all the more; and if they are your enemies, then you are under orders to pray for them." #CSLewis

Perhaps the future no longer depends on a single leader but on each of us who can quietly dedicate our life to light love & healing

I think this will force us to be in community in a way we never thought we needed to be before. I'm open to that.

Leadership at the top levels may be irrelevant if we take responsibility for personal/social transformation, equality, social justice & love

If Trump has the courage to take on huge corporations we'll work with him. But if he scapegoats people of color we'll oppose him vigorously.

Democrats have focused too much on raising incredible sums of money from wealthy people, and have largely ignored working families.

It's BIG!! Join us to find out what is on the horizon for the SMS Research Foundation's next BIG… instagram.com/p/BMyl2-IhYhF/

Please. If you read anything this week. Make it be this. medium.com/@tobiasrose/em…

In case you missed it! Gene therapy project for SMS funded by the SMSRF! Full presentation here: smsresearchfoundation.org/gene-therapy/

I've created a space to share my thoughts and experiences with special needs and parenting. Take a look around:-) rarelyperfect.com

New post on Rarely Perfect: Caregiving and Anxiety, Part 2: Staying Sane in the Midst of Insanity | Rarely Perfect rarelyperfect.com/2017/01/caregi…

Our fellow Americans in Puerto Rico and the US Virgin Islands are in peril. They need our help now.

This is a thread of the stories of people that were in that building. Spread this. Amplify their voices. It’s a first hand look into what really happened and it’s really important to share. #neveragain x.com/ohstephany_/st…