ME Group Australia (Rachel)
@megroupaust
ME Group Australia is a registered Australian charity to advance health for Myalgic Encephalomyelitis (ME). Opinion is my own. “Like & RT” are not endorsement.
ID: 1366256065860362241
https://www.megroupaustralia.org.au/ 01-03-2021 05:19:27
3,3K Tweet
482 Followers
624 Following
Tom Kindlon
@tomkindlon
With ME 36 years (30 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 28 yrs
@richardvallee.bsky.social
@richardvallee
I play language. Mostly irreverent. Debugger. AI. Global warming. Integrity. Healthcare. Science. We are actually in the pre-truth era. #MillionsMissing
Fiona Bagnoporta
@bagnoporta
ME Association
@meassociation
We raise funds for medical research into ME/CFS and provide support, information & campaign for people in the UK. RPs do not necessarily mean endorsement.
Paula Knight
@paula_jknight
Author Artist THE FACTS OF LIFE (2017) Kidlit books x3 author. Writer, drawer, poetry, photography. Disabled. Bed-based 6+yr v severe M.E. #pwME (she/her)
Emerge Australia
@emergeaus
Supporting Australians living with ME/CFS (mylagic encephalomyelitis / chronic fatigue syndrome). Education | Research | Advocacy | Support Services
Mindy Kitei: journalist
@cfscentral
I'm a science reporter who's covered ME/CFS since 1994 in print and on CFS Central, & co-author of Sugars That Heal: The New Healing Science of Glyconutrients.
Claire 🧠🔥 #pwME♿
@naylor007
ME, FM, OH, MCAS, TMJ, OSA, DDD, TOS, hypothyroid stole too much from me. Doing everything I can to take back what's mine💪 I will do what i can to help others
Tracey Spicer AM GAICD
@traceyspicer
Global keynote speaker. Multiple Walkley Award winning journalist & author. Former TV news anchor. Buy my book about AI bias here: tinyurl.com/2b3wzh8c
Dan Wyke 🦠➡️🧠🔥
@dan_wyke
M.E. inactivist, person-centred counsellor (see link), recovering poet (Rack & Waterloo Press)
David F Marks
@david_f_marks
Author. Follow, follow back #science #wildlife #nature #photography #homeostasis #GeneralTheoryofBehaviour #psychology. Follows and RTs are not endorsements.
Vanessa Smith
@normal_ness
We’re all normal to ourselves. I write. Hates hustle,loves shiny objects. Can’t even influence an ant. Anthropology & sociology graduate Author of books.Spoonie
NPO法人 筋痛性脳脊髄炎の会
@cfsnon
NPO法人 筋痛性脳脊髄炎の会（通称ME／CFSの会）の公式アカウントです。国内外の最新情報や活動報告・上映会・講演会のお知らせ等々発信します。日本国内での幅広い認知を訴えていますので、多くの方々のフォローをお願い致します。 ごく少数のスタッフが全力を尽くしております。メッセージ等の返信は難しいことをご理解ください。
irredeemable crybaby 🇵🇸🇵🇸🇵🇸🇵🇸🇵🇸🇵🇸🇵🇸
@byowife
if ur looking for shit i posted myself u already lost the argument🥰 always showing my ass in some way (sometimes NSFW lol), u can support me below🫶 beem: eeit
Lidiando con la Encefalomielitis Miálgica
@tobalilla
#Docente DECENTE. Pedagogía terapéutica. Desde 2005 con #EM q desencadena #Inmunodeficiencia Combatiendo la #iatrogenia y la #MalaPráxis: PRIMUM EST NON NOCERE
Katy B
@katybruce108
Myalgic Encephalomyelitis ME + POTS 38 years Donor to the @mecfsbiobank for 10 years & @DecodeMEstudy Please watch dialogues-mecfs.co.uk/videos/ #pwME
Ailee
@lydiavivi99
A friend is one of the nicest things you can have, and one of the best things you can be.
Martin
@fmartin467
ME/CFS..........
PZ
@pzneedsrest
Music🎶 Film🎞️ Investigative Journalism🧐 Hot Chips🍟 Happiest by the sea 🌊 I used to do things, now living small as a #pwME #MillionsMissing 👻
Chronicillnesswarrior1 ♿️💙✝️💟🇺🇦
@fionangreg
Wife, mum, Severe ME, MCAS, Long Covid, dogs, peace, don't rush, love & forgive ❤️ #chronicillnesswarrior #loveyourself #loveothers @MEWarrior1.bsky.social
Dr Nicola Clague-Baker
@claguenjc36
PT researcher/Senior Lect @LivUni co-founder @physiosforme | PhD | neuro rehab/ex physiology/fatigue/mental health/ME/Longcovid/EDI/all views my own she/her
Michal Bartnikowski
@m_bartnikowski
Very severe ME/CFS and LC. Medical engineer, PhD in tissue engineering and biomaterials.
SoeMac
@soemac_
SoeMac is a wellness product that increases blood flow & tissue oxygenation for people with CFS, ME, Long Covid, COPD, Asthma, and many other conditions
Gary Anderson
@g_a_grandsong
#LongCovid #MECFS - Another Long Covidian pursuing science in service of the ‘heart.’ 🫶🏼🌹
Joe Connolly
@joec_chicago
Sharon Thornton
@_sharonthornton
Here to read the news. Likes science, health, old buildings, crafty things, law and reform. Dip Accounting. Sews. Chronic fatigue since before 2019.
