Matt Hughes (@matt_hughes79) 's Twitter Profile
Matt Hughes

@matt_hughes79

Co-Founder/Director @medcanfamily championing research and innovative medicines while providing education, advocacy, and support for childhood drug-resistant

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linkhttps://linktr.ee/matt_hughes calendar_today04-02-2019 15:07:28

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Im kinda lost as to what to say. It's all been said before. We're all exhausted, completely drained of fighting to keep Charlie well. That's just to see basic needs covered, SALT, physio etc... Add five years of campaigning to secure his medication. Our children are forgotten.