Memorial ME Victims R.I.P.
@memorialme
Wir geben Opfern der Myalgischen Enzephalomyelitis eine Stimme!
ID: 1617925164204687369
24-01-2023 16:40:02
1,1K Tweet
440 Followers
87 Following
Maija Haavisto
@diamondie
"Loving Awakening" & 17 more books. Work: IFS/SE, imaginal, hypnosis, metta, jhana, trauma. Poet, artist. Love, Balkan chakras, food, plants, medicine, CFS/ME.
Royal Hansen
@royalhansen
Vice President, Engineering, Google - Privacy, Safety, Security: Posts on InfoSec, Privacy, Data, AI, Counter Abuse and random stuff from life in CA; Tweets=own
Indiefortline
@indiefortline
Sellerie-Sud-Saft-Leser, Ass.Prof.DDr.MMag.M.Sc. Poree/Lauch-Wissenschaften, Lauch-Readings auf Anfrage Channelings von Frühlingszwiebeln (nur im Frühling)
Kara Jane
@karajanesings
‘It’s Still M.E’ OUT NOW! Download: lnk.to/KaraJane All proceeds to funding vital #SevereME Donate: justgiving.com/fundraising/ka… ♥
Barbara Kaufmann
@barbarakaufmann
Filmemacherin, Autorin, Radiomacherin
Swiftsandswallows
@swiftsswallows
@swiftsandswallows.bsky.social My daughter had Severe ME/POTS & MCAS and died in 2024 I am also a parent and carer of a younger daughter with ME & POTS
Trauer.de - "Wenn Trauer spricht"
@trauer_de
Hilfe in der #trauer durch #trauerbegleitung, #trauerchats und ein #trauerhilfe-telefon - Impressum: bit.ly/2DRUZ7i
Martin Privec
@biwe94
Austria | war bettlägerig durch Aktivierung und Psychotherapie | gegen falsche Psychologisierung von organischen Erkrankungen 😀🙂 #MECFS #NoCovid
Firecracker
@fighting4m_e
Raising awareness & advocating for all with ME, Haemophilia, POTS, Dysautonomia & EDS. Here to speak up for our beautiful disabled community!
In the abyss. v severe #mecfs fighter (+10 years)
@abysspearl
On essaie de tenir le coup 🧠🫀 fighter. survivor. #mecfs, depanx, #pots, allergies & other. I'm one of the millions missing. chronic illness FR-EN
Alison - lobby for more $ now!
@blondieroo79
#MECFS Bedbound Approve Ampligen for emergency use now FDA!
Twinkle
@b_linzel
Seit nem Vierteljahrhundert Zeitungsfrau. "Der Sturm wird immer stärker!" Pippi: "Das macht nichts. Ich auch." Privat hier.
Canary
@thecanaryuk
The Canary. Disrupting power since 2015.
Fiona Culbert
@burnleacroft
Doing what I do. Now, how I do it... Unpaid carer, SDS Advocate - autism, lyme and M.E.
ME/CFS Freiburg
@mecfs_freiburg
Informationen über #MECFS, auch betreffend die Region Freiburg im Breisgau. Die #MillionsMissing brauchen eine starke Stimme.
Grieving ME Caregiver @ home 🧑🦽🛌
@mecaregiver
Caregiver of 1 with severe #MyalgicEncephalomyelitis & 1 son died of #MEkills #PostVac #VaccineCritical IMPORTANT INFO: ME IC PRIMER: t1p.de/m8vaf
50.000 und 1 Stimme für ME/CFS
@50000und1stimme
Impressum: 50000-und-1-stimme-fuer-me-cfs.de/impressum
L04
@_marc_213
⚰️
Jack | amatica health
@jackhadfield14
ex Aerospace Engineer, now ME/CFS & LC patient researcher and cofounder @amaticahealth
Royal Free 1955
@rfh1955
ME/CFS vault. Education, not profit. Research @CiaranJ_Farrell/@Needles_Toosay, curator @Needles_Toosay. Petitions/poetry etc muted - they don't work.
AngelikaSu
@angelikasu1
Long Covid Caretaker
PolyBio
@polybiorf
501(c)3 transforming how #LongCovid, #ME/CFS & Lyme+ are studied, diagnosed, and treated. Leading the #LongCovid Research Consortium.
