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We’re deeply concerned by a bill passed today/yesterday by the House Energy and Commerce Committee including major proposed cuts to Medicaid & other affordable health coverage programs. Take action and tell your lawmakers to say “NO” to Medicaid cuts at MDA.org/Medicaid

The newborn screening system needs modernization and MDA's Paul Melmeyer is helping lead the charge. Read his view in Pharma Technology Focus’s article as we continue to advocate for timely, equitable access to newborn screening for all families. #NewbornScreening #RareDisease #MDA

Happening at 7 PM ET tonight: #MDA Advocacy Institute focused on education policy & advocacy for the #neuromuscular community. We'll talk #IDEA Full Funding Act, hear from #MDA advocates, & discuss action steps to get involved. Want to join us? Register: mdausa.webex.com/weblink/regist…

MDA mourns the loss of Rep. Gerry Connolly (D-VA). Connolly represented VA-11 & was a cosponsor of the Accelerating Kids Access to Care Act and the HELP Co-Pays Act, bills that aided in access to care for the #neuromuscular community. We send our thoughts to his loved ones.

#MDA is deeply disappointed in the House passage of the budget reconciliation package. This bill threatens critical services and supports for the #neuromuscular & #disability community, including vital access to care provided by #Medicaid and other health care programs.

Our full statement is below:

#ICYMI: May's #MDA Advocacy Institute: Education Policy & Advocacy - Strengthening Access for the #Neuromuscular Community is now available on demand! Watch the full event here, and learn how you can support MDA's education policy work: youtube.com/watch?v=qOCJvL…

#MDA Advocacy supports our colleagues in the Partnership to Protect Coverage (PPC) as they launch an ad in The Hill newspaper today, urging against congressional cuts to vital health care programs. Here's a sneak peek:

Our new MDA Quest blog on threats to the Administration for Community Living (ACL) is now live. Read the full blog ⬇️:

We’re saddened by the tragic loss in the Duchenne community shared in Sarepta’s Elevidys update. MDA supports the pause in use for non-ambulatory patients as safety is reviewed. Our hearts are with the family.

If you have questions or need support, please consult with your physician and contact the MDA Resource Center at 1-833-ASK-MDA1(1-833-275-6321) or [email protected]. #Duchenne #MuscularDystrophy #GeneTherapy

Today, Muscular Dystrophy Association & 41 #NMD orgs. sent a letter to U.S. Senate leadership rejecting cuts to #Medicaid & affordable health insurance coverage/services used by the #neuromuscular community - raising costs, imposing red tape, & delaying care. Read the letter: d3dkdvqff0zqx.cloudfront.net/groups/mda/att…

Affordable health care is a lifeline for those living w/#neuromuscular disease & their families. Proposed cuts in the Senate's budget bill would raise health care costs for everyone, even those w/ private insurance. #ProtectAffordableCare #ProtectMedicaid MDA.org/Medicaid

At #MDA, the #neuromuscular disease community is our top priority. While government programs like #Medicaid are complex, this is black and white: Patient care is not wasteful. #NoHealthcareCuts

Today, the U.S. Senate passed a bill making devastating cuts to Medicaid & other health programs that the #neuromuscular community relies on to build healthy lives & independence. Urge the House to reject this bill & its cuts NOW! Read #MDA's statement: mda.org/press-releases…

Congress has passed legislation that makes historic cuts to #Medicaid, #Medicare, and #ACA, & it could leave 17M more uninsured, including those w/ #neuromuscular diseases.   #MDA is disappointed, and we pledge to defend our community.

Please join #MDA Advocacy next Tuesday, July 15 at 7 PM ET for a look at the path forward for the #neuromuscular community after the passage of the budget reconciliation package. Register here: mdausa.webex.com/weblink/regist…