Kelly Fawcett
@kellymfawcett
Data enthusiast and self-proclaimed nerd | she/her | disabled queer 🌈 | white settler | all views are my own
Billy Hanlon
@bhanlon15
ME/CFS | Long COVID | IACC
أرشفة الفيبروميالجيا🦋 FM CFS ME
@ksafm_cfs_me
أرشيف الفيبرومياليجا FM و متلازمة الإجهاد المزمن CFS و ME التهاب الدماغ والنخاع المؤلم للعضل 🦋 لوني:Purple أرجواني 7.4K
Illustrator Interrupted
@franceyme
amandafrancey.com illustrator, amateur photographer and bird telepath. Advocating for myalgic encephalomyelitis #MECFS #LongCovid @franceyme.bsky.social
Mary B
@maryb51630191
😷 ME/CFS, POTS, MCAS, Hypothyroidism, Dysautonomia, Fibromyalgia. Mobility aids user. Be kind to one another. she/her 🌏🌳🌈 🇵🇸🇺🇦🇦🇫🇨🇩🇸🇩🖤💛❤️
Bridget
@bridtweets38
acknowledge (active) vs accept (passive)
Long Covid Advocacy 💙
@longcovidadvoc
📘Legislate ⚕️Investigate 🌬️Ventilate 👥Educate Advocacy4 #LongCovid #MECFS #COVIDisAirborne 🛍️ longcovidadvoc.shop
invaderxaz
@invaderxaz
Sarah O'Connell
@sarahoc_mecfs
#pwME patient 12 yrs & mum of 2 with ME, #LongCovid & PANS • ME & LC Advocate • Co-Founder LCAI • Women's Health; Endometriosis,PMDD • Sci-fi & movie lover
LongCovidPharmD
@organichemusic
Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. PharmD.substack.com ko-fi.com/LCpharmD
San Morales 🎗️🎗️🎗️
@sanm52172826
Non citoyenne : ME/EM Endogirl Sopk Adenomyose Covidlong/persistente lyme 5 años calvario/pacientes en abandono calducha en alma Los 23 CampoM la 🎼🎹 ma vie
MumME
@pamrosling
Mum & carer to severely Covid-vaccine-injured daughter desperate for treatment to get her life back :-( Also passionate about climate and biodiversity crisis.
Arthur
@unreal_arthur
ME Patient-ly Waiting for Biomedical Research #GreatestMEdicalScandal unrealarthur.bsky.social @unrealarthur.bsky.social
Monica Dalby
@dalbymonica
Living with ME since 1985.
Rickster 1111
@richard43163193
EPIPOLE of Phoenix
@epipoleofphx
WRITER,DISABLED, MEDICAL RESEARCHER, FEMINIST,ANTI-EPIDURAL & NOZEMPIC (CSF leak,HT,EBV,spinal lipoma)—Northwestern(‘97) —ARE U CHRONICALLY ILL LIKE ME?
Dawn
@mcdaniel_dawn98
Rebecca
@becdom16
Lois
@iyomasaaya74878
DinahSimon
@ad5rfp4vwogcn8t
catpenter
@tzdd7c6h9oi3k
woodwork buddy!
UniteToFight
@u2fight_world
LongCovid & ME/CFS conference project. community-driven. independent. global.
🕊
@ploopysmonoton
♿️📚 🎶📺 📻 ♿ Not much of a filter 😊 Writer reader. 🎭📚
Elrond Hubbard ME
@huanav544113
Murray Huana is now part Elf-Lord as well as creator of a major western religion. This makes me always right & you - wrong. I am the light. Stable Genius. ME
Etta Loveday
@ettalovedayme
She/Her. Rising awareness for people living with Myalgic encephalomyelitis (ME). #ME #SevereME #VerySevereME
J Peace 3
@jpeacejpeace
Long Covid is a disease of the function and structure of the microvasculature.
RaeAntoinette
@j1ij3z94kif5zm2
Chris James
@chrisjames31181
I'm a comedian
Arsen Balls ME
@arsenballs
Former taxi driver of Cab 666, Satan’s official driver. MECFS certified meat in human skin. Living on unceded Kokatha land. Devil in a blue dress. 😈
NCNED
@ncnedresearch
Australia’s peak Research Centre for ME/CFS, long COVID, and Gulf War Illness based at Griffith University on the Gold Coast, Queensland.
Lassie💙 #severeME
@lenmeldy
severe ME #livinghell
rachel's account for following health research
@autonomicrachel
bedbound since 2021 w severe #MEcfs #POTS #MCAS #hEDS #autoimmune #gastroparesis #SIBO #CCI #longCOVID and more. never stopped masking up. 😷 #MillionsMissing
LuxyME💙
@luxyme_
Myalgic Encephalomyelitis ❤️🩹 Encefalomielitis Miálgica ❤️🩹 #pwme #Anpe #Pots #HOPE 💚
Lara Caughey
@lcaughey75
Journalist, Feature writer, Author, MEAA member, English teacher
Amelia
@amelia178414
Sandra
@restlesssands
Yfrootout
@yfrootout82819
FionaPWME @fioname.bsky.social
@fionapwme
Was a journo/writer/editor. #MECFS has crushed my life for almost 15 years. (Profile pic: excerpt of cartoon by @KorneliaPaulson.)
Carole Bruce
@carolebruce17
💙Art, Nature, Books, Some Music. Severe ME 32 years. Daughter severe 38 years. Furious about treatment of ME. bsky.app/profile/cabruc…
Martynas Bendorius
@smtalkk
Co-owner of DirectAdmin, owner of MC2 Insight. NDPH and post-Lyme patient with #POTS 🦠
Adam
@abrokenbattery
Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
Maribeth
@mbfromma
allyann
@me_allyann
Living with & advocating for ME, POTS & FM, ex IT. Homebound & at times bedridden. I regularly delete tweets. @allyann.bsky.social #mecfs #pots #fm #endo
smit
@smit_smit20