Let's cure ACC
@letscureacc
We are the only international advocacy group for Adrenocortical Carcinoma (ACC), created by patients for patients.
linktr.ee/LetsCureACC
ID: 1183112177235968000
http://letscureacc.com 12-10-2019 20:08:30
99 Tweet
154 Followers
68 Following
Michigan Medicine
@umichmedicine
Creating the future of health care through scientific discovery and innovations in education while providing the most effective and compassionate care.
EURORDIS-Rare Diseases Europe
@eurordis
An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.
Innovation Partnerships
@innovpartner
Innovation Partnerships is responsible for bringing inventions arising from University of Michigan research to society.
Society for Endo
@soc_endo
The Society for Endocrinology; tweeting about hormones and the latest Society activities.
Global Genes
@globalgenes
Empowering the Next Generation Rare Disease Advocate. Merged with RARE-X Dec. 2022. #CareAboutRare
La Ligue contre le cancer
@laliguecancer
Association indépendante reconnue d’utilité publique. 💙 Nous soutenir 👉 lncc.info/pe6V
Fondation ARC
@fondationarc
Notre conviction : la recherche vaincra le cancer. Notre objectif : guérir le cancer, tous les cancers !
NET Cancer Day
@netcancerday
Worldwide NET Cancer Awareness Day is an awareness-raising event coordinated by INCA, the International Neuroendocrine Cancer Alliance.
Phillip Yeoh
@pccyeoh
You ll never know until you try!
European Society of Endocrinology (ESE)
@esendocrinology
The European Society of Endocrinology, the voice for endocrinology. At the centre of Europe's endocrine community.
U-M Rogel Cancer Center
@umrogelcancer
The University of Michigan Rogel Cancer Center is committed to improving the health and well-being of people with cancer. Part of @umichmedicine. #GoBlue
Rare Diseases Clinical Research Network
@rarediseasesnet
NIH-funded network fostering collaborative research among 20 teams of researchers, patients, and clinicians, each focused on a group of rare diseases.
michaela luconi
@m_luconi
You cannot hope to build a better world without improving the individuals (Marie S Curie)
Emre SAYGILI,MD
@emre_saygili
M.D.| Internist & Endocrinologist | Assoc. Prof. @onsekizmartuni |
Beacon for Rare Diseases
@rarebeacon
Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.
Judith Favier
@judithfavier
Favier lab - Genetics and Metabolism of Rare Cancers - Deputy director @siricCarpem -vice présidente @SFEndocrino -#paraganglioma #pheochromocytoma
Alliance maladies rares
@alliancemr
Collectif de 240 associations de malades portant la voix de 3 millions de personnes concernées par 7 000 #maladiesrares en France. Besoin d'aide ? 0800 40 40 43
Cristina Ronchi
@cryronchi
@UoB_MSS Associate Professor in Endocrine Oncology @qehbham @uhbtrust Consultant Endocrinologist @ENSAT_news President @EndoOncology Associate Editor
Ljiljana Marina
@ljiljanamarina
MD, PhD Endocrinology | Uni Clinical Centre of Serbia | @ESEndocrinology Clinical Committee | @goharmonisation | Adrenal, Reproduction and Women’s Health
Cambridge Rare Disease Network (CamRARE)
@camraredisease
making #rarediseases an everyday conversation bsky.app/profile/camrar…
Addison's Disease Self-Help Group (ADSHG)
@addisonsuk
The UK charity for all affected by Addison’s disease & adrenal insufficiency. 🗓 29 May: #AddisonsDiseaseDay 🎉#TeamAddisons 📲Learn more: #AddisonsQA
Dipika Mohan, MD, PhD
@dipika_rm
budding endocrinologist, biologist, & former engineer exploring how epigenetics shape cell identity in health + disease. @WashUMedIMRes/@WashUMedEndo PSTP
