ME Group Australia (Rachel) (@megroupaust) 's Twitter Profile
ME Group Australia (Rachel)

@megroupaust

ME Group Australia is a registered Australian charity to advance health for Myalgic Encephalomyelitis (ME). Opinion is my own. “Like & RT” are not endorsement.

ID: 1366256065860362241

linkhttps://www.megroupaustralia.org.au/ calendar_today01-03-2021 05:19:27

3,3K Tweet

482 Followers

624 Following

ME Group Australia (Rachel) (@megroupaust) 's Twitter Profile Photo

‼️Attention Please‼️ From @NHMRC's ME/CFS Project Team. #MyalgicEncephalomyelitis & #ChronicFatigueSyndrom #ClinicalGuideline (#MEcfsGuideline) Consultation. Emerge Australia ME/CFS Australia Bridges & Pathways ME Advocacy Network Australia (MEANA) consultations.nhmrc.gov.au/clinical-pract… nhmrc.gov.au/health-advice/…

ME Group Australia (Rachel) (@megroupaust) 's Twitter Profile Photo

If you are #pwD (especially #NeurologicalDisability) in Qld, we encourage to complete this survey before 30 Apr. Your answer will inform policy and lobby #QldGov. 🤓 #NothingAboutUsWithoutUs #MyalgicEncephalomyelitis #MEcfs #LongCovid #NeuroDivergent #Disability #Research

Vanessa Smith (@normal_ness) 's Twitter Profile Photo

"exercise can be prescribed as a non-medical treatment"   If you are going to prescribe exercise then you need to include screening for PEM and other contraindications, the same way you do for other treatments. Exercise is not universally safe.   abc.net.au/news/2025-04-0…

ME Group Australia (Rachel) (@megroupaust) 's Twitter Profile Photo

Hello MEGA community and supporters We are having tech issues and unable to communicate by email. Please reach out to us by messaging on social media, including X. We apologise for any inconvenience, and appreciate for your understanding and patience. 🙏

ME Group Australia (Rachel) (@megroupaust) 's Twitter Profile Photo

We are united for #FairGoForME! Marginal seats in #AusVotes2025 matters for #MyalgicEncephalomyelitis, #MEcfs, and #LongCovid! See details of the campaign here: [emerge.org.au/2025-federal-e…] Emerge Australia ME/CFS Australia ME Advocacy Network Australia (MEANA)

We are united for #FairGoForME! 
Marginal seats in #AusVotes2025 matters for #MyalgicEncephalomyelitis, #MEcfs, and #LongCovid! 

See details of the campaign here: [emerge.org.au/2025-federal-e…] 

<a href="/EmergeAus/">Emerge Australia</a>  <a href="/mecfsaustralia/">ME/CFS Australia</a> <a href="/MEAdvNetAu/">ME Advocacy Network Australia (MEANA)</a>
Dr Rae Duncan (@sunny_rae1) 's Twitter Profile Photo

Guidelines for a sustainable return to work with long COVID - U.K. Occupational Health Guidelines for employers & employees from my brilliant friend Dr Clare Rayner and Prof Ewan MacDonald at the Society of Occupational Medicine x please share x academic.oup.com/occmed/article…

ME Group Australia (Rachel) (@megroupaust) 's Twitter Profile Photo

Help us get a #FairGoForME this election! Tag your independent candidate & tell them you will vote for the candidate who will give people with #MECFS & #longCOVD a #FairGoForME! #AusVotes2025 #MyalgicEncephalomyelitis Emerge Australia ME/CFS Australia ME Advocacy Network Australia (MEANA)

Help us get a #FairGoForME this election!

Tag your independent candidate &amp; tell them you will vote for the candidate who will give people with #MECFS &amp; #longCOVD a #FairGoForME! #AusVotes2025 

#MyalgicEncephalomyelitis 
<a href="/EmergeAus/">Emerge Australia</a>  <a href="/mecfsaustralia/">ME/CFS Australia</a>  <a href="/MEAdvNetAu/">ME Advocacy Network Australia (MEANA)</a>
ME Group Australia (Rachel) (@megroupaust) 's Twitter Profile Photo

#FairGoForME campaign was launched. Twice a week posts until the election will spotlight key theme/priority for #MECFS & #longCOVID. We need your help! Like, tag, & share our posts & spread the word! #AusPol #MyalgicEncephalomyelitis Emerge Australia ME/CFS Australia ME Advocacy Network Australia (MEANA)

