Today we said goodbye to a truly beautiful soul. It’s an honour to have had such a wonderful friend in my life. I woke up & reflected on our fun times with this adorable mug she sent me, wore my bracelet with pride and so happy to see so many celebrate her life today x

I can not express how difficult it is to lose an amazing friend & to not be able to hug another friend at the service because they are pre transplant and needing to pay attention to infection risks. It’s just so wrong. You leave feeling empty, want to say it will be ok 😢

I DID IT! Lung function is up, up, up! 💪🏻 _ Yesterday I had my annual review at my cystic fibrosis clinic. An 8 hour day of blood tests, lung function tests, an ultrasound, lots of questionnaires, and chats with my physio, dietician, specialist nurse… ift.tt/2Lw2lzL

Here you go Richard Branson Anyone ever lifted 3 of your 747’s in 24 hours? 💪 #cysticfibrosis #1MillionKiloChallenge #24hrs4cf x.com/itvwales/statu…

1/2 It is scandalous that so few of the people with CF in the UK who are eligible for Orkambi on compassionate use are actually getting it. CF consultant Gordon McGregor speaks out about his frustration #OrkambiNow x.com/daily_record/s…

Please meet our gorgeous friend George who received the gift of a double lung transplant due to #cysticfibrosis. George shares her story this #cysticfibrosisawareness month in the hope you will #shareyourwishes about your #organdonation decision. facebook.com/sharingyourwis…

Invisible sufferers of #CysticFibrosis parents siblings grandparents. #orkambi would relieve this. #orkambinow x.com/elizabe4604539…

Amazing news x.com/stephenb_80/st…

Keeping myself busy at clinic by doing an ice cream run for patients on the transplant ward >kim

Hard news to share but I want to finally get it out there ❤️

Sometimes reality sucks. It could be a lot worse, so am just thankful for some stability right now :) #cysticfibrosis #transplant #onlyabitofrejection

Human organs become Fabergé eggs in Brazilian donation drive. Embracing the concept of ‘who will inherit your greatest wealth’, the print ad campaign for Moinhos de Vento Hospital seeks to improve donation rates by equating precious organs to expensive jewelery. A fantastic idea!

To all those stuck in hospital today. May the fourth be with you! #MayTheFourth #cysticfibrosis #transplant

Sometimes what is needed is pizza to be ordered for the whole cf ward, patients & staff to boost morale. Am very glad to have the opportunity to do something like this through #Cwtchesfromkim

Tribute to a wonderful friend #CysticFibrosis #organdonation #transplant ❤️

Last night, over 3000 people registered to join NHS Organ Donation 💗🫀🫁 in 4 hours. ‘Transplant: A Chance to Live’ follows seven people in desperate need of a heart while they wait for a donor heart to become available. Catch up now on BBC iPlayer bbc.in/2ryMWW3 #hearttransplant

Around 1000 children w/ #cysticfibrosis & families have written to Theresa May to ask Govt to act for #OrkambiNow. Today, campaigner Fight4Orkambi & her daughter Ivy handed them in to UK Prime Minister w/ Public Affairs Officer, Grace Paget and Gemma & Ivy's local MP Penny Mordaunt

About to go on BBC Radio Solent to talk all things #cysticfibrosis and Caden's Fight! ❤️😍👏 Cystic Fibrosis Trust cf/Aware

#cysticfibosis also a great website to encourage fitness & do workouts with others online :) x.com/pactster_cf/st…