LGMD Awareness Foundation, Inc (@lgmdawareness) 's Twitter Profile
LGMD Awareness Foundation, Inc

@lgmdawareness

A 501(c)(3) advocacy organization dedicated to globally raising awareness of the rare neuromuscular diseases known as Limb-girdle muscular dystrophy (LGMD).

ID: 3310920237

linkhttp://www.LGMD-Info.org calendar_today06-06-2015 18:53:32

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LGMD Awareness Foundation, Inc (@lgmdawareness) 's Twitter Profile Photo

LGMD Awareness Foundation is pleased to be participating in the 2025 MDA Clinical & Scientific Conference in Dallas, TX. If you are attending, we invite you to visit our booth in the Advocacy Pavilion. 💚 #LGMDawareness #TogetherWeAreStronger #CureLGMD

LGMD Awareness Foundation is pleased to be participating in the 2025 MDA Clinical & Scientific Conference in Dallas, TX.

If you are attending, we invite you to visit our booth in the Advocacy Pavilion. 💚

#LGMDawareness
#TogetherWeAreStronger
#CureLGMD
LGMD Awareness Foundation, Inc (@lgmdawareness) 's Twitter Profile Photo

Tomorrow is St. Patrick's Day! ☘️As you make your plans to celebrate ... Girdie wants to remind you to wear #LimeGreen4LGMD awareness and have fun. #TogetherWeAreStronger #LGMDawareness

Tomorrow is St. Patrick's Day!  ☘️As you make your plans to celebrate ... Girdie wants to remind you to wear #LimeGreen4LGMD awareness and have fun.

#TogetherWeAreStronger
#LGMDawareness
LGMD Awareness Foundation, Inc (@lgmdawareness) 's Twitter Profile Photo

Happy St. Patrick's Day! 🍀 Wishing you a day filled with joy and good luck! 💚 From Girdie and your friends at LGMD Awareness Foundation! #LGMDawareness #LimeGreen4LGMD #TogetherWeAreStronger

Happy St. Patrick's Day! 🍀 Wishing you a day filled with joy and good luck!

💚 From Girdie and your friends at LGMD Awareness Foundation!

#LGMDawareness
#LimeGreen4LGMD
#TogetherWeAreStronger
LGMD Awareness Foundation, Inc (@lgmdawareness) 's Twitter Profile Photo

Do you have an upcoming appointment with your neurologist or other LGMD clinician? 💚Perhaps a few of these questions can help your discussion at your next clinic appointment. ➡Download the "Discussion Starters" at lgmd-info.org/knowledge-base… #LGMDawareness #TogetherWeAreStronger

Do you have an upcoming appointment with your neurologist or other LGMD clinician?  💚Perhaps a few of these questions can help your discussion at your next clinic appointment.

➡Download the "Discussion Starters" at lgmd-info.org/knowledge-base…

#LGMDawareness
#TogetherWeAreStronger
LGMD Awareness Foundation, Inc (@lgmdawareness) 's Twitter Profile Photo

This is exciting news from AskBio regarding their gene therapy trial for LGMD2I/R9. 💚Plus, they are still enrolling patients for the second cohort. askbio.com/askbio-advance…

LGMD Awareness Foundation, Inc (@lgmdawareness) 's Twitter Profile Photo

💚 Mark your calendar. Only 6 months until LGMD Awareness Day! 💚 Get ready to join us in shining a light on limb-girdle muscular dystrophy (LGMD). ➡Learn more lgmd-info.org #lgmdawareness #togetherwearestronger #LimeGreen4LGMD

💚 Mark your calendar. Only 6 months until LGMD Awareness Day! 💚

Get ready to join us in shining a light on limb-girdle muscular dystrophy (LGMD).
➡Learn more lgmd-info.org

#lgmdawareness
#togetherwearestronger
#LimeGreen4LGMD
LGMD Awareness Foundation, Inc (@lgmdawareness) 's Twitter Profile Photo

Doctors play an important role in the life of someone diagnosed with limb-girdle muscular dystrophy (LGMD). We would like to take this opportunity to thank the many doctors who assist in the diagnosis, care, and symptom management of individuals diagnosed with LGMD.

Doctors play an important role in the life of someone diagnosed with limb-girdle muscular dystrophy (LGMD).

We would like to take this opportunity to thank the many doctors who assist in the diagnosis, care, and symptom management of individuals diagnosed with LGMD.
LGMD Awareness Foundation, Inc (@lgmdawareness) 's Twitter Profile Photo

Join Girdie at the 2025 International LGMD Conference in Orlando, FL, July 18-25, 2025! ➡Register today …girdlemusculardystrophyconference.com/schedule #CureLGMD #LGMDawareness #2025LGMDconference

Join Girdie at the 2025 International LGMD Conference in Orlando, FL, July 18-25, 2025!

