Without a cure, my son Max is unlikely to see his 5th birthday. Please help. Donate, RT this, like this status, literally ANYTHING helps. Please. #orphandisease #RareDisease #help #a11y #drupal #genetics #TBCD #SOS #medicalresearch tinyurl.com/miracleformax

We're on Twitter now! #cureTBCD

Hi! I'm Max. I have TBCD, which paralyzes most kids completely by 4 years old. The avg lifespan is under 5. We're funding research at Nationwide Children's Hospital to find a treatment. We need an estimated $2 million to get to clinicals. Please help? miracleformax.com

I was on the news! wogx.com/news/central-f…

Beep beep! Max has been waiting for months for his @PermobilUSA Explorer Mini with no progress, so we finally gave up and got him a Bumper Buddy on Amazon instead. He's so happy to finally be able to reach the mailbox on his Little Tikes playhouse!

With apologies to Dan Levy, whose glorious eyebrows deserved better. Caption: When they tell us to give up on raising $2 million to save my life #SchittsCreek #DavidRose #cureTBCD #MakeAWish #Help Nationwide Children's Hospital

Max is 2 and has a condition called TBCD. Most kids lose all purposeful movement by age 4 and die by 5. In 2022 we've started a 501c3 foundation, raised $100k, and started working with a research team. One catch - we need $2m. PLEASE tag any outlet or show who might cover this!

This #fridaymorning, my family is trying to save my two year old's life. We need $2 million to get to clinicals for TBCD at Nationwide Children's Hospital. We desperately need help spreading his story. If you could take one second to hit share, you'd be our hero.

A huge thank you to Insider for covering Max's story, to PollyAnna Brown for writing it, and to Rebekka Reynolds for connecting us to make it all happen. insider.com/my-son-has-a-r…

A big THANK YOU to PinSeeker Game for adding The TBCD Foundation to your charity rotation! If you play on a golf simulator running E6 Connect and you want a fun way to contribute to a variety of wonderful causes, you can download the app and join in. pinseekergame.com/download/

Max is ready for the Panera Bread fall catalogue. He's wearing the chocolate croissant.

Forming a support group for adults who bought a ton of Halloween candy to "get ahead of things before the Halloween rush" and then gradually ate most of it #halloween #parenting #spookyseason #adultlife

Thank you for raising awareness and featuring our fight!

It's my first Florida☀DrupalCamp -! Thanks MidCamp and Pantheon for my awesome swag. I love it! #Drupal #FLDrupal #FLDrupalCamp #DrupalCampFL #FLDC2023