Best food for brain

Our greatest glory is not in never falling but in rising every time we fall. - Confucius

One of those #spoonie problems. In fairness you are doing the right thing. You need to weight up cost and energy. Listen to the body and don't over do it for it or the mind and also you.

trim away what no longer serves you ❤️

Isolation in Chronic Illness | Psychology Today psychologytoday.com/us/blog/chroni…

101 years ago today, Leonard Thompson became the first human to receive an injection of insulin, transforming type 1 diabetes from a death sentence into a treatable disease. Grateful for science and hopeful for future scientific breakthroughs to come!

“It is not the strength of the body that counts, but the strength of the spirit.” ~ J.R.R. Tolkien #ChronicPain #ChronicIllness #NervePain #RareDiseases #DisabilityTwitter #CPP #Autoimmune #MentalHealthMatters #Spoonie #Quotes

Bike-mad husband struck down by the same one-in-million disease as Celine Dion walesonline.co.uk/news/uk-news/w…

WATCH | Céline Dion stars as herself in new rom-com amid stiff person syndrome diagnosis news24.com/life/arts-and-… via @news24

patientworthy.com/2023/03/14/emb…

BEST #ChronicIllnes HACK! Everytime you see a new Dr, go to the ER -you have to fill out 20 forms w the same Q's (on 1 line!). This tip COULD SAVE SO MUCH PRECIOUS ENERGY!

“Medical #patients continue being denied treatment for severe #chronicpain, with predictable results. Many—through no fault of their own—face medical collapse. At least hundreds, if not thousands, overcome by their pain, have committed suicide.” buff.ly/3QKJncA #opioids

If you need a smile.. 😊

Have you had trouble getting a #prescription filled for #opioids or other controlled substances? A new #DEA rule allows pharmacies to transfer initial prescriptions to another #pharmacy, so a #doctor doesn't have to write a second prescription. #cpp bit.ly/3sCVwpW

“Seek the Lord and His strength; Seek His face evermore!” (Psalm 105:4)

What’s broken can be mended What hurts can be healed And no matter how dark it gets The sun is going to rise again. 🎬 William Patino

New Celine Dion doc will detail experience with stiff-person syndrome: 'I wanted to document this part of my life' goodmorningamerica.com/culture/story/… via Good Morning America

We’re proud to share that Dr. Piquet, Dr. Dalakas, and Dr. Zekeridou, key contributors to our mission, are serving as Principal Investigators for the KYSA-8 clinical trial. Learn about the trial at stiffpersonsyndrometrials.com or email [email protected] for info.

In this honest and moving account, SPS Patient Julie S. shares what it’s like to lose the life you knew and slowly rebuild something new with courage, community, and care. Read her story here: tinyurl.com/2fcu2v2c #spsawareness #raredisease #SPS

“Pain is soul destroying. No patient should have to endure intense pain unnecessarily." #chronicpain #spoonie