BCH Metabolics (@metabolicsbch) Twitter Followers • TwiCopy

Pauline O'Connor

@poconnor

Author & Advocate. Subscribe for updates, as not here often. Books #TheRedHatStories #LivingWithPKU #LivingWithMildBrainInjury #RareDisease #BrainInjury #PKU

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Lou DiSerafino

@diserafino

Quis custodiet ipsos custodes?

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Lic.Agush11

@agustinadducci

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Clair W 🧡

@clairbear42

Ginger #PKU Adult & Mumma. She/Her. Blogger.👩‍💻🍓 Expert on films, ice cream, cats and tea. 🎮🌜#ADHD 🏳️‍🌈

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Bham Children's Hosp 💙

@bham_childrens

Birmingham Children's Hospital - proud to be part of Birmingham Women's & Children's NHS Foundation Trust. Hospital & charity (Reg no. 1160875) official account

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Dr Lewis Gough

@lewisgough

Researcher with industry and world class sporting organisations | Associate Professor @mybcu | College Academic Lead for Research | nutrition and physiology 🏆

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Laura Dean

@loodean76

Proud to be a Paeds Nurse. Currently in PICU research. Family first & foremost. Love a day off ☀️ 🚴🏽‍♂️ 🏊🏼‍♀️ 🐾

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Sebasgo

@sebasgo1

Uno mas. 🇦🇷 🇪🇸 Engr4ever

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boralp

@dtsengezer

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Stuart Sumner

@stuartsumner1

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Kate Learoyd

@pkufamily

Mum, charity trustee, ask awkward questions, trying to cope with this icky platform: support @NSPKU for better future for #RareDisease #pku, tweeting own views

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martin fitzpatrick

@murtfitz85

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Steph

@smfahey2

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Louise Robertson

@louisedietitian

Dietitian 💁🏻Specialising in Inherited Metabolic Disorders🍴Dietitian for @galactosaemia 🍎Nutrition blogger 💻 Tweeting own views.

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Ola Wallengren

@olawallengren

RD, PhD. Research interests include; malnutrition, energy balance, sarcopenia, cachexia and body composition.

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NSPKU

@nspku

The NSPKU exists to help and support people with PKU, their families and carers. It was formed in 1973, see nspku.org

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Anita MacDonald

@macdonj

All tweets discuss low protein foods to help children on low protein diets. All views are my own.

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Promin Metabolics

@prominmetabolic

Family run company supplying low protein foods and meal solutions for people with #PKU

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fatma

@fatma0646

Ben sabahları sevdim oldum bittim. Sabahları, çocukları, bütün başlangıçları..

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Sarah Jarvis RD

@sjarvisrd

Advanced Specialist CAMHS Eating Disorders Dietitian for CWPT NHS Trust. Lives in Coventry. Studied at Coventry University. Supports CCFC.

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Chloë Ormerod

@ormerodchloe

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Dorothy Garcia

@dorothy49973305

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Andrea Gropman

@andreagropman

Director, Neurometabolic Translational Research, St. Jude Children's Research Hospital, Brain imager, Screen play writer, Author, mom of former Team USA skater

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Prasad

@iamapprasad

Paediatrician, Son,husband and Father.

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jakub

@jakubrudnic

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ESPKU

@official_espku

Official Account of the European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria

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Low Protein Connect

@lowproconnect

Providing delicious recipes, education, great services and inspiration to support people with metabolic conditions. #FINDYOURPHENOMENAL

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Jessica Brown

@jess_brown10

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Jules(missing my blue bird)

@juliejules1717

Mum ,Granny,retiree-ex nhs nurse catlover. enjoying life. owner of shiny new hip May2019.avid bookreader

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Simin Patrawala

@simin_patrawala

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PKU News

@howmuchphe

National PKU News provides support & resources to the PKU community. Phenylketonuria (PKU) is a rare genetic metabolic disorder that requires a low-protein diet

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Bernadette Sheehan Gilroy

@sheehangilroy

Lecturer Researcher Advocate #PKU #LowProtein #BrainHealth #RareDisease "Ní neart go cur le chéile" The views and opinions expressed here are solely my own

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The Journal of Inherited Metabolic Disease

@jimd_editors

At a recent Council meeting a decision was made that the SSIEM will no longer interact with X. Please find us on any other Social Media channel.

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Alvaro Hermida

@info_rares

Specialist on Metabolic Diseases and always looking on the bright side of life.

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Caroline Graham

@carolinepku

Mum, Designer, Artist, NSPKU volunteer, 3 kids 2 with #PKU all views my own

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𝔸𝕝𝕖𝕩𝕚𝕤 𝕄𝕒𝕣𝕥𝕚𝕟

@mrs_martin_2012

Wife, mum to an 16 year old with phenylketonuria (PKU), new dog mum, ELCE in Clacks

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PKU GOLIKE – Feel the change

@golikemetabolic

Brandnew medical food for a real change in dietary management of inborn errors of metabolism. #PKU

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Elena D

@elenadf75

Atareada. Endocrinología y Nutrición. Dedicada a lo raro #TCA Errores innatos metabolismo #Hipófisis. Tutora #MIR con ilusión @EndocrinoHUVR @HospitalUVRocio

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HCU Network America

@hcuamerica

The mission of HCU Network America is to help patients with #Homocystinuria and related disorders manage their disease and to find a cure. #HCUNetworkAmerica

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Cycle Pharmaceuticals

@cyclepharma

Passionate about providing quality treatments & services. Everything we do is with patients & caregivers’ best interests at heart. Every single patient matters.

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Kooheek

@kooheek541

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Ytraweetees

@ytraweetees936

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Nicola Whelan

@nicolaw10210673

I am a stay at home parent to Sammy Jack Russell (my dog) I like typing ,interested in current affairs, books, technology, armchair Sport , etc

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Eleana Petropoulou

@childrensdiet

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Eeswalal

@eeswalal38763

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Elizabeth Currivan

@c94164currivan

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Ian Spriggs

@ianspriggs4900

facebook.com/share/v/14Hsrx…

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.

@llyan8211

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Shubhnita Singh

@drshubhnita

Clinical Biochemical Genetics Fellow at @childrensPhila and @CHOP_Research

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N

@knrmn3423

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Gillian Sapia RN

@gillianhsapia

Rare Disease mom. Legislative Advocate and Activist. Opinions expressed are MY OWN and do not reflect the views of any organization, employer, or other entity.

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