Kym Winter
@kymfwinter
CEO of @raremindscic. Psychotherapist working with rare disease communities, including those impacted by NET cancers and genetic endocrine disorders
ID: 1287275529905856512
http://www.kymwintertherapy.co.uk 26-07-2020 06:36:27
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83 Followers
97 Following
Paul Guijt
@paulguijt
Oud ZFR, CVZ, RIVM: kwaliteit van zorg en preventie. Zeldzame ziekten en ICT. Natuur en Slovenië.
sharon kotchkowski
@sharonjoyk
Owner of New Image Hair Salon in NJ Graciously trying to live with rare, neuroendocrine cancer,and recurrent endometrial cancer, navigating US healthcare.
Castlebales
@castlebales
CarcinoidCancer CCF
@carcinoidnets
The Carcinoid Cancer Foundation is the premier resource & website for up-to-date, comprehensive carcinoid and neuroendocrine tumor (NET) information.
pj lincoln 🦠0. 💉💉 💉 💉. 😷
@whammopammo
Jacque of all trades, Master of Public Health. @ChurchillTrust Fellow. GAICD. Chevalier of Ordre des Coteaux de Champagne. Wine Producer. Crazy about Vermouth.
Richard Young
@mattenrod
ChristinaMalcolm-Day
@thereal_beanie
Always be true to yourself 💯% #PROUD🏳️🌈 #allotmentgeek #pizza🍕 #dogs💞 #SPURS #ADHD #NC🦓
Louise Fish
@louisefish1
Chair of Rare Disease Advisory Group (RDAG), former CEO at Genetic Alliance UK and TSA. Passionate about improving health and social care. All views my own.
Beyond the Diagnosis
@beyondthedx
Beyond the Diagnosis unites art and science to raise awareness for children living with life-altering diseases.
Child Growth Foundation
@childgrowthuk
Going forward the Child Growth Foundation will not be posting here on X. You can find us on a number of alternative social media platforms.
Dr. Joseph Keenan 🏳️🌈
@josephkeenan4
Senior Lecturer at MMU. My research places focus on areas of health psychology, behaviour change, implementation science & longitudinal qualitative research.
Questioning
@whyonhere
Ongoing
Rhys Holmes
@rhysholmes
Brain Tumour survivor, hydrocephalus, previous CSF Leak and now battling the rare neurological disease, superficial siderosis.
Elizabeth & Steve
@ukandbeyond
Loving life. Travelling UK and Beyond. On and off and Harley-Davidson Keeping that frown upside down and smiling everyday
paul anderson
@help_laura_heal
help me save my wonderful wife
yellowhead
@tayfuncinleti
Alport UK
@alportuk
Alport UK is a patient-led organisation dedicated to empowering people living with Alport Syndrome to enjoy the best possible quality of life.
Norma Jean McDaniel
@normajeanmcd
IRL Gen X desert chick. If I dig, I post. Enjoy biz, snark, interviews, wit, true crime, space. I test analytics here, too. Not a bot 😜. Just hangin' w u
Dr. Kathleen Bogart 🦓
@kathleen_bogart
Social/health psych prof: #Ableism #DisabilityPride #FacialParalysis #RareDisease. Writer/speaker: @PsychToday @TEDx @ScienceMagazine. Founder: @DARN_Disability
NCAN
@netcanceraware
Neuroendocrine Cancer Awareness Network
NET CONNECT
@net_connectinfo
COR2ED brings you Independent Medical Education developed by NET CONNECT, international experts in neuroendocrine tumours.cor2ed.com/community-guid…
Breaking Down Barriers
@barriersdown
BDB is a network of organisations working together to improve the lives of people from marginalised communities and addressing health inequalities.
CEvans40
@evans40c
Long after the mind forgets the details, the heart still remembers the feelings.
the_scouse_scientist
@scientistscouse
Liverpool. Oxford Uni. NHS Scientist Training Programme. Registered Clinical Scientist in Genomics. Aiming to break stereotypes, educate & inspire #womeninstem
Aruj Singh
@arujsingh8
I am a indiyan.
MANZI Ndamukunze
@mndamukunze
Renforcement des Capacités - AT en finance inclusive (capacity building-TA in i.f.) Engaged for Persons Living with a Rare Disease (PLWRD) with CENTRE-ALLIANCE
Remainly
@remainlyuk
All #couples can benefit from seeing their #relationship from a few new perspectives. Both in good and in challenging times.
Endocrine Oncology
@endooncology
An #OpenAccess, peer-reviewed journal from @Soc_Endo & @bioscientifica. Publishing research & reviews on hormone-related cancer & cancers of #endocrine organs.
Rareminds
@raremindsuk
Specialised mental health and wellbeing services for the rare disease community. bit.ly/rarementalheal…
Timothy Syndrome Alliance (TSA)
@tsa_charity
Dedicated to improving the diagnosis, treatment & care of those living with #CACNA1C-related disorders inc. #TimothySyndrome and #LongQT8. @cacna1c.bsky.social
Ghulam Rabbani
@ghulamr51993305
Life is hard. It's harder if you're stupid.
AMEND Info USA
@amendinfousa
We’re here to connect those who are impacted by MEN disorders–patients, family, friends, and providers–with useful resources.
İbrahim Dinçarslan
@ibrahimdinc27
Sosyal Hizmet Uzmanı/ Tarsus Üniversitesi-Sosyal Hizmet Tezli Yl #SocialWorker
Alexander Hamilton
@alexand68576084
Erilane Santos
@erilaneramos22
anim eric
@ericanimeric9
I’m loving and caring ❤️🌷
Patrick Toland
@ceonirdp
Jo Grey 🇺🇦🇪🇺🇬🇧
@jogrey2022
AMEND Charity CEO (@AmendInfo) and MEN2 patient. Own views. Love Beagles, dogs generally and holidays. Hate climate change, Brexit, war and racists.
Pam Slater
@pamslater26
Raising awareness of FOXP2 & CAS (Childhood Apraxia of Speech), a rare neurological speech disorder. #14daysofdvd @GivingVoice Award. Medics4RD Pt Ambassador
raising_rareness (Lyndsey Walsh)
@raisingrareness
Mum of 3 Raising awareness of rare diseases & conditions #2q24.2 Advocating for my daughter & Rare Community 💗 #AAC MA Archaeology UCC Opinions my own
Maxine Patterson 💙#mindthegap
@maxinepatter46
Patient73 Foundation
@patient73org
At P73, our focus is on creating a comprehensive ecosystem of communications and tools dedicated to #RareDiseases #EnfermedadesRaras
ACTA2 Alliance
@acta2alliance
Supporting families living with Multisystemic Smooth Muscle Dysfunction Syndrome #MSMDS #UltraRare #ACTA2 mutation bit.ly/donation_gene_…
Ambrose-William
@ambrosewi58336
John Bradley
@johnbradle74804
I fight for peace and justice for the Nation
Lynn Findlay
@lm_findlay
Therapist who runs. Counsellor/ Independent Social Worker/Safeguarding consultant (when not running) #Running 🏃♀️ Passionate about movement for mental health
Affinityhub.uk
@affinityhub_uk
Emotional support for #parentcarers affinityhub.uk @Griffinpsych Parent Carer, Psychologist & Researcher BOOK ‘Day by Day’ ➡️ amzn.to/3k1NReK
Teodora Kolarova
@teodorainca
Jana Gurasashvili
@janagurasashvi1
Headlines Craniofacial Support
@headlinescranio
Supporting all those affected by craniosynostosis and rare craniofacial conditions. Registered charity in England & Wales no. 1058461 and Scotland no.SCO50262