Penn FTD Center’s co-director @PennBiNDLab honors the late Dr. Grossman and his achievements at the ALLFTD Investigator Meeting 2023 in Denver, Colorado this past weekend.

Happy #DNADay23! It truly is the perfect date.

(1/2) Another victory for the ALS community! Tofersen is the second treatment approved for ALS in less than a year and the third since 2017. This gene-based therapy is approved for treating people living with SOD1-ALS. Thanks to the entire community for your advocacy!

📣 Latest news! 📣 The U.S. FDA have approved #Tofersen for the treatment of #SOD1 #MND in the US. This approval is based off data from the Phase 3 VALOR clinical trial. Mutations in the SOD1 gene account for ~2% of all MND cases. Find out more ⬇ mndassociation.org/research/lates…

In honor of #dnaday, we’re reflecting on the late Dr. Grossman’s work as a major contributor to the study of familial FTD by pioneering genetic counseling & outreach to families at risk for early-onset neurodegenerative disease. Learn more from our center: med.upenn.edu/ftd/ftd-geneti…

Excited to share this wonderful tool for the ALS community that the Les Turner ALS Foundation Foundation created! It was an honor & pleasure to work with them on this project. Looking forward to more collaborations to promote access to & education about genetics care! lesturnerals.org/genetic/about-…

READ: 🧬"The lived experience of reconstructing identity in response to genetic risk of frontotemporal degeneration and amyotrophic lateral sclerosis." by #geneticcounselor Laynie Dratch, ScM CGC and fellow Penn FTDC researchers. Read here: onlinelibrary.wiley.com/doi/10.1002/jg…

🌍 Today marks the beginning of World FTD Awareness Week – a global call to #endFTD. The theme for today is self-care. Whether you're a caregiver, someone with a genetic link to FTD, or directly impacted by it, prioritizing your well-being matters. Here's how you can join in: 1️⃣

Join us in person or online, Nov. 29th, 9AM-7PM EST for the Murray Grossman Memorial Symposium in honor of Penn FTDC founder Dr. Grossman. This event will feature scientific talks from former trainees and close colleagues. Registration and more info here: pennftdcenter.org/murray-grossma…

Having an inspiring and bittersweet day at the Penn FTD Center memorial symposium for Murray Grossman. Here is some of Murray’s wisdom from @PennBiNDLab’s opening remarks for those who weren’t lucky enough to train with him.

"Having somebody understand what you're going through and explain it to you in ways that you can understand changed my life." Check out Penn FTDC genetic counselor Laynie Dratch, ScM CGC's interview with Action News on 6abc on the life-changing benefits of genetic testing: iqmediacorp.com/ClipPlayer/?Cl…

Great session! EndTheLegacy Les Turner ALS Foundation Sano Genetics Paul Wicks Laynie Dratch, ScM CGC So proud to have supported this incredible work to increase access to testing and linking to support and trials for the genetic at risk community! #atriskALSFTD #ALS #FTD

SOD1 EndALS EndTheLegacy Les Turner ALS Foundation Sano Genetics @PaulWicks Laynie Dratch, ScM CGC Cheers to the hard work done by all 3 presenters and their teams!

So grateful to have had the chance to present about ALS/FTD genetics & increasing access to genetics education and care at the Allied Professionals Forum ALS/MND Alliance with wonderful colleagues Lauren from Les Turner ALS Foundation and Paul Wicks from Sano Genetics!

Enjoying the ALS & FTD communities coming together at the ALS/MND meeting with a great talk from @PennBiNDLab #alsmndsymp Penn FTD Center

Neurology Podcast: Dr. Gordon Smith & Laynie Dratch discuss integrating genetic testing into patient care for persons with #ALS & frontotemporal degeneration spectrum disorders. Listen now: bit.ly/47OlKFI Article: bit.ly/3RHxLaF A. Gordon Smith, MD Laynie Dratch, ScM CGC

What I love about this? It’s 💯 USEFUL and PRACTICAL - including acknowledging that sometimes Neurologists have to take a role genetic testing, given the shortage of genetic counselors - and Laynie Dratch, ScM CGC helps us to get started!

Join us for our 4th annual virtual familial conference, Uncovering the Genetics of Familial FTD/ALS, on Wed., Feb. 21st, from 3PM-6PM EST. Hear from genetic counselors, neurologists, & social workers on the genetics of FTD/ALS. More info here: pennftdcenter.org/familial-confe…

Have you ever considered genetic testing but aren't sure if it's right for you? Join our January ALS Learning Series with Laynie Dratch, genetic counselor at Penn FTD Center . She will discuss the role of a genetic counselor, and address common questions buff.ly/3SlcMdS

On Jan. 31st, Les Turner ALS Foundation will chat with genetic counselor Laynie Dratch, ScM CGC about the role of a genetic counselor and address common questions about the genetics of ALS-FTD spectrum disorders, the genetic testing process, and more. Register here: register.gotowebinar.com/register/23326…