Joey's Wings Foundation (@joeyswings) 's Twitter Profile
Joey's Wings Foundation

@joeyswings

We fund research on MiT family translocation renal cell carcinoma in children and young adults.

ID: 844574026156564484

linkhttp://www.joeywings.org calendar_today22-03-2017 15:38:34

99 Tweet

126 Takipçi

108 Takip Edilen

Joey's Wings Foundation (@joeyswings) 's Twitter Profile Photo

Congress cut Give Kids A Chance Act, Priority Review Voucher Act, & Accelerating Access to Care Act. None required Federal Funding. The Childhood Cancer community is devastated! This must be first order of business to correct in the 119th Speaker Mike Johnson John Thune Hakeem Jeffries

Congress cut Give Kids A Chance Act, Priority Review Voucher Act, &amp; Accelerating Access to Care Act. None required Federal Funding. The Childhood Cancer community is devastated! This must be first order of business to correct in the 119th <a href="/SpeakerJohnson/">Speaker Mike Johnson</a> <a href="/johnthune/">John Thune</a> <a href="/RepJeffries/">Hakeem Jeffries</a>
Joey's Wings Foundation (@joeyswings) 's Twitter Profile Photo

Give Kids A Chance Act, Priority Review Voucher Act, & Accelerating Access to Care Act required no Federal Funding & failed to pass in Senate. We are devastated! This must be first order of business. #FixIt4Kids #ChildhoodCancer can’t wait Speaker Mike Johnson John Thune Hakeem Jeffries

Give Kids A Chance Act, Priority Review Voucher Act, &amp; Accelerating Access to Care Act required no Federal Funding &amp; failed to pass in Senate. We are devastated! This must be first order of business. #FixIt4Kids #ChildhoodCancer can’t wait <a href="/SpeakerJohnson/">Speaker Mike Johnson</a> <a href="/johnthune/">John Thune</a> <a href="/RepJeffries/">Hakeem Jeffries</a>
Joey's Wings Foundation (@joeyswings) 's Twitter Profile Photo

The inaugural Kidney Cancer Patient Summit in San Diego. This event brings together leading kidney cancer experts, patients, and caregivers for a day of learning, networking, and sharing stories of hope. Register here: bit.ly/UCSD_Summit #JoeysWings #UCSDkidneycancer

The inaugural Kidney Cancer Patient Summit in San Diego. This event brings together leading kidney cancer experts, patients, and caregivers for a day of learning, networking, and sharing stories of hope.

Register here: bit.ly/UCSD_Summit
#JoeysWings #UCSDkidneycancer
Srinivas Viswanathan (@srviswanathan) 's Twitter Profile Photo

🚨 New study! 🚨Excited to share our research on #translocationRCC #tRCC published in Nature Metabolism, in collaboration with @lironbarpeled. We reveal how the TFE3 fusion drives a key oxidative phosphorylation (OXPHOS) metabolic program in this kidney cancer. 1/ Dana-Farber News

🚨 New study! 🚨Excited to share our research on #translocationRCC #tRCC published in <a href="/NatMetabolism/">Nature Metabolism</a>, in collaboration with @lironbarpeled. We reveal how the TFE3 fusion drives a key oxidative phosphorylation (OXPHOS) metabolic program in this kidney cancer. 1/ <a href="/DanaFarberNews/">Dana-Farber News</a>
Joey's Wings Foundation (@joeyswings) 's Twitter Profile Photo

Thrilled to announce Pediatric Kidney Cancer Focus Awards – $75,000 in partnership with Kidney Cancer. Required Focus: Pediatric kidney cancer, specifically translocation RCC Apply at joeywings.org/grant/

Thrilled to announce  Pediatric Kidney Cancer Focus Awards – $75,000 in partnership with <a href="/KidneyCancer/">Kidney Cancer</a>.
Required Focus: Pediatric kidney cancer, specifically translocation RCC Apply at joeywings.org/grant/
Sumanta K. Pal, MD, FASCO (@montypal) 's Twitter Profile Photo

Hats off to Rana McKay, MD, FASCO for setting up the first #KidneyCancer Patient Summit at UC San Diego Health Moores Cancer Center. Not a dry eye in the room when Joey's Wings Foundation highlighted the touching story of her son's battle with tRCC to kick off the day. Encouraging words from Bryan Lewis on what we can do to

Hats off to <a href="/DrRanaMcKay/">Rana McKay, MD, FASCO</a> for setting up the first #KidneyCancer Patient Summit at <a href="/UCSDCancer/">UC San Diego Health Moores Cancer Center</a>. Not a dry eye in the room when <a href="/Joeyswings/">Joey's Wings Foundation</a> highlighted the touching story of her son's battle with tRCC to kick off the day. Encouraging words from <a href="/advocatekidneys/">Bryan Lewis</a> on what we can do to
Joey's Wings Foundation (@joeyswings) 's Twitter Profile Photo

Origami cranes at the Kidney Cancer Patient Summit with UC San Diego Health Moores Cancer Center. It’s truly a blessing to have passionate and devoted kidney cancer researchers in our area, working tirelessly to improve patient outcomes! Wish cranes bring the guests comfort & peace.

