TheMarfanFoundation
@marfanfdn
The Marfan Foundation works to save lives and improve the quality of life of individuals with Marfan syndrome and other genetic aortic conditions.
ID: 25116656
http://www.marfan.org 18-03-2009 17:52:18
12,12K Tweet
5,5K Followers
2,2K Following
Andrew Toy
@andrewtoy
Chief Executive Officer at @CloverHealth. Primary platform is LinkedIn. Follow me there!
Lindsey Rusche
@duchesslinz
Canadian/Brit music lover, patient advocate, financial communications pro with feisty opinions and heart of gold
Maya Brown-Zimmerman, MPH
@marfmom
Genetic counselor. Disability. Politics. Adoption. Writer. She/her. My views are my own.
Paul Sponseller
@psponsellermd
The Ehlers-Danlos Society
@theedsociety
The global nonprofit organization dedicated to change and progress in the world of Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD).
Keri Sprung
@kerisprung
Science & technology enthusiast. Passionate advocate for health, wellness, & innovation. Proud Texas Longhorn & Rice Owl. #WALK30
Joseph V. Lombardi MD MBA
@vascsurgmd
Proud Dad and Lucky Husband; Chief Physician Executive. Chair, Heart and Vascular Institute. #AAA #PAD #Aneurysm #Carotid #aortaed @
The Texas Heart Institute
@texas_heart
Bringing the Future of Cardiovascular Health to Life® ➡️ #CVD #Cardiology #CardioEd #CardioX #MedEd
Jil C. Tardiff, M.D.,Ph.D.
@jct_ucb
Physician-scientist at the University of Arizona, Cardiologist and Director of the HCM Clinic at Banner University Medical Center, Sports fan (🐻⬇️🌵, 🤘, Mets)
Emergency Medicine Journal
@emergencymedbmj
The EMJ is an international peer review journal covering pre-hospital and hospital emergency medicine, and critical care. Social Media Editor @drsarahedwards
Julie De Backer
@judbacke
Genetic Cardiologist @uzgent @ugent | Interest in #ACHD and #Marfan | FESC @escardio
Javier Botet
@jbotet
Actor, y un poco de otras cosas.
Sinclair Li
@sinclairli20
Joseph L. Mills MD
@jmills1955
Professor, Vascular & Endovascular Surgery; Diabetic foot; Endo & Leg bypass; AAA; Carotid disease; Health Care; Science; Evolution ~ Tweets often my opinions
Jeffrey C. LeSage
@jefflesage
Former Americas Vice Chairman — #Tax @KPMGUS_Tax. Villanova Wildcat. Views are my own.
Kendra DePinto
@kendrawesomenes
Writer, Disability Advocate, and CEO of Sonoran Heat Sauce Company. I believe that sharing our vulnerabilities only brings us closer. IG: @kendrawesomeness
vicente orozco
@vicenteorozco2
Cardiovascular and Aortic Surgeon, Assistant Professor of Surgery, Baylor College of Medicine,Texas Heart Institute.
Gareth Owens
@icarus1054
Welsh Physicist, Chartered IT Professional & Executive; also singer, genealogist, classic BMW enthusiast, #AorticDissection survivor & Patient Advocate
Timo T Soderlund
@adsept19
SWE/FI husband, father, grandfather. AD type A / BAV survivor. Passionate on #aorticdisease #aortaEd #BAV #prevention #FTAD #FTAAD #HTAD
jim prutow
@jprutow
Dr. Jessica Davis
@jesssdavis
Marfan Trust
@marfantrust
Founded in 1988, the Marfan Trust supports patients & funds research into the cause & prevention of Marfan syndrome, a connective tissue disorder.
The CHiP Network
@chipnetwork1
The Congenital Heart International Professionals (CHiP) Network helps AHCD and Pediatric Cardiac Professionals connect and stay informed.
S Chris Malaisrie
@chrismalaisrie
Attending Cardiac Surgeon at Northwestern Medicine and Professor of Surgery at Northwestern University. Tweet are my own and do not reflect the views of NU/NM.
Dr Victoria McKay
@victoriahmckay
MBChB MRCPCH MBA | Former Consultant Clinical Geneticist | Current GP reg and Co-Chair @theBMA UK GPR Committee @BMAGPRegistrars
SocialPilot
@socialpilot_co
SocialPilot is a powerful social media suite for agencies, SMBs, & multi-location brands. Streamlined scheduling, powerful analytics & easy collaboration.
Maral Ouzounian
@ouzounianmd
Head, Division of Cardiovascular Surgery @PMunkCardiacCtr @UHN | Munk Chair in Advanced Therapeutics | Associate Prof @UofTSurgery @UofT
Texas Children's Fetal Center
@tchfetalcenter
Texas Children’s Fetal Center delivers high-quality care across the full spectrum of maternal and fetal needs, for the best possible outcomes.
Aorta guy
@drzeigler1
Father, husband, Southerner, not in that order. Sewanee, MUSC, Stanford alum. Optimist. surgeon formerly known as aorta dude
IndoUSrare
@indousrare
IndoUSrare is a non-profit public charity organization based in the US, which addresses the unmet needs of diverse patients with rare diseases globally.
Reginald Nkansah, M.D.
@nkansahreginald
Joe Bavaria, MD
@bavariamd
Professor of Surgery, Past President @STS_CTsurgery tweets are my own
cardio Roland
@cardioroland
It’s all about flow! heart failure, biomarkers and aorta cardiologist, suffering from cardioglossopexia (hart op de tong) tweets on personal title
Matthew Solomon, MD, PhD
@mdsolomonmd
Chief Scientific Officer, Sutter Health | Cardiologist & Researcher | Data Science & AI | Aortic Disease Specialist | Views are mine.
