We welcome the additional funding provided by the Welsh Government for hospices across Wales. It is now vital that Welsh ministers work with Tŷ Hafan Children's Hospice and Hope House & Tŷ Gobaith Children's Hospices to put children’s hospice care in Wales on sustainable financial footing for the future. bit.ly/4id0azi

Right now, the care system is failing thousands of families across the UK. Why? Because our children’s palliative care system isn’t built to last. Our latest report sets out how the UK’s governments can fix this 👉 bit.ly/4jsHTyS

📢 Thank you to everyone who’s already contacted their MP about the Terminally Ill Adults (End of Life) Bill. With report stage approaching on 16 May, we’re urging MPs to back our proposed changes. Haven’t written yet? There’s still time 👉 bit.ly/40nFIF3

Today we delivered our open letter to Downing Street. Together with 2400 people, we're calling on the government to secure the future of children’s palliative care across the UK. It’s time to create a children’s palliative care system that’s built to last and we won’t stop here✊

Like many, we're watching the debate on the Terminally Ill Adults (End of Life) Bill. Grateful to Dame Meg Hillier for highlighting the potential impact on young people. It's why we're calling for amendments to improve safeguarding and guidance ⬇️ bit.ly/40QBTZe

On Wednesday, the Chancellor will announce the outcome of Spending Review 2025. This is a vital moment for seriously ill children. We've broken down why it matters – and why it must deliver sustainable funding for children’s palliative care. bit.ly/4kVOX7O

We understand MPs’ decision to ban health professionals from raising assisted dying with under 18s. But families and palliative care services will still need guidance on holding conversations about this issue. Read our statement 👉 bit.ly/3FEH5sC

Her Royal Highness The Princess of Wales The Prince and Princess of Wales has written a personal and heartfelt message to mark #ChildrensHospiceWeek. In it she says, thanks to our children’s hospices, families will never face the future alone: bit.ly/3TxEkwk Tŷ Hafan EACH

👇🏼For families like Archie's, ministers must act now.

There are many opportunities to improve children’s palliative care from the UK government’s new 10 Year Health Plan for England, but also many questions. Read our reaction here 👉🏼 bit.ly/44zQD0h

The new Education Committee report highlights important concerns about disabled children's social care, shining a light on the challenges facing many children and their families. We welcome the report's focus and its clear calls for action. committees.parliament.uk/committee/203/…

Today, we were pleased to attend a roundtable discussion at #labourpartyconference2025 exploring the current gaps in access to palliative care, and how we can work together to close them.

🚨 Help make the 10-Year Health Plan a reality for seriously ill children On 18 November, the APPG for Children Who Need Palliative Care is holding a drop-in event and roundtable meeting. 👉 We need your help to get MPs there. Invite your MP here: togetherforshortlives.org.uk/campaign/pleas…

The National Audit Office report on adult hospices is deeply concerning. But children's hospices face significant funding challenges too. Only 1/3 of their costs are covered by the state compared to 40% for the hospice sector as a whole.

While £80m over 3 years is hugely welcome, further commitments are still needed to close the £310m funding gap and address inconsistencies in local NHS and council funding. The government’s all-age palliative and end of life care delivery plan is a vital opportunity to act.

While the £80m for children's hospices over three years is hugely welcome, further commitments are still needed to tackle the postcode lottery in children and families' access to 24/7 end of life care at home. Thanks to Sir Julian Lewis MP for raising these vital points.

At today's APPG for Children Who Need Palliative Care event, I was pleased to meet with James Cooper, Head of External Affairs and Membership Together for Short Lives, which Children's Hospices Across Scotland is a member organisation and discuss Scottish Government's new palliative care strategy and support for CHAS.

Thank you Stephen Kinnock and amazing parent Laura whose family uses Jessie May for speaking at the APPG for Children Who Need #palliativecare today. We look forward to new DHSC palliative care plan in the coming days and to continuing to work closely with Department of Health and Social Care

Over 250 families benefitted from a trailblazing three-year project funded by The Kentown Wizard Foundation in Lancashire & South Cumbria that brought our co-ordinators together with Rainbow Trust Children’s Charity's Family Support Workers & Lancashire and South Cumbria ICB NHS nurses. Read more: togetherforshortlives.org.uk/groundbreaking…

The @CommonsHealthExpert Panel has published its evaluation of palliative care in England – and the findings are stark. The report reveals that inconsistent commissioning across local NHS bodies is driving a postcode lottery in children’s palliative care. bit.ly/3Mqazgy