Origami cranes at the Kidney Cancer Patient Summit with <a href="/UCSDCancer/">UC San Diego Health Moores Cancer Center</a>. It’s truly a blessing to have passionate and devoted kidney cancer researchers in our area, working tirelessly to improve patient outcomes! Wish cranes bring the guests comfort &amp; peace.
Joey's Wings Foundation (@joeyswings) 's Twitter Profile Photo

Please help us spread the words! Head over to trccproject.org to register to join us for an informative 1-hour session on Count Me In’s newest patient-partnered research initiative of the Broad Institute: the Translocation Renal Cell Carcinoma (tRCC) Project.

Please help us spread the words! Head over to trccproject.org to register to join us for an informative 1-hour session on Count Me In’s newest patient-partnered research initiative of the Broad Institute: the Translocation Renal Cell Carcinoma (tRCC) Project.
Count Me In (@count_me_in) 's Twitter Profile Photo

CMI launched a research initiative for patients with translocation renal cell carcinoma (#tRCC). Physicians treating individuals with tRCC can help by sharing this opportunity with patients. Learn more at trccproject.org and request materials here: bit.ly/tRCCRequest

CMI launched a research initiative for patients with translocation renal cell carcinoma (#tRCC). Physicians treating individuals with tRCC can help by sharing this opportunity with patients. Learn more at trccproject.org and request materials here: bit.ly/tRCCRequest
Gabriel Malouf (@gabrielmalouf) 's Twitter Profile Photo

Our latest study in EMBO Mol. Medicine reveals how TFE3 fusions drive oxidative metabolism and ferroptosis resistance in translocation renal cell carcinoma (tRCC). We define tRCC as a novel metabolic subtype of renal cancer. IGBMC - Srinivas Viswanathan 🔗embopress.org/doi/full/10.10…

UC San Diego Health Moores Cancer Center (@ucsdcancer) 's Twitter Profile Photo

Another peek into the transformative Kidney Cancer Patient Summit — where stories, science and support came together. Thank you to Joey's Wings Foundation for the videography and support: bit.ly/420i4QS.

Michael Serzan, MD (@mikeserzanmd) 's Twitter Profile Photo

🗣️Kidney Cancer Oral Abstracts #ASCO25 👉Abs4521: Dr #JAmesGeller presenting Nivo/Axitinib vs Nivo in pts with translocation RCC #AREN1721 🩺Clinical implications: - Nivo/Axitinib (n=6) showed early efficacy ORR 33% and mPFS 10mo - #TranslocationRCC remains a disease of unmet

🗣️Kidney Cancer Oral Abstracts #ASCO25

👉Abs4521: Dr #JAmesGeller presenting Nivo/Axitinib vs Nivo in pts with translocation RCC #AREN1721

🩺Clinical implications:
-  Nivo/Axitinib (n=6) showed early efficacy ORR 33% and mPFS 10mo
- #TranslocationRCC remains a disease of unmet
Count Me In (@count_me_in) 's Twitter Profile Photo

Missed the live session? Watch the webinar recording at the link in our bio, introducing the tRCC Project- a patient-partnered research initiative focused on translocation renal cell carcinoma. #tRCC #PatientPartneredResearch #KidneyCancer

Joey's Wings Foundation (@joeyswings) 's Twitter Profile Photo

Much respect to Srinivas Viswanathan recipient of Kidney Cancer Innovation/Discovery Grants! Rare subtype like tRCC often received less funding and attention. It takes dedication, creativity, and compassion to tackle diseases that are poorly understood and harder to treat. #KCRS25

Much respect to <a href="/srviswanathan/">Srinivas Viswanathan</a> recipient of Kidney Cancer Innovation/Discovery Grants! Rare subtype like tRCC often received less funding and attention. It takes dedication, creativity, and compassion to tackle diseases that are poorly understood and harder to treat. #KCRS25
Joey's Wings Foundation (@joeyswings) 's Twitter Profile Photo

Life can be incredibly cruel. 14, what a beautiful age. Austen from Missouri was diagnosed with TFE3 rearranged PEComa overlapping with tRCC only 5 months ago. She passed away this morning. This hurts like hell.

Life can be incredibly cruel. 14, what a beautiful age. Austen from Missouri was diagnosed with TFE3 rearranged PEComa overlapping with tRCC only 5 months ago. She passed away this morning. This hurts like hell.
Gabriel Malouf (@gabrielmalouf) 's Twitter Profile Photo

The Malouf Lab at IGBMC (Strasbourg, France) is recruiting a postdoctoral researcher to join a translational research program focused on rare and treatment-resistant kidney cancers. 🔗 Full details here: igbmc.fr/en/job-offers/… Let’s build something meaningful IGBMC Students and Post-docs Board (SPB)