The ALS story is no longer about wheelchairs, bed lifts and medically assisted dying. It is about unprecedented hope due to: 1) many more drug companies in the space 2) promising therapies in the clinical trial process 3) innovative new trial formats and 4) patient-led advocacy.

Amazing video!!! Lucky to have been apart of that place for 3 yrs. Wow!!!

Over a month ago, my wife’s brother died from ALS. He was 37, with a wife and four small children. His suffering, the heartache, the toll on his family is repeated over and over in families across America. I introduced the ACT for ALS to give #ALS sufferers hope. I AM ALS

Global ALS/MND Awareness Day is June 21. Join Pat Quinn, Viola Serena, Allan. Team Bill Duff, Heiidi Sosa, sandra castillo cano, Michael, Eliana Goncalves, Rob Burrow CBE, Conny and Kathleen in the battle to #EndALS #ALSMNDWithoutBorders #ALSstateofmind

Sign me up. I have total faith in a visionary like Elon Musk to Create a solution to Neurodegenerative diseases.#FuckyouALS google.com/amp/s/www.scie…

We've been seeing some impactful op-eds recently. thanks to the people w ALS and caregivers who have been writing them! We’re racing to find a treatment for COVID-19. Why can’t we do the same for ALS? | Opinion nj.com/opinion/2020/0…

This is really one of the coldest mother-daughter photos ever

Dear The ALS Association , This is flat-out wrong. EAP is for people who CANNOT participate in the trial. It won't steal people from a trial. It can't. Please redo this page asap. Please stop discouraging use of EAPs. als.org/navigating-als…

Carrie Diulus, M.D., FAAOS It’s getting to the point where people like this should be signing waivers - not that they won’t file lawsuits- but that they won’t seek medical treatment in hospitals. This is no longer a surprise like it was in Jan in China or Feb in Europe or March in NYC. No excuses

Stacy can’t swallow or close her eyes so she needs this towel & these goggles to sleep. I climbed in bed took this selfie with her (from the most flattering angle, obviously!) & when she woke, I showed her. Who fan that she is, she spelled out, ‘I’m Tommy!’

Yesterday I tweeted about Eddie Vedder (Pearl Jam) supporting the ALS cause. Today, Joe Biden. #ItsTime

iamals.org/actforalspetit…

Please sign and share this petition. Ask friends and family to sign as well. 🙏🙏 iamals.org/actforalspetit…

Adding the Veep credits/music to the Axios / Jonathan Swan Trump interview just makes sense

This is amazing.👇🏼 With the world in the grip of a pandemic the Australian public have shown us that they feel an urgency to find a cure for MND. Over $10 million dollars for projects starting I'mmediately. We feel your urgency. We thank you for your support.

QB1 in the 🏠 . Lamar Jackson

I have such high hopes for NU-9. Hande Ozdinler what do you recommend someone to do who is not eligible for clinical trials? Can you find NU-9 in any foods or supplements?