Justin T. Tretter, MD
@justintrettermd
Dir. Advanced CHD Imaging, Dir. of Cardiac Morphology, Co-Dir. Valve Procedural Planning Program, Lead Scientist cara-medical.co, Views my own
Rare Disease 360®
@raredisease360
Rare Disease 360® is an all-encompassing resource hub that compiles the entirety of relevant information on multiple rare disease states.
Matthew J. Woods
@wmgsurgical
Ryan C. Goodwin, MD, MBA, FAOA
@ryancgoodwinmd
Pediatric Orthopaedics and Scoliosis Surgery @ClevelandClinic, @CleClinicKids Interests spine, trauma, telehealth Tweets my own. Fan of ALL CLE SPORTS! He/him
Jorge Oller Pedrosa PhD.🫀🏳️🌈
@jorgeoller4
Ramón y Cajal Fellow @ VascularPathology lab @hospital_fjd & @uaxuniversidad Passionate about #mitochondria #Marfan #aorta #aneurysm #metabolism #cardiovascular
frank arko
@farkomd
Restoring blood flow & repairing Aortas, PAD, & veins. Forged at @TAMU refined at @Stanford, perfected at #UTSW now landing at @atriumSHVI
Keila Lopez MD, MPH 🫀
@drkeilalopez
Pedi cardiologist, imager, Mom, #firstgen, Health Equity Researcher, Chicagophile, she/her/hers. Views are my own| Retweets don't imply endorsements
Karen Murray
@karenmurraymd
Chair, Dept of Pediatric Medical Specialties @CleClinicKids; Chair of Pediatrics, Cleveland Clinic Lerner College of Medicine of CWRU. Tweets=my own opinion
Montalcino Aortic Consortium
@macaorta
Montalcino Aortic Consortium (MAC) - clinical international investigators committed to diagnosing & managing aortic disorders and their genetic causes.
Sara Stephens-Novy, PhD, MPH
@sarastephens29
pediatric epidemiologist | interests include #geneticepi, health outcomes research, maternal & child health, SDoH, advocacy | opinions are my own
Joaquin Ramos
@joaquin42173840
THINK AORTA Global
@think__aorta
Official worldwide THINK AORTA campaign to improve the diagnosis and treatment of acute #AorticDissection, founded and led by @AorticDissectUK.
Joseph Coselli, MD
@jcoselli_md
Professor, Executive Vice-Chair Division of Cardiothoracic Surgery, Michael E. DeBakey Dept of Surgery, Director Thoracic Surgery Training Program @BCM_Surgery
Nairy Khodabakhshian
@_nairykh
PhD Candidate at @UofTIMS @sickkids | Studying cardiovascular responses to exercise in pediatric Marfan and Loeys-Dietz Syndrome🫀 | Views are my own | 🇦🇲🇨🇦
Rama Ellauzi
@ellauzirama
PGY-3 @HFHIntMedRes | IM 🫀Program @ACCintouch| Educator @cardiologyUniv | Future Leaders Program @hvpaa | Pianist | dog mom 🐶| Tweets=own
Urszula Ślęczka
@ulasleczka
Preclinical med graduate @UniofOxford @hilda_beastoxf 🩺 DPhil student @KirOxford @greentempleton, researching Marfan Syndrome in the Vincent group!🧬
Scott Avitabile
@yambagyatzee
Texans President
@texanspresident
President of the @HoustonTexans
Bita
@bitaameeri96
Fascinated by Human Heart,MD-MPH
Clinical Trial of Exercise After Aortic Dissection
@trial4aortas
Have you had an aortic dissection? Are you unsure of how to exercise in a safe, supported way? Consider joining our clinical trial.
Melissa L Russo
@russo1melissa
Bart Loeys
@bartloeys
Aortic Dissection Awareness UK & Ireland
@aorticdissectuk
The national patient charity for #AorticDissection. Raising awareness, providing support, improving care, enabling research. Registered charity number: 1198617
Alix Jennings
@jennings_alix
James H Black, MD
@jameshblackmd
Vascular and Endovascular Surgery , Expert surgeon for management of aortic dissection, aortic aneurysm , vascular manifestations of connective tissue disorders
Aortic Hope
@aortichope
We Spread Hope, Create Awareness and Provide Support to patients, survivors, and caregivers during the recovery and management of aortic disease.
SIMA Asociación
@sima_asociacion
#SIMA es una Asociación Nacional sin ánimo de lucro, formada por los afectados por el #SíndromedeMarfan y sus familiares. Más de 260 familias
VASCERN
@vascern
Gathering the best expertise in Europe to provide accessible cross-border healthcare to patients with rare vascular diseases #ERNeu #RareDiseases
the_lazy_dr🚶
@manasseh_marfo
MD || KNUST-SMS_CO' 24. De_Surgeon's_Apprentice. Cardiothoracic Surgery🫁🫀Enthusiast-Founder of KSMD Surgical HUB. Manasseh_Nana_Yaw_Frimpong_Marfo 🇬🇭
Ourania Preventza
@opreventzamd
Prof. of Cardiac Surgery, Immediate PastPresident ISEVS, Prior CV service line Co Director and chief of CT surgery UVA assoc-staff Texas Heart Institute
Eric E. Roselli
@ericrosellimd
Chief of Adult Cardiac Surgery, #TallRounds Activity Director & Vice Chair of Condition Centers @CleClinicHVTI, Family Man, Michigan Fan (Opinions my own)