ME Centraal
@mecentraal
Platform voor mensen met Myalgische Encefalomyelitis, hun familie, vrienden, verzorgers & geïnteresseerden.
[email protected]
MECentraal.wordpress.com
ID: 758332728827867137
https://www.facebook.com/MECentraal/ 27-07-2016 16:06:26
10,10K Tweet
1,1K Followers
471 Following
Tom Kindlon
@tomkindlon
With ME 36 years (30 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 28 yrs
JK
@j_b_kennedy
Slowly getting there
💙🌻🦸🏻🕊 💚
@mtwoltering
@mtwoltering on 🦋 ||| Betrokken 💜💃🏻🕺🏽 zelfstandig ondernemer (hopelijk ooit weer)💡🌎👩🏻💻🌿🦜 #LongCovid #SevereME+ advocate @🛏
Sander Zurhake
@zurhake
Redacteur Gezondheidszorg & Volksgezondheid @ NOS. Contact en tips via [email protected]
Martin Rücker
@martinruecker
investigativjournalist. gründer investigativstation: investigativstation.de | Threema: TUFVC84Z | @riffreporter | martin-ruecker.com
Chris Evans
@onlyfluffyone
fighting the system... Pro Choice
Becs #teamplanet 🌍 #KeerHetTij
@becsteamplanet
Zuur & deugend. Mindfulness, compassie en boeddhisme. Kom op voor alles dat van waarde en weerloos is. Levend met MEcvs. En ❤️PSV
Bhupesh K Prusty
@bhupeshprusty
A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Esther Ouwehand
@estherouwehand
Fractievoorzitter Partij voor de Dieren Tweede Kamer / Activist / Dutch MP for first ever political party for animal rights elected to office (2006) 🌱🐮💚🌍
Jimmy Dijk
@jimmydijk
SP Fractievoorzitter Tweede Kamer • Geboren in 1985 te Oldenzijl
Prof. dr. Vivienne Matthies-Boon
@v_matthiesboon
Socrates Professor in the Department of Ethics and Political Philosophy Radboud University. Critical Theory, Vulnerability, Postviral Ethics, #LongCovid #MECFS
Chris Sent
@advocaat_sent
Strijdt tegen onrecht in het jeugdrecht en gezondheidsrecht, Münchausen by Proxy, liefst door kort geding. Sent Advocatuur. Geeft hier geen individueel advies
A 😎 Long Covid + MECFS Billboards
@aaronca11
@lcmebillboards @lcmepirates notrecovereduk.org
Peter Neehus
@peenee2
#pwME | Dutch | Retired creative director and skipper | SciFi | History | Science | Optimist | Granddad
Bilge Cetin
@cetinbilge
dad, network engineer, M.E. since 2019, realist, rational, yet optimist, expat in NL, old (still) Turk, new Dutch
Anil van der Zee ©
@anilvanderzee
Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using Twitter to raise awareness for #MyalgicE | #IACC #art2cureME #pwme #millionsmissing
Jeroen den Dunnen
@drdendunnen
Principal Investigator at the Amsterdam UMC. Studying antibody-dependent inflammation during infection, arthritis, and (long) covid.
