Chronic illness isn't just being tired. It's deciding if a shower is worth the crash. It's planning tomorrow around what today takes from you. It's learning that "small things" can cost everything. That's the part people don't see. @ cfshealth

Fatigue budgeting isn’t laziness. It’s survival. Disabled people plan every day around limited energy: one task means another has to wait, a shower replaces a social life, a hospital appointment wipes out the week. This isn’t poor time management. It’s the reality of living

Important advice here from Martin Lewis to protect your phone and your data

🚨 PSA: Before you judge chronically ill people for: – being at home all day – not working full-time – not earning our own income Remember this: We didn’t choose our illness. Most of us want to be well. We want to work. We want our old lives back.

Chronic illness and disability are full-time jobs. They involve: 🔻 endless medical appointments 🔻 tests, scans, and procedures 🔻 waiting weeks or months for results 🔻 finding new doctors who will actually listen 🔻 managing medications and side effects 🔻 fighting for care,

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When “risk assessments” ignore lived reality, they stop being safeguarding tools. They become weapons. Disabled people are routinely assessed by people who’ve never seen their daily barriers, never stepped inside their home, never understood their condition yet feel qualified

your chronically ill friend... - isn't lazy, they're sick. - isn't "making excuses", they're sick. - isn't flaky, they're sick. - isn't avoiding you, they're sick. - isn't attention-seeking, they're sick. - isn't faking it, they're sick. - isn't "too young", they're sick. -

Disability isn’t rare. What’s rare is a society designed with us in mind. We’re the world’s largest minority, yet policies, buildings, workplaces, transport, healthcare, and culture still treat disability as an exception, an edge case, an afterthought. Disability is part of

Climate planning keeps forgetting one thing: disabled people exist. Emergency evacuations without accessible transport. Heatwave guidance that assumes you can leave the house. Shelters without medical power access. Flood plans that ignore mobility, sensory needs, or care

CHRONIC ILLNESS: 🔻 unrelenting fatigue no nap can fix 🔻 needing to cancel on people you love-again 🔻 pain that moves but never leaves 🔻 living with symptoms that change daily, hourly, unpredictably 🔻 doctors' visits that also lead to more questions than answers ALSO

Time works differently when you’re disabled. Not slower. Not faster. Just… non‑linear. A good day can vanish in an hour. A bad day can swallow a week. Rest isn’t optional, it’s strategy. Planning isn’t simple, it’s survival. For many of us: • Energy is a currency •

What Is a Flare Day? Flare days are unpredictable periods when symptoms of chronic pain or illness intensify. They may include exhaustion, inflammation, muscle pain, joint stiffness, brain fog, or emotional overwhelm. Each person's flare day is unique. There is no "one size fits

So damn wiped out. Chronic fatigue doesn’t just make you “tired.” It eats your day in slow motion. You wake up already exhausted. Basic tasks cost hours of recovery. Plans disappear before they even begin. You end up on the couch wondering wtf happened to your life while the

For many disabled people, losing control of your environment isn’t an inconvenience, it’s a source of real fear. When you rely on equipment, routines, or support, unpredictability isn’t just stressful. It’s unsafe. It’s destabilising. It’s exhausting. Doors you can’t open.

What non‑disabled people call “a quick outing” can take disabled people hours, sometimes days to recover from. It’s not just the event itself. It’s the travel. The sensory load. The pain spikes. The concentration. The social effort. The physical strain. The adrenaline

Many disabled people hide symptoms not because they’re mild, but because judgement is worse than the symptom itself. Masking pain so you’re not called dramatic. Downplaying fatigue so you’re not labelled lazy. Pretending you’re coping so services don’t withdraw support.

Hi All, Since Atlanta left DR we have not been able to take full control of the DR community page, so we have created a new page here. Membership is open at the moment, but once the majority of people have moved over to the new page we will switch back to restricted.