Our lichen sclerosus patient community is encouraged to take part in the GRIDD Study. GlobalSkin is collecting patient impact data through a 10–20-minute survey. Take part today globalskin.org/GRIDDStudy #GRIDDStudy

What a powerful piece of work spearheaded by Dr. Rees. So emotionally bearing witness to the hurt in my #lichensclerosus community.

ISSVD launches the Vulvar Ulcer Algorithm, a comprehensive and interactive document with valuable information designed with the user in mind. We encourage you to take advantage of this document and share this tool with other healthcare professionals. Visit:onx.la/7f4a6

Did you know that pain or difficulty inserting tampons is often a symptom of vulvodynia and/or vaginismus?⁠ The Tampon Campaign, spearheaded by the BC Centre for Vulvar Health, is trying to get this information on tampon packaging. @ubykotex Tampax US

The literature on #lichensclerosus and pregnancy is rather scare, so I'm thrilled to see more research into this important topic. Can't wait to read the article.

This is such an important survey for folks with dermatological conditions, including LS. If you haven't yet, be sure to fill it out. It's available in 17 different languages. #Griddstudy #lichensclerosus

This brochure will show you how to perform a vulvar self-exam for abnormalities. However, this is not a substitute for an examination by a health care professional, so if you are concerned, consult your health care provider. brochure available at: bit.ly/vulvarselfexam…

1045 signatures to get the government to respond to our petition. Please sign ✍🏻 and Retweet

Lichen Sclerosus is Under-reported and under-recognised. Many get misdiagnosed as thrush and even when diagnosed they given the wrong information or no information. This petition will help change that 🔗petition.parliament.uk/petitions/6327…

Huge congrats to Tina, Caitsith675 Clare and Emma Vulval Cancer UK Awareness for getting this petition in the UK to 10, 000 signatures. Thanks for being amazing advocates and thanks to everyone who reposted and shared to their networks along the way. #lichensclerosus

New LS survey from the CORALS team looking to get the patient's voices on what symptoms impact them the most. Please put the list in priority order with #1 representing the most important and #10 the least important to you. ohsu.ca1.qualtrics.com/jfe/form/SV_1G…

We only have until Saturday 2nd September so please sign and RT Fund menopause awareness training for Practice Nurses petition.parliament.uk/petitions/6337…

Join LSSN's Mini-Summit 2023 on vulvovaginal conditions. Expert speakers will be touching on #hidradenitissuppurativa #gsm #centralsensitization #lichensclerosus #lichensimplexchronicus and more. 100% virtual event, Sep 29-Oct 1 - Tickets at eventtitans.com/e/minisummit20…

September is Gynaecological Cancer Awareness Month 💜 Did you also know that there are actually 8 gynaecological cancers? Click the like to read about them all. instagram.com/p/CxLVrSaoXK7/…

Gynaecological Cancer Awareness Month 4 women would have been told today they have #vulvalcancer and it would have been a double shock as it would of been the first time they had heard of this cancer. Don’t let it be it’s rare so don’t care. Help us raise awareness

To mark #WorldPsoriasisDay today, we've launched a new set of information videos for people living with or caring for someone with #psorias or #psoriaticarthritis. Check out the talk and panel discussion videos here: bit.ly/3s3TsHU

An observational retrospected study from 1990 to 2011 looked at whether pediatric vulvar lichen sclerosus persists beyond puberty and menarche. The average follow-up was 14 years, and patients were re-evaluated by muldisiciplinary clinicians.

Help me raise funds for Lichen Sclerosus Support Network so they can continue to provide free #lichensclerosus education and support. givebutter.com/LSSN_gt23/jacl…

This is such an important initiative. Please consider donating if you have the means to do so.