Guus
@guustweet
#LongCovid since jan’21 ♿️ - tweets with brain fog, so pls bear with me - 📣 tries to advocate @NietHersteld - eager to learn - she/her - tweets in 🇬🇧 & 🇳🇱
jim faas 🍀
@jimfaas
zo nodig dwars | verzekeringsarts | jurist | phd | docent | radio-dj |schrijven | lezen | zingen | kunst & kunde | semper fi | @JimsMusicBox1
Tan tan
@susanh79
Eindhovenaar & Tilburg int hart, PSV, سوزان, tante, lover, longcovid pt, daggebedanktzetdawitte! GZ-psych; forensische psychiatrie, ❤️🐶🐈⬛🐈 (ZIEK THUIS)
Karen Hargrave @karenlhargrave.🦋.social
@karenlhargrave
Independent researcher & policy analyst | @karenlhargrave.bsky.social | Research Associate @ODI_Global | Co-founder #ThereForME linktr.ee/ThereForME
davidtuller
@davidtuller1
Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
Annelies Bos
@annelies_bos
gynecologist @UMCUtrecht, subspecialisation Fertility & Endocrinology, fertility preservation, social freezing, women health, egg cellbanking, oncofertility
2 X L
@ellenluxnova1
Fortuna vitrea est- tum cum splendet, frangitur. Ambassadeur @BomenclubNL @nlw2024
Alida Drenth
@alidadrenth1
houdt van vogels spotten🐦⬛• hond knuffelen 🐶 • moestuin en boomgaard 🫐• Drenthe • reizen in Scandinavië 🇩🇰🇸🇪🇫🇮 • Glutenvrij bakken 🍰
Janet Dafoe
@janetdafoe
Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
Ynske Jansen
@ynskej
Michelle
@miesje75
Beheerder FB groep kinderen met langdurige Covid klachten| Moeder van een Long Covid kind gediagnosticeerd op 6 jarige leeftijd. Twittert op persoonlijke titel
Fen, MD
@fvrhijn
💉*5 | MD w/ #ME due to #LongCovid | rheumatology resident | regenerative med | vascular inflammation | scleroderma | harpist | they/them 🌈 views are mine
Ines Kostić 🌏🕊
@ineskostic
Dutch MP @ Partij voor de Dieren | politicoloog| Part of #TeamPlanet |Refugee| Using politics to make a positive change for 🌎, humans & other animals🦋
Prof. Karl Lauterbach
@karl_lauterbach
SPD Bundestagsabgeordneter, Bundesgesundheitsminister, der hier selbst und privat tweetet.
ME/CFS News
@mecfsnews
News, interesting information and commentary on ME/CFS. Mostly inactive these days.
Jonas R. Kunst (@kunstjonas.bsky.social)
@kunstjonas
Professor of Psychology @UniOslo. Past @Yale @Harvard @UiB. Editor @Advances1n. Father. Views are my own. @kunstjonas.bsky.social @[email protected]
Whitney Dafoe
@dafoewhitney
Severe ME/CFS patient and advocate. Sick since 2004, bedridden since 2013. Never. Giving. Up. ✊ Useful info for ME/CFS and Long Covid patients in bio link.
Marian Vink
@vink_marian
ME/cvs 1992
Sibylle Dahrendorf 💥✌️
@sibylle_berlin
Once a Filmmaker || Stop denial of #ComplexChronicIllnesses || #SmallFiber #POTS #MCAS #CCI #Lyme #FQToxicity #FlagylToxicity #ME ||
Begrepen Klachten
@begrepenklacht
Ondersteuning van patiënten met langdurige (onvoldoende verklaarde) klachten/ziektebeelden. Tweets van @marliesvhemert (arts, np) en Team BK
Jet Roz
@jetroz
Art Historian and former curator | Life on hold due to Long Covid | Feminist | Sorry for the typo's, brainfog slowing the cogs 😶🌫️ — 🦋
Marianne
@hout_marianne
Dutch. Bedbound with severe ME/CFS. Trying to find my way back to life.
