Long Covid Support π
@long_covid
UK Charity β’ Support β’ Advocacy β’ Research Involvement β’ Education β’ Keeping people with #LongCovid at the centre. #CureLongCovid
ID: 1280533623561687043
https://linktr.ee/longcovidsupport 07-07-2020 16:07:01
11,11K Tweet
32,32K Followers
1,1K Following
Landmark Case π¬π§ reported in Lancs Live by Amy Fenton A #forklift truck driver can pursue a claim of disability discrimination after a judge ruled #LongCovid left him #disabled. lancs.live/news/lancashirβ¦ #Disability #Discrimination Jane Ryan Long Covid Support π Dr Elisa Perego
βCould potentially resolve severe symptoms in #COVID19 & possibly #LongCovidβ¦team was able to prevent/treat inflammation, reduce fibrosis & viral proteinsβ¦ In the brain fibrin antibody therapy reduced inflammation & increased survival of neurons in miceβ eurekalert.org/news-releases/β¦
π¨Another wake-up call on dangers of #LongCovid: βWorry grew as her heart palpitations continued, her family claims medics told Rhian the mysterious symptoms were likely stress. Her family now know she suffered an undiagnosed heart complication called myocarditisβ #MedX β¬οΈβ¬οΈβ¬οΈ
π¨Engage and share! Study recruiting: DISCOVerY: The impact of the Covid-19 pandemic on the career progression of researchers lsbupsychology.qualtrics.com/jfe/form/SV_a5β¦ Harriet Carroll: Long Covid Scientific Consultancy Naomi Harvey PhD #WearAMask Long Covid Support π @longcovidSOS RemissionBiome MECFS/LongCovid Self-Experiment
The standard response from Government when asked about #LongCovid care.β¬οΈ Sadly Andrew Gwynne MPβs answer is far removed from patient experience, many of whom feel utterly abandoned by the Government, & displays an utter lack of comprehension of what is needed for #LongCovid healthcare.
April β22 Andrew Gwynne MP wrote this β¬οΈ. Here we are well over 2 years later, there are even more people with #LongCovid, #Covid19 is still rife, yet several #LongCovid clinics have closed or have cut back. The Government - in which Andrew Gwynne MP is Public Health Minister - remains silent.
Interview with Emma Samms MBE: βat some point I had had myocarditis, which has scarred my heart. The consequences of #COVIDβ¦ itβs terrifying to me that people think we are no longer in a pandemic.β #LongCovid #POTS
Yesterday in the House of Lords, 'Covid-19 Inquiry - Motion to Take Note', moved by baroness Merron, 'That this House takes note of the first report from the Covid-19 Inquiry'. Several mentions of #LongCovid theyworkforyou.com/lords/?id=2024β¦ Long Covid Support π @longcovidsos Long Covid Kids - #LongCovidKids
βFolks have no concept of the irreversible damage their #Covid infections are inflictingβ¦ Weβre told thereβs no choice, & since we must βcoexistβ with it, the powers-that-be are literally marketing & normalizing premature death as if itβs our choiceβ β¬οΈβ¬οΈβ¬οΈ #LongCovid
PHOSP-COVID study Dhruv Parekh NIHR Birmingham CRF University Hospitals Birmingham Congratulations! Thanks so much to everyone in the Birmingham team and of course the patients. π So delighted we're now at 13 participants randomised clap π for #phosp-i π #LongCovid Long Covid Support π Nikki S.
βThis is the longest follow-up study of children with SARS-CoV-2 infection, showing a significant and long-lasting burden of Long Covid in the pediatric population. This highlights the urgent need of investing in pediatric Long Covidβ Danilo.Buonsenso_Surf4Children thelancet.com/journals/eclinβ¦
π£ Excellent news that the original decision has been changed and Long Covid Kids - #LongCovidKids will now be a Core Participant in Module 8 of the #CovidInquiry. Children and Young People impacted by #LongCovid will have a powerful voice.
βWithout targeted support particularly in the wider context of the ongoing cost of living crisis, we risk abandoning people with #LongCovid to ongoing financial disruption & potentially, generational inequalityβ Keir Starmer Wes Streeting MP Sir Stephen Timms imperial.ac.uk/business-schooβ¦