Endo_Wue
@endowue
Division of Endocrinology and Diabetology, University Hospital Würzburg
Isabel Weigand
@isawe19
Postdoc @LMU_endo
Otilia Kimpel
@otiliakimpel
MD, Clinician Scientist, Department of Endocrinology and Diabetology, Würzburg
Laura-Sophie Landwehr
@landwehr_laura
Natia Vashakmadze
@natiavashakmad1
Bruna Calsina
@brunacalsina
Cancer genomics and clinical genetics at @CNIOStopCancer | Adjunct professor at @UABBarcelona
Hanna Remde
@remde_h
MD / Resident/ Clinician Scientist at University Hospital Würzburg, Department of Endocrinology and Diabetes
Croatian young endocrinologists
@croendoyoung
Croatian young endocrinologists
Martin Reincke
@martin_reincke
Felix Beuschlein
@fbeuschlein
Endocrinologist, Clinical and translational researcher, Head of Department @Unispital_USZ @UZH_ch @felixbeuschlein.bsky.social
European Network for the Study of Adrenal Tumours
@ensat_news
Multidisciplinary network advancing understanding of tumorigenesis & hormone hypersecretion of #adrenal tumours & patient management #ACC #PPGL #NAPACA #APA
VAL Pierre
@pierreval_gred
Group Leader, Molecular Pathophysiology of Adrenal and Endocrine Tissues Experience in mouse models of endocrine tissues diseases @CNRS @GRED_Clermont
HARMONIS@TION
@goharmonisation
CA20122 Dedicated to harmonising clinical care and research on adrenal tumors in European countries
Darko Kastelan
@darkokastelan
Asociación PHEiPAS
@apheipas
🔁 Asociación de pacientes y familiares con #paraganglioma #feocromocitoma y #carcinomasuprarrenal , tumores raros #neuroendocrinos de la glándula suprarrenal
Alfredo Berruti
@alfredoberruti
Professore Ordinario, Direttore Scuola Spec Oncologia, Università di Brescia. Direttore UO Oncologia Medica e Dipartimento Oncologico, ASST-Spedali Civili
Hereditary Endocrine Cancer Group @CNIOStopCancer
@endocrine_cnio
Interested in identifying genetic risk factors involved in endocrine tumour susceptibility, prognostic markers and new approaches to personalize cancer therapy
ToledoLab_VHIO
@rtoledolab
A5_AdrenalAlliance
@a5_adrenal
American-Australian-Asian Adrenal Alliance (A5) advancing science, research, and medicine for all adrenal disorders. #ACC #Pheo #Para #PA #Nodules #AI & more
Birmingham Adrenal Team
@bham_at
Birmingham Adrenal Team bringing together @uhbtrust clinical activity, @MSS_UoB @unibirm_MDS research and education on #Adrenal diseases. Views our owns.
Euro J Endocrinology
@ejendo
EJE contains clinical and translational research and reviews on #endocrinology. The journal of @ESEndocrinology and published by @OxUniPress
JCO Global Oncology
@jcogo_asco
Cancer care, research and care delivery issues unique to countries and settings with limited healthcare resources. Part of @JCO_ASCO family of journals.
Joakim Crona, MD
@cronajoakim
Oncology Resident, Endocrine Tumor Researcher and Climate Activist (professional account)
RARE Revolution Magazine
@rarerevolutionm
Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]
Kate Warde, PhD
@katewarde
Postdoc @huntsmancancer researching adrenal cancer and aging | @leadingedgesymp 2024 Fellow Pharmacology PhD @irishresearch | 🇮🇪 in 🇺🇸| (she/her)
Jaydira Del Rivero, MD
@jaydidelrivero
Medical Oncologist/Endocrinologist/Physician Scientist @NIH. #NeuroendocrineTumors #NETs #NECs #ACC #PheoPara #PatientAdvocate #Rxtrials. All views are my own.
matthiaskroiss
@matthiaskroiss
Stand with 🇮🇱! Endocrinologist and researcher, clinical trialist. Franconian in Bavaria.
Irina Bancos
@irinabancos
Adrenal endocrinologist