A Darkened Room
@adarkenedroom
One of the #millionsmissing || Raising awareness of the most severe form of #MyalgicEncephalomyelitis
mariska hoos
@hoosmariska
inmiddels helaas ex ambulanceverpleegkundige met longcovid
Bart-Jan den Boer
@bartjandenboer1
Sandra 👩🏻🔬👩🏻🏫
@rsandra266
M.Sc.Biosystems Engineering #neurobiology #Nature #teaching 🍂 | #LongCovid & #MECFS Aktivismus ✊🏻 #NaturalMedicine 🌱
Psycholoog & ME
@psycholoog_me
Marijke Bloks, GZ-psycholoog (niet praktiserend door ME) Non nobis solum nati sumus - we zijn niet alleen voor onszelf geboren
Idealist
@miertje39335725
Making living with chronic illness worthwile
Babs
@ixabil
Initiative #LiegendDemo, ME/CFS
@liegenddemo
Wir organisieren Demonstrationen und Aktionen für Aufklärung, Versorgung und Forschung für ME/CFS, unabhängig vom Auslöser. Plakate und Handouts s. Link⬇️
Marianne van Lier
@liermarianneke
Charlotte Nelck
@charlottendb
Former justice department worker, life on hold since 2021 #longCOVID | Advocate Long Covid Nederland @longcovidnl | @charlottenelck.bsky.social
Yvette
@iefsworld
| writer | editor | | young widow due to medical neglect | | pwME since chilhood | | do not erase our history | | scifi, fantasy and movie addict |
Post-Exertional Mayonnaise
@pempodcast23
Podcast about living with ME/CFS & chronic illness, creativity and making meaning with Dov Zeller and @talmandaniel
The Sick Times
@thesicktimes
Non-profit news site chronicling the #LongCOVID crisis. Founded by @betsyladyzhets and @mileswgriffis. Donate: the-sick-times.fundjournalism.org
Alexandra
@alexandras61970
Long Covid sinds oktober 2020, inmiddels ME/CVS. grotendeels huisgebonden 😢
NMCB | Nederlands ME/CVS Cohort en Biobank
@nmcb_studie
Samen voor biomedisch onderzoek naar ME/CVS
Brigitte
@8r1g1tte
Dutch | #LongCovid since nov 2020 together with my oldest | two lifes on hold | mom of boys | former paramedic | using X to raise awareness #LongCovid #PAIS #ME
Jos Bosch
@josboschnmcb
UniteToFight
@u2fight_world
LongCovid & ME/CFS conference project. community-driven. independent. global.
Etta Loveday
@ettalovedayme
She/Her. Rising awareness for people living with Myalgic encephalomyelitis (ME). #ME #SevereME #VerySevereME
Michael Gordon
@teamkarengordon
Moonique
@dommeltje_m
#Eeuwigetrouw⚽️♥️⚪💙GespecialiseerdVerzorgende Psychogeriatrie #Kruikenzeiker #Longcovid sinds december 2020
BVIKZ
@bvikz2
Belangenvereniging voor zorgintensieve kinderen van 0 tot 24 jaar
Julian Bushoff
@julianbushoff
Groninger / Sociaaldemocraat / Tweede Kamerlid / GL-PvdA #8 / Woordvoerder zorg en Groningen & Noord Drenthe
Nicola Jeffery
@nicolacjeffery
'Behind that loud-mouthed journalist @MrTopple is an even louder-mouthed woman!' Writer for @TheCanaryUK Event manager AMBI nights #FreePalestine
Frank Ruitenberg
@pol_ruitenberg
Operationeel Expert-Wijkagent Ondermijning & SocialMedia bij basisteam @POL_OudeMaas | Veiligheidskundige | Voorheen #PRO247, BT IJsselland & DrechtstedenBuiten
Rien de Böck
@riendebock
Former mathematician. Life came to a sudden halt due to #LongCovid/ME. Politics & policy, @longcovidnl. Tweets in Dutch and English.
Mark Vink, MD
@huisarts_vink
Huisarts n.p. en verzekeringsarts n.p. (genomineerd voor 2016 John Maddox Science Prijs). Truth about #MEcfs #PACEtrial sounds like Hate to those who Hate truth
Bernard
@millionsmissbe
Bedbound ME/CFS, aging HIV/AIDS ,REUMA,FIBROMALGIA,POLYNEUROPATHIE patient since 2000.Stop stigmatizing us...MillionsMissing Belgium
Adam
@abrokenbattery
Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
Sten Helmfrid 🇺🇦
@stenhelmfrid
Ph.D. in physics, also interested in mathematics and science theory. Loves to apply general knowledge of science to other fields, for example ME/CFS.
Kathy Collett
@kathycollett7
Artist, passion for architecture, fashion and object design, advocate for ME and stopping Elder Abuse. 30 years ME research. Former patient of Dr Goldstein.