So many deaths of our disabled loved ones could have been prevented and/or their final days could have been in comfort with support. This drives much of my work, to publish and share our stories, to document our wisdom, to leave something behind for future generations

I'm happy that white disabled people can be open about their disabilities and receive support and love. At the same time, I wish that I, a Black disabled woman never got hate or accusations of faking or exaggerating my disabilities for being open about my disabilities.

we really lost a world of a person.

It's still so hard to believe we lost such an incredible, kind, funny and wonderful human a year ago. She deserved so much better.

#ForTinu forever. Missing her, so many of us are (& have been). So many acutely feeling reminders right now - the quality of light, our internal and external calendars. If you want to watch the video of the service, Brooke has put this together. It's beautiful.

My cup is so full with hope and joy right now 💙

Made it to my 30th birthday!!! 🥳🎂🥰🥹

I'm heartbroken to hear of Leslie's passing. I'm tired of seeing the world try to move on from Covid while our comrades suffer and die. Leslie's advocacy and voice mattered to a lot of us and he will be missed beyond words gofundme.com/f/lleeiii?lang…

RIP Alice Wong Alice was such an amazing person, advocate, writer, etc and it’s so saddening to hear of her passing 🫂

for those that don’t know, on top of the incredibly difficult news in the community today, i’ve mentioned here that my Mother-in-law has been fighting terminal breast cancer. we cared for her on hospice and it was very challenging. she has passed away as well. so much loss.

Every time a disabled person dies there’s someone saying we should have expected it. No, we do not see early death as a foregone conclusion in disabled people’s lives.

I’m often at a loss for words these days so forgive me as I fail to capture the impact both Leslie & Alice had on my life. I am blessed to have been in their spheres, grateful for their impact and selfishly sorry at the loss of these wonderful people. Safe travels. xo

We have to make sure to keep Alice’s vision ongoing. To uplift crip writing and art. For disability visibility.

Hello!! Here's my Ko-Fi goal to help with my surgery costs! The surgery itself is covered but stuff like the nasal splints (300$) & recovery items aren't covered. So any help is greatly appreciated! 🟩⬜⬜⬜⬜⬜⬜⬜⬜⬜ 2% of goal on Ko-fi! ko-fi.com/bibiblossoms/g…

Unfriendly reminder that you can infect your pets (particularly cats) with covid too, and surprise, it’s not good for them. Just saw a post about cuddling up with the cats while covid+… please stop doing this. You should mask around them & keep them away while positive.

Hi disabled and/or chronically ill friends, what’s your #1 tip to build community?  #ad In paid partnership with Blueprint Medicines, a Sanofi company, I'm sharing an upcoming FB live event focused on building community when living with mast cell disease! RSVP:bit.ly/MCD-JH

Oh this looks awesome!!!

Grief is such a major part of the chronic illness / disability experience.

It’s with a super heavy heart that I share the passing of my Sunshine / Luna at 23 (nearing 24) years old ❤️‍🩹 Sunshine passed away naturally in my arms in a way that was painless and peacefully. (I know it’s extremely rare so please know I don’t take it for granted) 💛☀️🌙