Today and tomorrow we will be at the East Barnet Festival talking about Organ Donation and just how incredible it is! We will also be selling lots of handmade sweetie cones, biscuit pops… instagram.com/p/Bk65o3KgyJw/…

The VAC machine is off! His tummy is healing quite well so he’s free of the machine! Yay! So today he had VAC free physio! Much easier! 💪🏻. Today on the menu were steps! (Not the… instagram.com/p/BlGqGMGgBlB/…

Stairs in the bag! Yes! Go Miiks! So proud of you ❤️💪🏻 #organdonation #miikathewarrior instagram.com/p/BlXapbnHOHg/…

Lonnee makes us proud beyond words. I know we talk about Miika being a warrior but his twin is another warrior in a different way. Throughout last year he didn’t once moan or cry that… instagram.com/p/BlgeuvzAeFv/…

Miika finally got the OK to swim and have a bath last week!!! 👍🏻. He hasn’t had a proper bath (as in completely submerged in water!) or had a swim for about a year and 2 months! This was… instagram.com/p/BmIdjipgYaQ/…

So proud of this kid! He walked unaided in April and then had a few falls and hasn’t done it since. Also his foot is rolling in, a common thing that happens with a hemiplegia (one sided… instagram.com/p/Bmd3qHagHoa/…

And this is how eating goes at the moment! Mostly on the floor and chewed up and spat out but he’s finally putting it in his mouth again and practicing his swallowing! We’ve had months… instagram.com/p/Bmf9yByA7l9/…

On mummy’s birthday I think I’ll try a doughnut for the FIRST TIME EVER! Yes my warrior! #thankyou #thesimplethingsmeanthemost #organdonationrocks instagram.com/p/Bmx6o4JAwyj/…

This month we celebrate Miika’s 1 year anniversary of receiving the most precious gift anyone could have given him. A new heart, a second chance of life. All from a stranger. Quite… instagram.com/p/BnNum0LAXLh/…

I remember this picture on the left so clearly. Miika had just been diagnosed with heart failure and as soon as that picture was taken I burst into tears as I was so scared that maybe it… instagram.com/p/BnRrGucgcRm/…

Today we spent the day at GOSH for a routine angiogram. Miika decided to sleep for 3 hours after the anaesthetic as he didn’t fancy waking up! But when he did wake up he wanted his old… instagram.com/p/BnW0BSVArM6/…

Today marked a special day that has only been made possible by Miika’s donor and the incredible doctors and nurses at GOSH. Miika had his first day at school! I wasn’t feeling emotional… instagram.com/p/BnjgUohg0SI/…

Lonnee had his first day at school today! And Miika saw him through the gates! Thank you beautiful donor ❤️ Lonnee skipped through like a champion, beaming and ready to go! That kid… instagram.com/p/Bno2mtFnkGG/…

Hi everyone! Sorry for the silence for a while! The new school routine has taken over! And now we’re into half term already! Wow! It’s gone quick! Miika has settled into school… instagram.com/p/BpNYlC_nHL1/…

Hi everyone! Sorry for the silence for a while! The new school routine has taken over! And now we’re into half term already! Wow! It’s gone quick! Miika has settled into school… instagram.com/p/BpNYlC_nHL1/…

As we get closer to Christmas we are reminded of just how precious these moments are. If it were not for an amazing family last year then we would not get to witness these little things… instagram.com/p/BpxkEveHa5P/…

Proud is an understatement! Thank you God! Thank you special family! Keep going Miika! You got this! A year ago we were preparing to go to rehab from Gosh and all Miika could do was… instagram.com/p/Bp4m5OeHefV/…

Smashing the walking on a daily basis! Practice makes perfect! #madepossiblebyorgandonation instagram.com/p/Bq8GRixH4u4/…

This time 4 years ago I posted this picture of our tree decoration not knowing anything about Miika’s heart condition! 4 years later we are incredibly lucky to be together once again for… instagram.com/p/BrxDsq3nZwn/…

Today Miika and Lonnee turned 5! And today Lonnee learnt about how a little boy died and gave Miika his heart. He has never asked where it came from but seemed inquisitive today so I… instagram.com/p/Bsv_zydH4pI/…