➡Register today …girdlemusculardystrophyconference.com/schedule

#CureLGMD
#LGMDawareness
#2025LGMDconference
LGMD Awareness Foundation, Inc (@lgmdawareness) 's Twitter Profile Photo

#WellnessWednesday Living with a rare condition like LGMD can make you feel isolated in your community, which makes belonging to an online community a valuable lifeline to share stories and advice. shorturl.at/cPPNj

LGMD Awareness Foundation, Inc (@lgmdawareness) 's Twitter Profile Photo

Our LGMD Awareness Swag shop offers clothing, accessories and drinkware for everyone! When you purchase items from this shop, a portion of the sales goes back to helping LAF fulfill our mission, so it's a win-win! Order your swag today at lgmd-info.org/toolkit/lgmd-a… #LgmdAwareness

Our LGMD Awareness Swag shop offers clothing, accessories and drinkware for everyone! When you purchase items from this shop, a portion of the sales goes back to helping LAF fulfill our mission, so it's a win-win!
Order your swag today at lgmd-info.org/toolkit/lgmd-a…
#LgmdAwareness
LGMD Awareness Foundation, Inc (@lgmdawareness) 's Twitter Profile Photo

Advocacy ... So easy even a little kid can do it!📷 Learn more about LGMD and how you can Advocate - Educate - Celebrate by visiting our website lgmd-info.org #LGMDawareness #TogetherWeAreStronger

Advocacy ... So easy even a little kid can do it!📷

Learn more about LGMD and how you can Advocate - Educate - Celebrate by visiting our website lgmd-info.org

#LGMDawareness
#TogetherWeAreStronger
LGMD Awareness Foundation, Inc (@lgmdawareness) 's Twitter Profile Photo

#WellnessWednesday It is vitally important to monitor your health at home. Checking your blood pressure, blood oxygen are just a couple examples of what your doctor may want you to check on your own. Be sure to stay on schedule and reach out to your doctor if anything looks wrong

#WellnessWednesday It is vitally important to monitor your health at home. Checking your blood pressure, blood oxygen are just a couple examples of what your doctor may want you to check on your own. Be sure to stay on schedule and reach out to your doctor if anything looks wrong
LGMD Awareness Foundation, Inc (@lgmdawareness) 's Twitter Profile Photo

Help drive research to a cure! 📷 Consider donating to one of the LGMD organizations that fund vital LGMD research. 📷 Learn more lgmd-info.org/.../communi...… #CureLGMD #LgmdAwareness #LgmdFacts #LimeGreen4LGMD

Help drive research to a cure! 📷 Consider donating to one of the LGMD organizations that fund vital LGMD research.

📷 Learn more lgmd-info.org/.../communi...…

#CureLGMD
#LgmdAwareness
#LgmdFacts
#LimeGreen4LGMD
LGMD Awareness Foundation, Inc (@lgmdawareness) 's Twitter Profile Photo

We are proud to introduce a new LGMD Advocacy Partner, Cure LGMD2T. ➡Read their "Spotlight Interview" at lgmd-info.org/organization/2… #CureLGMD #LGMDawareness #TogetherWeAreStronger

LGMD Awareness Foundation, Inc (@lgmdawareness) 's Twitter Profile Photo

LGMD Awareness Day will be here before we know it. Our website includes everything you need to Advocate, Educate and Celebrate! lgmd-info.org/awareness-day/ #togetherwearestronger #lgmdawareness

LGMD Awareness Day will be here before we know it. Our website includes everything you need to Advocate, Educate and Celebrate! lgmd-info.org/awareness-day/
#togetherwearestronger
#lgmdawareness
LGMD Awareness Foundation, Inc (@lgmdawareness) 's Twitter Profile Photo

Are you headed to the International LGMD Conference this summer? 💚 Order your "Orlando 2025" Girdie swag today! (Good news, international shipping is available) Place your order at LGMD-Info.org/toolkit/lgmd-a… #LGMDawareness #TogetherWeAreStronger #LimeGreen4LGMD

Are you headed to the International LGMD Conference this summer?   💚 Order your "Orlando 2025" Girdie swag today!  (Good news, international shipping is available)

Place your order at LGMD-Info.org/toolkit/lgmd-a…

#LGMDawareness
#TogetherWeAreStronger
#LimeGreen4LGMD
LGMD Awareness Foundation, Inc (@lgmdawareness) 's Twitter Profile Photo

We are sharing from Share Research: We're seeking opinions of those living w/LGMD & parents of children w/LGMD. Our client is interested in gathering feedback on a hypothetical new treatment aimed at improving the lives of those w/LGMD. 1/2

LGMD Awareness Foundation, Inc (@lgmdawareness) 's Twitter Profile Photo

* Receive a $50 Amazon gift card as a thank you for completing the survey Complete our application form: forms.gle/tffJpEUp1ujxTF… **Learn More About SERVE RESEARCH** For additional information please contact Melika Nixon at 256-682-8973 2/2

LGMD Awareness Foundation, Inc (@lgmdawareness) 's Twitter Profile Photo

💚 Happy Easter and Happy Spring! 💚 Girdie, our LGMD Ambassador, hopes you are adding a little "lime green for LGMD awareness" to your weekend plans. #LgmdAwareness #LimeGreen4LGMD #TogetherWeAreStronger

💚 Happy Easter and Happy Spring!

💚 Girdie, our LGMD Ambassador, hopes you are adding a little "lime green for LGMD awareness" to your weekend plans.

#LgmdAwareness
#LimeGreen4LGMD
#TogetherWeAreStronger