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I love that every wee piece of this limestone is unique 🖤

I am now among those with #MECFS who have run out of energy to talk. But I will keep shouting on this birdie app for #MECFS

And no, this doesn't say anything about #LongCovid directly, but it does seem from other ONS data that new LC cases are also rarer. + SARS-CoV-2 remains a risk (fatality & #LongCovid ) for at-risk groups such as immunocompromised, and people with #MECFS and prior #LongCovid

Rarely have so few caused so much harm to so many and been so richly rewarded for it.

If you suffer from Long Covid in the UK and struggle to be believed and treated, this is why.

Despite a small sample size, our pilot study on the urine metabolome turned out to be much more interesting than we expected. ME/CFS subjects lack a large number of significant changes in the metabolome that occur in controls in response to exercise.

Binita Kane Some of my first serious symptoms, in 2008. You can't get anywhere explaining that to physicians, they are simply rejected as irrelevant. This has been reported for decades by millions with chronic illness, none of this is new. Always mocked, gaslighted, fully discriminated.

#pwLC #LongCovid #LongCovidKids Please avoid boom 💥 and bust 🛌 cycles, especially in the first few months when most likely to recover. ⚠️ Doing stuff until you crash then resting and repeating? 👎 If you have #PEM and have the opportunity to rest please do it radically! 🙏🏻

Wading through treacle @LongCovidDuchy 2002 ages 15. It was very isolating and there was none of the access to information from peers that people with LC one here have benefitted from. And no streaming services! I had a handful of videos and that was it. No (digital) social interactions, nothing.

Please retweet if you have an interest or are suffering from Long Covid.

Wading through treacle @LongCovidDuchy I’m guessing that most people have seen this article from 1990 that mentions many, but far from all, of the early activists and researchers in the US. Many are gone, but they should all be remembered. They paved the way. newsweek.com/chronic-fatigu…

#pwLC If you try 100 "things" and spend a shit load of cash and you're still not recovered don't let ANYONE gaslight you for not trying hard enough, including yourself. 💙

Except sadly ME/CFS does kill. 🖤

I look like I've aged more in the last 3 years than I have in the last 30. I was always kinda youngish looking for my age but now I don't recognise myself. Major cardio thoracic surgery, progressive ME, ongoing pandemic, vax injury, grief, housing issues all taking their toll.

For #NationalPoopDay here’s a wee game of “spot the jobby”💩 This is Henry de la Beche's 1830 watercolour, Duria Antiquior (“a more ancient Dorset”), & if you look closely you’ll notice that some of the animals have been immortalised in the middle of taking a poop 💩