#FairGoForME campaign was launched.  Twice a week posts until the election will spotlight key theme/priority for #MECFS &amp; #longCOVID. 
We need your help! Like, tag, &amp; share our posts &amp; spread the word! #AusPol
#MyalgicEncephalomyelitis 
<a href="/EmergeAus/">Emerge Australia</a>  <a href="/mecfsaustralia/">ME/CFS Australia</a> <a href="/MEAdvNetAu/">ME Advocacy Network Australia (MEANA)</a>
ME Association (@meassociation) 's Twitter Profile Photo

BBC: Trial seeks treatment for long Covid sufferers    Researchers at Plymouth University are working on an anti-viral drug trial alongside the University of Derby to treat the symptoms of Long Covid.    Project Leader, Mark Faghy, said "Five years on from the start of the

ME Group Australia (Rachel) (@megroupaust) 's Twitter Profile Photo

#MyalgicEncephalomyelitis & @MEcfs #research receives far less funding than other chronic illnesses. Tag your candidates & ask about their commitments to help #pwME and #longCOVID. Remind them #FairGoForME for your vote! #AusVotes2025 Emerge Australia ME/CFS Australia ME Advocacy Network Australia (MEANA)

#MyalgicEncephalomyelitis &amp; @MEcfs #research receives far less funding than other chronic illnesses. 

Tag your candidates &amp; ask about their commitments to help #pwME and #longCOVID. 
Remind them #FairGoForME for your vote! #AusVotes2025

<a href="/EmergeAus/">Emerge Australia</a>  <a href="/mecfsaustralia/">ME/CFS Australia</a> <a href="/MEAdvNetAu/">ME Advocacy Network Australia (MEANA)</a>
ME Group Australia (Rachel) (@megroupaust) 's Twitter Profile Photo

There is no Speciality Clinic for #MyalgicEncephalomyelitis (ME) in Australia. There is no Medical Specialty, either. Speciality patient care must be part of #healthcare ecosystem of each disease. Ecosystem = #Research + #Education + Care = Sustainable #ValueAdded healthcare.

ME Group Australia (Rachel) (@megroupaust) 's Twitter Profile Photo

Many doctors don’t understand #MyalgicEncephalomyelitis, #MEcfs & #longCOVID, leading to misdiagnosis & mistreatment. Tag your local #AusPol #AusVotes2025 candidates today & demand real change! Remind them we want a #FairGoForME! Emerge Australia ME/CFS Australia ME Advocacy Network Australia (MEANA)

Many doctors don’t understand #MyalgicEncephalomyelitis, #MEcfs &amp; #longCOVID, leading to misdiagnosis &amp; mistreatment. Tag your local #AusPol #AusVotes2025 candidates today &amp; demand real change! Remind them we want a #FairGoForME! 

<a href="/EmergeAus/">Emerge Australia</a>  <a href="/mecfsaustralia/">ME/CFS Australia</a> <a href="/MEAdvNetAu/">ME Advocacy Network Australia (MEANA)</a>
ME Group Australia (Rachel) (@megroupaust) 's Twitter Profile Photo

#FairGoForME! #AusVotes2025 matters for #MyalgicEncephalomyelitis, #MEcfs, and #LongCovid! Australian Greens have committed to all our election asks! How about other parties? Share widely to help spread the news! #AusPol #AusVotes2025 Emerge Australia ME/CFS Australia ME Advocacy Network Australia (MEANA)

#FairGoForME! 
#AusVotes2025 matters for #MyalgicEncephalomyelitis, #MEcfs, and #LongCovid! 

<a href="/Greens/">Australian Greens</a> have committed to all our election asks!

How about other parties? Share widely to help spread the news! #AusPol #AusVotes2025 

<a href="/EmergeAus/">Emerge Australia</a> <a href="/mecfsaustralia/">ME/CFS Australia</a> <a href="/MEAdvNetAu/">ME Advocacy Network Australia (MEANA)</a>
ME Group Australia (Rachel) (@megroupaust) 's Twitter Profile Photo

25% of #MyalgicEncephalomyelitis, #MEcfs & many #longCOVID are homebound (#FHBP). They need better #healthcare! Tell your candidates you'll vote for those who will give #pwME & #pwLC a #FairGoForME #AusVotes2025 #auspol Emerge Australia ME/CFS Australia ME Advocacy Network Australia (MEANA)

25% of #MyalgicEncephalomyelitis, #MEcfs &amp; many #longCOVID are homebound (#FHBP). They need better #healthcare! 

