I now have 20,000 words written about this band and no idea what to do with them.

Delighted to be in this alongside so many great writers

Happy being reminded De La Orgee happens in the middle of 3 Feet High and Rising Day

Pictured are some of previous years Merryn’s Smile Day recipients. Nominations for Merryn’s Smile Day 2023 are open. You can nominate a Severe or Very Severe ME sufferer for a special Smile by completing the nomination form on our website smileforme.org.uk/merrynsmileday #MerrynSmileDay

Remembering Sister Rosetta Tharpe, born on this day in 1915 in Cotton Plant, Arkansas. Here she is performing “Didn’t It Rain” at a train depot in Manchester, England in 1964.

Sure, I read the classics

Tough Poets Press Tough Poets Press Reviving a 1965 underground cult classic novel by Rick Schober on Kickstarter kickstarter.com/projects/18600…

Not enough albums sample both Mr Rogers and Tom Waits

We're looking for a publicist! 3 days per week and UK remote. jobs.thebookseller.com/job/deadink/pu…

Ahead of Merryn’s Smile Day we want to share a little bit more about Merryn the person written by her Mum Clare. Originally shared in 2020 Clare honours Merryn describing her as a ball of mischief, love, trouble & gentleness, encapsulating her love for life & her beautiful heart

Unrest is now streaming (for free) on YouTube, subtitled in 28 languages! #timeforunrest

"They were surrogate teachers for me...all the quotations, all of the references, all of the intertextual allusions within the lyrics themselves...I was writing down those names and going to the library, going to the computer to look them up and ordering them" Yep.

"What does she do all day?" The question that underlines how poorly #severeME is understood by many doctors. In this case, a private pain consultant I reached out to, in desperation & at great expense, for help with Sophia's pain as NHS pain services abandoned her 4 years ago 1/

The music business

The #DisabledPoetsPrize is now open for deaf & disabled UK poets with awards in best single poem, best unpublished pamphlet, & best poem performed in BSL and offers prize money plus exceptional opportunities. Free entry. For more info visit: disabledpoetsprize.org.uk D/L 31 Oct

I can’t say how refreshing it is to see this. It’s uniquely cruel to have a life changing illness whilst being told - by medics and the media - that you’re making it all up. From ME to Long Covid, I hope this is the beginning of post-viral patients being believed and helped.

Sophia's partner Dan heartbreakingly describes the complexities around communication, how precious and vital every message, sign and whispered word is, how ingenious her ways of staying connected are when she is so desperately lonely #verysevereME padpadpadpad.netlify.app/posts/caring_f…

We’ve got a hard hitting #ThereForME blog today from Karen Galpin, writing about caring for her daughter Sophia, who has very severe ME. KarenG @tenaciousmumma.🦋.social describes their daily reality, responding to narratives that downplay the impact of #ME thereforme.uk/p/this-is-not-…