D-J ME/CFS - Hoffnung bleibt
@dj65792435
???
@ulaujzaboci4nsj
Dana Herbert
@danaherbert
Dx: #MECFS #Narcolepsy #hEDS #PTSD #ANA+ #PinealCyst #LC #AorticAneurysm Here for Q&A #MAHA How I escaped murder by dentist (so far) in CT, in link:
@TheChronicCollaboration
@thechroniccolab
A resistance movement for chronically ill & disabled people. Joining the dots between conditions. Resisting psychologisation. Fighting for justice & equality.
Ulli Brand- Ich behindere mich in dein Leben rein.
@radineulla
#MECFS #severeME #MCAS #severeMCAS nichtlängenabhängige #SFN #POTS #Sjögren etc seit Feb 2021 dank #COVID Darf ich Max Ernst zitieren?
Hobbynotarzt
@hobbynotarzt1
Orthopäde, Unfallchirurg, Notfallmediziner
a n n a
@mecfsanna
25 y/o | she/they | ME/CFS since 2017 | Bell 0 | cannot respond to messages - i’m sorry
Dr. Sabine Hermisson
@sabinehermisson
PD Dr. (empirical education research, religion) mother of Mila who suffers from very severe ME/CFS (Bell 0) #LearnAboutME
Lisa
@lisathefirst20
Betroffene von #mecfs | 23 Jahre alt | hausgebunden
Lara 12
@lara1250743528
Hallo! Ich begrüße alle! Schwer betroffen nach 2 💉 Mein Mann und meine Töchter halten mich am Leben
NichtGenesen
@nichtgenesen
Wir geben #LongCovid, #MECFS & #PostVac ein Gesicht!
ME-Hilfe e.V.
@me_hilfe_ev
Gegründet am 21.01.2023 Wir schaffen Versorgungsstrukturen. Wir brauchen Mitglieder und Mithelfer! Alle relevanten Links findet ihr in unserem Linktree
Dorothea Krtil
@dorotheakr24062
Optimistin
@optimistin04
Keine Ahnung, was das hier wird! Bin gegen AfD und für Respekt und Toleranz. Long Covid und ME/CFS prägen unser Familienleben.
how_i_wonderously_perished
@honigschnueti
Bedbound with severe ME/CFS since 1/24.
Lou Thornley
@lou_vs_me
Prevention trumps harm. Ramp up pandemic protections. Might look well at times - but battery often flat. #MECFS #LongCovid
Heal ME
@healmeicc
🇩🇪 ME-Aufklärung auf Instagram: @healmecfs
#ThereForME
@thereforme_uk
ExhaustedIndie
@exhausted_indie
Severe ME
Patrick Jay
@patrickjaymd
Physician and Researcher Neuropsychiatry Technical University Munich (Private Account)
Kathryn Hoffmann
@kahryn_hoffmann
ME/CFS & postakute Infektionssyndrome. Prävention & Primärversorgung. - Univ.-Prof. und Ärztin - !Alles: my own opinion! Spielt kein Taubenschach!
Julie Houston
@julesahouston
Body malfunctioning since 1998 MECFS POTS MCAS. #LongCovidKids #LongCovid #PANS #PANDAS ally. #MasksInHealthcare #CleanAirForAll julesahouston.bsky.social
🌱
@glimmerinabsnce
MECFS 2010 - I don’t belong to the scars that they left on my soul
Himmat
@himmatb15
Writer and editor. Life derailed by Long Covid/vaccine injury. Very severe and fully bedbound. ME/CFS | hEDS | POTS
Maria-louise Williams
@mariararoo
Severe M.E warrior (One of the missing millions). Crohn's disease in remission.
Carole Bruce
@carolebruce17
💙Art, Nature, Books, Some Music. Severe ME 32 years. Daughter severe 38 years. Furious about treatment of ME. bsky.app/profile/cabruc…
Nick Petosky
@pizzapicklespur
Compassion & evidence Good troublemaker Comedy Noir Actuals #TimeCats
Millions Missing France
@millionsmissgfr
Asso de patient·e·s Pour la prise en charge de l'#EncéphalomyéliteMyalgique en France & le développement de la recherche #EBM #handicap #AutodéfenseSanitaire