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The Amyloidosis Army has joined forces with the Uriel E. Owens Sickle Cell Disease Association of the Midwest and the Kansas Dept of Health to bring an amazing awareness event to Kansas City Kansas Sat May 31st. All are welcome KC Chiefs Mascot will be there as well as free

We want to express our great appreciation to Dr Zubair Shah Director of the Amyloidosis Center at KU Med for speaking at our Rare Disease Summit today. No one does it better. We also thank Kevin, Drew, Shawna, Connie & Paloma for all their hard work to bring this awesome event

WE MUST OPPOSE UNITED HEALTHCARE FROM LIMITING OUR TREATMENT OPTIONS! We are patients. We are rare disease warriors. We are The Amyloidosis Army — built by those who live this battle, every single day. Our mission is not just a goal — it’s a call to action: To raise

We have to stand up for ourselves AGAINST UNITED HEALTHCARE trying to limit our treatment options!! The Amyloidosis Army was founded to advocate for Amyloidosis awareness and for everyone who has Amyloidosis. We are also Amyloidosis patients. We do not endorse any treatment,

UNITED HEALTHCARE HAS TO RECONSIDER TRYING TO LIMIT TREATMENT OPTIONS This is not about dollars. This is about real people and real patients like me fighting a terrible disease that we need every treatment option available. Let us decide with our doctors what we need!!!

AMYLOIDOSIS AWARENESS DAY NOW A STATE HOLIDAY IN MISSOURI!! The Amyloidosis Army has worked hard and is proud to announce that Gov. Mike Kehoe of Missouri will sign SB 348 at 2:30 PM  designating May 8th as "AMYLOIDOSIS AWARENESS DAY" an official holiday in the state of Missouri.

The Amyloidosis Army is presenting a V122I Amyloidosis Awareness presentation July 12th 12:00 noon. Free genetic testing is available on site. All are welcome!! Special medical speaker Dr. Vicky Savas, Cardiologist specializing in Amyloidosis. Refreshments served. Come and

The Amyloidosis Army wants to thank Dr Vicky Savas for educating us at our V122I awareness event in Detroit today. We gave free genetic tests to 49 people. Thank you Father Jim and Curtis for hosting our program at the Corpus Christi Catholic Church!! Packed house!!!

The Amyloidosis Army is going on a cross country Amyloidosis V122I awareness campaign! Three Amyloidosis awareness presentations in 6 days! Miami 7/26/25 Kansas City 7/29/25 Chicago 8/1-3/25. We believe well done is better than well said!!! amyloidosisarmy.org

The Amyloidosis Army would like to give huge kudos to Sean Akridge Caring Communities Director of KC Linc for hosting our V122I awareness presentation in KC today. Great staff turn out who all serve KC families so well!! Thank you to our pharma friends too! 2 down 1 to go for

We wrapped up our 3 event 6 days cross country Amyloidosis Aware trip in Chicago. We want to thank Dr. Nitasha Sarswat for a great presentation and manning our booth. Great patient champion! Also want to thank fellow patient Giselle for her wonderful testimony and for helping

The Amyloidosis Army is hitting the road again! 3rd Annual Amyloidosis Symposium Sat 08/16/25 8:00 AM at the Robert Woods Johnson Medical School in New Brunswick NJ. Bringing awareness to the medical community! Patient power! amyloidosisarmy.org

The Amyloidosis Army would like to thank Dr. Sabahat Bokhari for welcoming us to his amazing Amyloidosis Symposium. What a great opportunity to learn and meet some awesome people. His staff and presentations were EXCELLENT! Thanks for including patients! amyloidosisarmy.org

The Amyloidosis Army is celebrating the 20th V122I awareness program in St Louis 8/20/25 at the Delmar Divine Community Center. We have come a long way in 15 months come learn about Amyloidosis over lunch. No cost everyone is welcome. Patient’s at work! amyloidosisarmy.org

The Amyloidosis Army would like to give Dr Joshua Mitchell MD Co-Director of the Wash U Amyloid Center of Excellence a huge THANK YOU for speaking at our St Louis V122I Community awareness program. What a great connection to the community and delivered such an informative talk.

I am honored to be selected as the Lead Patient Senator in the state of Kansas for Patients Rising Now. I will continue to ensure Amyloidosis Awareness is a priority. Patientsrising.org amyloidosisarmy.org

The Amyloidosis Army is honored to be presenting with Amyloidosis specialist Dr. James Ampadu Cardiologist at the Spartanburg Regional Healthcare Symposium on 9/17/25 in Spartanburg SC. Thank you for the opportunity to share awareness at this event! amyloidosisarmy.org

The Amyloidosis Army wants to thank Dr Ampadu for an amazing presentation at the 19th Annual Spartanburg Heart Failure Symposium we were honored to present with him and spread awareness. Thank you to “TIFF” Vaughn BSN RN for showing the Real southern hospitality! Over 100 health

The Amyloidosis Army always working to spread awareness of Amyloidosis wants to thank Clary Estes for working with us on this fantastic article!! bio.news/health/amyloid… Working together we can bring Amyloidosis out of the dark!! Amyloidosisarmy.org