Federal funding for #LongCOVID has never been more essential! No one knows that better than people with #MECFS. We have sounded the alarm for decades. MEAction GA stands with our LC neighbors in NC. #MEActionNC #disabilitySOS #MEforward

How are NC residents suffering with #LongCOVID supposed to access clinical care if their only LC clinic is closed? I'm asking you, Senator Thom Tillis. #MEActionNC #disabilitySOS #MEforward meaction.net/2025/06/23/pre…

ACTION ITEM #pwME #pwLC #NEISVoid

Check out this quick action from our friends at Solve ME/CFS Initiative! #MEForward #AdvocacyWeek #MECFS

Sign up for our June 27th EmPOWER M.E. event "Pacing: Power in Slowing Down"! Our panel of experts will discuss how & why pacing works, pacing in public spaces & communicating needs to caregivers. Register today! ow.ly/hg6450Wafkt #MEAwarenessHour #PEM #MECFS

BREAKING NEWS: #MEAction has just received a $25,000 fundraising match opportunity! Every donation will be doubled! meaction.net/donate We are working hard to support and fight for this community on multiple fronts, but we CANNOT do this work without your financial support.

1/ 🚨 Over 28 falsehoods and common anti-vaccine talking points were shared during yesterday’s ACIP meeting. The zone is being flooded with misinformation, and it’s impossible to debunk it all in real time. But here are some key ones you should know. 🧵

On 27th June from 10am BST join Solve M.E.'s EmPOWER M.E. roundtable with panels of patient advocates, professionals, and scientists discussing the power of pacing for ME/CFS, Long Covid, and caregivers. #MECFS #Pacing #IACC buff.ly/Hs8VmwD

Just got out of a meeting with Nathan Royce for Rep. Andy Ogles office for Solve ME/CFS Initiative Advocacy Week. Nathan was an A+ listener & asked great questions. Nathan, you are appreciated. Everyone can take action this week: solvecfs.quorum.us/campaign/12875… #MEForward #AdvocacyWeek #MECFS

Just got out of a meeting with Lizzie N for Congressman Rich McCormick, MBA MD office for Solve ME/CFS Initiative Advocacy Week. Lizzie was an A+ listener & asked great questions. Everyone can take action this week: solvecfs.quorum.us/campaign/12875… #MEForward #AdvocacyWeek #MECFS MEAction GA

Just got out of a meeting with John E for Rep. Mike Collins office for Solve ME/CFS Initiative Advocacy Week. John was an A+ listener & asked great questions. Everyone can take action this week: solvecfs.quorum.us/campaign/12875… #MEForward #AdvocacyWeek #MECFS MEAction GA

Just completed a meeting with Lizzie N of Congressman Rich McCormick, MBA MD's office as part of Solve ME/CFS Initiative Advocacy Week. We are counting on Congress to help support the estimated 9 million Americans suffering with #MECFS. MEAction GA #MEforward

Thank you to all of the advocates who took over 150 meetings with Senate & House offices about key issues to the #MECFS community. Your stories matter, and we're so grateful for your efforts to educate & inspire your representatives to take action! #MEForward #AdvocacyWeek2025

Congressman Rich McCormick, MBA MD please sign on as an cosponsor of the Medical Research for Our Troops Act to restore $1.18B in DOD medical research funding, including for #MECFS. Support the #CDMRP and protect lifesaving research! #pwME MEAction GA Solve ME/CFS Initiative

#MEAction will be taking our one-week summer break. We return July 7th. We hope you can take some time to rest and replenish as well. Our websites and MEpedia are still available a well as our groups unless moderators need a pause to rest. Take care and Happy Summer!

Caring for someone with severe ME/CFS? A low-stimulus space matters: ✔️ Dim lights ✔️ Quiet sounds ✔️ Gentle touch ✔️ Fragrance-free ✔️ Temp control Download the Crash Survival Guide: loom.ly/wwxe9SU #SevereME #MECFS #CaregiverSupport #ChronicIllnessCare @openmedf

Solve awards more funding to Ramsay Grant winners Drs. Geraldine "Jo" Cambridge & Dana Yelin—two world-class scientists advancing treatments for #MECFS & #LongCovid. Their research includes immune dysfunction & novel non-invasive therapies. Learn more: ow.ly/iUwx50WiA5B

#MEAction has a $25K fundraising match opportunity! Donate today! Your financial support allows us to provide support for this community! meaction.net/donate #MyalgicE #MECFS #pwME #Disability

My friend, Maggie Boxey has nearly 50k views on her Millions Missing TEDx Talk!!! Let's keep the momentum going! THIS is advocacy in action. Please like, comment and share. MEAction GA #MECFS #longcovid #millionsmissing youtu.be/JzKfi8LOMQU?si…