Turns out our geologists don't have any takes on the Kate Middleton situation because they live under a rock

Will not be signing. 1) STOP using "associated conditions"--it erases US! Asking for “associated conditions” to be added to legislation is unhelpful. 2) STOP referring to our DISEASE as a "condition". Minimizes everything. 3) STOP calling us patients. We are people.

This would win so many awards.

Welcome to life as a Phillies fan, complete with the extra inning walk-off to make it all worthwhile.

Shout out to This Podcast Will Kill You for their two most recent episodes, one on Long Covid and another on #MECFS! Both eps feature first person stories, and both provide an excellent science/social overview. Here’s the link for the ME episode: thispodcastwillkillyou.com/2024/04/16/epi…

This is an extraordinary honor and It'sME(Jaime) deserves every bit of it. Jaime’s scientific perspective and skills are top tier, but her dedication and determination to fight on behalf of all of us is just as key to all the progress she has helped make.

The current conceptualization of RECOVER-ENERGIZE fails to reflect the reality of PEM and how strategies to balance activity with rest are used to manage PEM. So, not only is the trial unrealistic, it's unlikely to balance risks and harms to participants. It shouldn't pass IRB.

Our next Renegade Research Research roundtable is Thursday May 23rd. The topic is "T-cell dysfunction in #MECFS and #LongCovid " with researchers Liisa K. Selin, MD PhD; Anna Gil, PhD, viral immunologists from the University of Massachusetts Chan Medical School Roshan Kumar, PhD,

Such great testimony by Terri Wilder and Nothing. Has. Changed.

Mother's Day is bittersweet for me. I was blessed with a wonderful mother and grandmothers, but I was not able to become a mom myself. It's ok for things to be complicated. Whether you have a painful or a happy Mother's Day (or a bit of both), I see you and I'm thinking of you.

If you can, please give davidtuller a hand and contribute to his crowdfund campaign!

Jennie Spotila’s investigative work over the past two decades has been extraordinarily helpful to the #MEcfs community. Without her we wouldn’t have fully understood what was going on with the NIH and its utter neglect and abandonment of the ME community. Thank you Jennie Spotila !!

Jennie Spotila Matt Lazell-Fairman María Richardson Daniel Lewis (but with Long COVID) It'sME(Jaime) Rivka Wilhelmina Jenkins Royal Free 1955 Tapanui 'Flu | @tapanuiflu.bsky.social mary dimmock 🔥 Me too, Jennie Spotila. occupyme.net/2017/11/01/%EF… “If Dr. Nath is completely unaware that people – including government scientists – have used the word “tired” to belittle, demean, & dismiss people with ME, then the NIH communications team needs to get on that and educate the man.”

This! "Only heavy public pressure will lead to change" how NIH responds to post-viral syndromes

MEinSeattle Terri Wilder More on Dr. Collins Jennie Spotila by Jennie Spotila from 2018. All The Time and None At All occupyme.net/2018/04/25/all… #MEAction Network @NIHDirector It'sME(Jaime) ME Awareness Hour #myalgicencephalomyelitis #mecfs #neisvoid

Believe in yourself like visitors who believe they can pet a bison.

Don't believe the New York Times: Piranesi and Jonathan Strange & Mr Norrell are two of the best novels of the century. And today they're both on sale for kindle. If you haven't yet read these extraordinary books, now is your chance.