Amazing Lady!

Why would you take the unusual step (for a Private Members Bill) of asking Committee to meet in private? It could not be more important that this poorly birthed Bill meets publicly. Total mismanagement by people who don’t understand our democratic process??

Whether you’re For or Against, when it comes to making our laws, process is everything!

Sam Fender's saxophonist Johnny "Blue Hat" Davis getting St James' Park ready for the big game 🎷🎶

Today is ‘Rare Disease Day’ An opportunity to highlight & spread awareness of rare diseases (the clue is in the name!) Being an awkward old boot - I would like to highlight why MND is classed as a rare disease (1/4)

I’m celebrating the unique Partnership between Alan Davidson Foundation and MND-SMART launching “Davidson Nurses” to improve equality of access to MND-SMART! Read more here⬇️

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📢 The APPG on Motor Neurone Disease has issued a statement on challenges faced by people with SOD1 MND - 2% of the MND population - in accessing ground-breaking treatment, tofersen, through an Early Access Programme. Read more: mndassociation.org/media/latest-n…

This is utterly intolerable! A tiny percentage of those diagnosed with this fatal condition can be saved but the administration of the drug is too difficult? How can this be right? Surely we need to celebrate the discovery by giving them access immediately.

“This country owes its freedom and democracy to my generation” 101-year-old D-Day veteran Jack Mortimer tells Dan Walker about the moment he landed on the beaches of Normandy, and remembers the countless comrades who never made it home. On the 80th anniversary of VE Day, the

Happy #InternationalNursesDay2025 to our wonderful Davidson Nurses, supported by MND-SMART and Alan Davidson Foundation, and to all of their nursing colleagues working across the UK to care for MND patients and help them to live well. You’re a Class Act!

Brilliant news for people in the York & Scarborough area - Improving access to MND-SMART trial, better quality care for ALS patients & support for their families. MND-SMART #MND #ALS #MNDSMART #MAMS

Tacrolimus added as the fourth investigational arm in MND-SMART. MND-SMART uses an innovative #MAMS design to evaluate several potential treatments simultaneously, speeding up the time to identify effective therapies. Read more 👉 edin.ac/4jWf0uM #GlobalMNDAwarenessDay

🧠 The #LongitudePrizeOnALS is now live! This £7.5M challenge invites innovators across #biotech, #AI, and #data science to help accelerate #ALS treatment discovery. Join us in bringing AI to the fight against ALS. Learn more: bit.ly/442yOqy #LPALS #MND

Today at Westminster I showed my support for MND Association in calling for equal access to Tofersen for all people with SOD1 MND. I was pleased to stop by their Day of Action event in Parliament Square and then raised the issue in Parliament this afternoon. #PrescribeLife

15 UK anti-poverty leaders have today published a joint letter saying “Getting rid of the two-child limit is the most cost-effective way to lift 350,000 kids out of poverty, while reducing the depth of poverty for 700,000 more.” gordonandsarahbrown.com/15-uk-anti-pov…

Wonderful for MND-SMART at Euan MacDonald Centre UK Dementia Research Institute to be profiled in Forbes Magazine as an exemplar of an innovative patient centred platform trial for #mnd #als following the recent excellent #iDR25 international drug repurposing conference eur02.safelinks.protection.outlook.com/?url=https%3A%…

Interim measures are needed Karin Smyth. The drug is being supplied free by Biogen to some appropriate MotorNeuroneDisease Remaining c20 desperately need this to extend their lives with their loved ones. Please allocate necessary resources ASAP Geoff Burrow Ed Slater Darby Rimmer MND Foundation

Thank you LifeArc for your support in funding MND-SMART. Your commitment is helping vital research in the fight against MND. 🙏 #MNDResearch #ALS #MND MND-SMART UK Dementia Research Institute.