Amanda Coughlan (@mandacoughlan) 's Twitter Profile
Amanda Coughlan

@mandacoughlan

Co-Lead of paediatric advocacy group for children with spina bifida and/or hydrocephalus @sbh_pag
Proud mam, healthcare, special needs and disability advocate

ID: 436264349

calendar_today14-12-2011 00:14:56

350 Tweet

517 Followers

1,1K Following

Úna Keightley (@unakeightley) 's Twitter Profile Photo

And the untold stories… Children living in pain & fear Parents begging for care while battling their own cancer journeys Raising siblings, minding grandparents, helping grieving friends Absolute legends. Anthony Keogh #JusticeForHarvey Stephen Morrison Gillian Sherratt

Gillian Sherratt (@gillsherratt23) 's Twitter Profile Photo

While I absolutely do not condone Simon Harris being threatened, it’s even more unacceptable if those threats were made towards his children. However, I do find it interesting how it’s immediately getting a Garda investigation. We have been saying for years that Children's Health Ireland is

Amanda Coughlan (@mandacoughlan) 's Twitter Profile Photo

I advocated for my son & he still became in operable that wasn't a clinical decision that was utter mismanagement of the waiting lists & the government allowing CHI to continuously & systemically our children. No more guessing games we want a statutory inquire #JusticeForHarvey

Amanda Coughlan (@mandacoughlan) 's Twitter Profile Photo

So incredibly proud of Gillian Sherratt & Stephen Morrison , your strength , dignity and grace in what is every parents worse nightmare is just amazing. I'm sure harvey is just so proud of you both 💙 #JusticeForHarvey

Gillian Sherratt (@gillsherratt23) 's Twitter Profile Photo

CHI told the The Late Late Show : “We extend our deepest condolences to Harvey’s family. Many of our clinicians have cared for Harvey his whole life and are deeply affected by his passing. We remain available to meet Harvey’s family if and when they wish to do so…” As far as we

Amanda Coughlan (@mandacoughlan) 's Twitter Profile Photo

We at the Spina Bifida & Hydrocephalus Paeds Advocacy#backus &the The Scoliosis Advocacy Network #BackUs are cautiously optimistic about what this statutory inquiry will look like we commend Gillian Sherratt & Stephen Morrison for their continued dedication to secure this inquiry in the face of such huge loss . #JusticeForHarvey

Amanda Coughlan (@mandacoughlan) 's Twitter Profile Photo

Harvey was never declared palliative he was declared fit for spinal surgery Children's Health Ireland are blocking HSE access to his file & others, the inquiry pending into CHI must be nothing short of a statutory anything less is a complete slap In the face to families Jennifer Carroll MacNeill TD

Harvey was never declared palliative he was declared fit for spinal surgery <a href="/CHI_Ireland/">Children's Health Ireland</a> are blocking HSE access to his file &amp; others,  the inquiry pending into CHI must be nothing short of a statutory anything less is a complete slap In the face to families <a href="/CarrollJennifer/">Jennifer Carroll MacNeill TD</a>
The Scoliosis Advocacy Network #BackUs (@scolionetwork) 's Twitter Profile Photo

We are meeting tomorrow with Simon Harris TD and Jennifer Carroll MacNeill TD. This meeting is of critical importance to every family we and Spina Bifida & Hydrocephalus Paeds Advocacy#backus represent. Over years of advocacy, we have met hundreds of children and families whose lives have been devastated by delays in care

We are meeting tomorrow with <a href="/SimonHarrisTD/">Simon Harris TD</a> and <a href="/CarrollJennifer/">Jennifer Carroll MacNeill TD</a>.

This meeting is of critical importance to every family we and <a href="/SBH_PAG/">Spina Bifida & Hydrocephalus Paeds Advocacy#backus</a> represent.

Over years of advocacy, we have met hundreds of children and families whose lives have been devastated by delays in care
Stephen Morrison (@stephen63224725) 's Twitter Profile Photo

It's been 106 days since I have stepped foot in Harvey's room. It was the 1st thing I did when I got home this evening. I hugged his wheelchair and I cried. Yes, we will see #JusticeForHarvey and all of the innocent children failed by the state ✊

Amanda Coughlan (@mandacoughlan) 's Twitter Profile Photo

Its has been a long drawn out process to get to this point , there has been too much pain suffering & loss experienced by the families we represent we thank them for their trust in us , utter determination and unwavering support . Spina Bifida & Hydrocephalus Paeds Advocacy#backus The Scoliosis Advocacy Network #BackUs #justiceforharvey

Orlaith Maher-Lalor (@lalormaher33771) 's Twitter Profile Photo

The Scoliosis Advocacy Network #BackUs Mick Caul Children's Health Ireland 100%! My daughter waited 8 yrs on the list for Orthopedic adult care @ TH under Lucy’s watch She was never seen Fulltime 🦽user, scoliosis, hip dysplasia, tethered cord, 2 club feet & very porous ankle bones, list closed in Nov 24 with an unanswered referral to the Mater Spinal

Amanda Coughlan (@mandacoughlan) 's Twitter Profile Photo

Hard read but a necessary one for Harvey, for my Tj & for every family who was & continues to be abandoned by Children's Health Ireland in their time of need we will always speak up & do our utmost to ensure these failures are never forgotten & your voices are heard Spina Bifida & Hydrocephalus Paeds Advocacy#backus The Scoliosis Advocacy Network #BackUs