Tell your candidates you'll vote for those who will give #pwME &amp; #pwLC a #FairGoForME #AusVotes2025 #auspol  

<a href="/EmergeAus/">Emerge Australia</a> <a href="/mecfsaustralia/">ME/CFS Australia</a> <a href="/MEAdvNetAu/">ME Advocacy Network Australia (MEANA)</a>
ME Group Australia (Rachel) (@megroupaust) 's Twitter Profile Photo

#pwME & #pwLC struggle to access #NDIS & #DSP. This must change! Visit your candidates' page & tell you'll vote for those who give #MyaglicEncephalomyelitis, #MEcfs & #longCOVD a ❗️#FairGoForME ❗️ #AusVotes2025 #AusPol #Disability Emerge Australia ME/CFS Australia ME Advocacy Network Australia (MEANA)

#pwME &amp; #pwLC  struggle to access #NDIS &amp; #DSP. This must change! 

Visit your candidates' page  &amp; tell you'll vote for those who give #MyaglicEncephalomyelitis, #MEcfs &amp; #longCOVD a ❗️#FairGoForME ❗️ #AusVotes2025 #AusPol #Disability

<a href="/EmergeAus/">Emerge Australia</a> <a href="/mecfsaustralia/">ME/CFS Australia</a> <a href="/MEAdvNetAu/">ME Advocacy Network Australia (MEANA)</a>
Emerge Australia (@emergeaus) 's Twitter Profile Photo

Urge Lib/Nat & ALP to commit! Tag #AusVotes2025 candidates: will they support a #FairGoForME ? Find your electorates & candidates via the link: emerge.org.au/2025-election-… #MECFS #longCOVID #AusPol

Urge Lib/Nat &amp; ALP to commit! Tag #AusVotes2025 candidates: will they support a #FairGoForME ? Find your electorates &amp; candidates via the link: emerge.org.au/2025-election-… 

#MECFS #longCOVID #AusPol
ME Group Australia (Rachel) (@megroupaust) 's Twitter Profile Photo

#FairGoForME! Election day is almost here! Make your vote count. #MyalgicEncephalomyelitis, #MEcfs, and #longCovid are united for #AusVotes2025 . Campaign detail is here: [emerge.org.au/2025-federal-e…] #AusPol Emerge Australia ME/CFS Australia ME Advocacy Network Australia (MEANA)

#FairGoForME! 

Election day is almost here! Make your vote count. 

#MyalgicEncephalomyelitis, #MEcfs, and #longCovid are united for #AusVotes2025 . 

Campaign detail is here: [emerge.org.au/2025-federal-e…] 

#AusPol 

<a href="/EmergeAus/">Emerge Australia</a> <a href="/mecfsaustralia/">ME/CFS Australia</a> <a href="/MEAdvNetAu/">ME Advocacy Network Australia (MEANA)</a>
ME Group Australia (Rachel) (@megroupaust) 's Twitter Profile Photo

Welcome to #MEAwarenessMonth! 💙 Here is our May Newsletter. We hope you find this edition interesting. Warmly Team MEGA #MyalgicEncephalomyelitis, #MEcfs, #LongCovid, #NeuroimmuneDisease #Disability #Healthcare #NDIS #HealthLiteracy #MEGAdream sh1.sendinblue.com/aino0wh479pfe.…

Welcome to #MEAwarenessMonth! 💙

Here is our May Newsletter. We hope you find this edition interesting. 

Warmly
Team MEGA

#MyalgicEncephalomyelitis, #MEcfs, #LongCovid, #NeuroimmuneDisease #Disability #Healthcare #NDIS #HealthLiteracy #MEGAdream 

sh1.sendinblue.com/aino0wh479pfe.…
NCNED (@ncnedresearch) 's Twitter Profile Photo

CONGRATULATIONS to NCNED Researcher Breanna Weigel who submitted her PhD Thesis last Wednesday! Her Thesis investigated the health related quality of life of #pwME and #pwLC to gain further insights and to improve healthcare policies in Australia. #GriffithUniversity #GriffithUni