Patients with Power #MEKills. ME charities do not report the death toll, promote false hope & refer to co-morbidities as if they know what ME is. Nobody knows what ME is and it kills. Every year more deaths. Every year no record. NHS England ME Association Action for M.E. Department of Health and Social Care

#ThereForME is an important and timely campaign - All patients deserve assessment & treatment that is appropriate, informed, accessible, and substantial, commensurate with the disease…. but with #MECFS the reality can be the opposite. 👀 Read more on #WorldPatientSafetyDay:

A critical report by ZDF about the fact that ME patients who did not become ill as a result of #COVID could be left out of the BMG's planned off-label drug list for #LongCOVID. Which is obviously NOT ok!!!

The effort of trying to get adjustments for medical appts has worsened my condition. No NHS dept I’ve spoken to understands the unique ways #MECFS is disabling. This MUST change. #ThereForME #WorldPatientSafetyDay Wes Streeting MP @dhscgovUK @gwynneMP @laylamoran Patient Safety Commissioner

“Doing nothing is not safe. We urge you to take action now” #ThereForME #ME #worldpatientsafetyday2024 #worldpatientsafetyday #pwLC #pwME #longcovid #covidinquiry #TimeForChange Wes Streeting MP @dhscgovuk @gwynnemp @laylamoran Patient Safety Commissioner

#ThereForME #ME #worldpatientsafetyday2024 #worldpatientsafetyday #pwLC #pwME #longcovid #covidinquiry #TimeForChange Wes Streeting MP @dhscgovuk @gwynnemp @laylamoran Patient Safety Commissioner

Wes Streeting MP Department of Health and Social Care Many carers of people with severe myalgic encephalomyelitis in similar positions. My teenage daughter has been severely ill for 3 years - some have been neglected for decades. We need the NHS and government to be #ThereforME

#ThereForME #WorldPatientSafetyDay Wes Streeting MP @dhscgovUK @gwynneMP @laylamoran Patient Safety Commissioner

#ThereForME #WorldPatientSafetyDay Wes Streeting MP @dhscgovUK @gwynneMP @laylamoran Patient Safety Commissioner

#ThereForME

#ThereForME #ME #worldpatientsafetyday2024 #worldpatientsafetyday #pwLC #pwME #longcovid #covidinquiry #TimeForChange Wes Streeting MP @dhscgovuk @gwynnemp @laylamoran Patient Safety Commissioner

Leeds long Covid sufferer's call for better support - BBC News If only ME/Post viral illnesses were investigated,believed,researched more pre-Covid😞 So many are just stuck,over 24 yrs for me😔 #ThereforME #MEnotCFS #MylagicE #SevereME #LongCovid #PwME bbc.co.uk/news/articles/…

Patients need to be believed and receive safe treatment. Wes Streeting MP, @dhscgovUK, @gwynneMP @laylamoran, Patient Safety Commissioner #WorldPatientSafetyDay #ThereForME

A big thank you to all our #ThereForME allies for getting the campaign trending for #WorldPatientSafetyDay 🥰 We hope Department of Health and Social Care were listening!

And a big hello from me and Oonagh Cousins - who I finally had the pleasure to meet in person today! (we zoomed in Emma GL for the occasion) The latest letter to Wes Streeting has been posted off and we’re already waiting for the response 📮

Really to ill to tweet but honestly I’d rather die at home than risk my condition getting worse in hospital. No idea how I’d even make it to hospital in the first place. Big fear of mine. #PatientSafetyDay #ThereForME Wes Streeting MP Department of Health and Social Care

#WorldPatientSafetyDay

I think anyone with ME, from mild on to very severe, can agree that what currently happens to many severe patients and family members who place their trust in the NHS can be truly horrific. We all need to know the health system will be #ThereForME.

That was totally nuts, by the way 😂